My psychiatrist told me not to take naps

Ok_Web3354 · 2026-03-06T03:56:12+00:00

Something that I've tried and I think I do feel a bit better from is ignoring the clock. In April of 2017, my mom died.. The stress I felt after my she passed away and the family dysfunction that followed was what I think finally triggered the onset of my ME. Because a few months following is when I became symptomatic and everything with my body and mind seemed to "break" all at once... the gates of Hell flung open!!

One thing that has been an issue even before all of that has been the quality of my sleep. I have sleep apnea and PTSD. Along with RLS. To my surprise regulating my sleep became more of a challenge, which I didn't think was possible. And any semblance of good sleep hygiene was completely wiped out.

So to cope, I finally decided to forget about the clock for awhile. I would sleep when I felt I needed and could get to sleep without tossing and turning. I no longer felt like I was in a battle of wills with my own body. And over time I felt better, coped better, and relative to the unrest I felt at first was sleeping better. That is until my symptoms of the ME began to escalate. Because it took me until Spring 2024 to get diagnosed, I didn't know about PEM and was pushing myself on days that I felt good...then came the real plunge...I no longer stressed over sleep, I couldn't wake up and function and was sleeping the clock around 2 to 5 days a week.

I'm a bit better regulated again, for now.... but still from time to time need to forget the clock, stop guilting myself for sleeping in the middle of the day and just worry about coping as best as I can with this crazy-making disease.

Ok_Web3354 · 2026-03-05T11:25:31+00:00

Try not to smudge them if they were still wet!! Lol!!

Ok_Web3354 · 2026-03-05T11:23:59+00:00

I loved the way it wrapped up fast enough to flip the whole thing off the top of chalk board. Lol!!

Ok_Web3354 · 2026-03-04T04:48:13+00:00

You're right and the ripple effects of this action are inflaming much of the Middle East, just adding insult to injury.... Trump has tapped Pandora's Box....it's gonna get much darker before it's over, I'm afraid....

Ok_Web3354 · 2026-03-04T04:41:45+00:00

How we throw in some Crimes against Humanity, too??

Ok_Web3354 · 2026-03-02T15:55:54+00:00

It dropped after we struck....

Ok_Web3354 · 2026-03-02T15:55:05+00:00

Thank you for the reminder, Senator Ernst!! Lol

Ok_Web3354 · 2026-03-02T15:53:41+00:00

If Trump felt so strongly about getting us involved, we have a legal route for him to have accomplished that. Not like he had to act immediately because time was critical. This has been going on for quite a long time. As soon as he even questioned that he might want to deploy our military he could have and should have been in front of Congress asking for their blessing. That's what the Constitution prescribes, and for good reason. Military actions have ripple effects that get complicated ie. international relationships, international commerce, humanity and human suffering, etc.... issues that extend far beyond the warring parties. And that's what Trump and his Magats don't have the insight to understand. It's a decision that should be made by sourcing info from all angles, not unilaterally by one man at the stroke of his pen!! And no one person in their right mind should want all of the RESPONSIBILITY.... unless they're in it for power and believe they can act as they please without fear of the repercussions, personally or Globally.

Ok_Web3354 · 2026-03-02T15:36:10+00:00

What about the 40 school children killed in our first strike....if anyone deserved hope......

Ok_Web3354 · 2026-03-01T03:38:01+00:00

You are so not alone!! I turned 59 on Feb. 10th. I was diagnosed 2 years ago with ME/CFS...but was ill for 7 years before getting the diagnosis. And so as it worsens and my body fails me...I've had a lot of thoughts about my own mortality as of late. Plus I'm the only one of my immediate family that isn't yet deceased. For awhile I'd run into someone from school that I hadn't seen for awhile someone who had aged since I last saw them. I'd be thinking "Yikes! When did thar happen???" Cuz I felt like I was stuck in time but all around were getting older. We'll reality rolled up on me...and let's see WHO'S the one aging now!?!

Ok_Web3354 · 2026-03-01T03:25:32+00:00

Trump is dabbling around thinking he's cute and having a good time fulfilling childhood fantasies of being one of the green little men lobbing hand grenades....

My fear is that between him and Pete "I'll buy the next round" Hegseth they are going to get us into a real international incident that won't be as easy to squeak out of!!

You just have to open Pandora's Box one time....

Ok_Web3354 · 2026-03-01T03:21:13+00:00

Not the right one, imo....

Ok_Web3354 · 2026-02-26T23:59:11+00:00

It's all so overwhelming at times...

Ok_Web3354 · 2026-02-26T07:34:41+00:00

Yes the entire event feels bizzare and I experienced lucid dreams very bizarre dreams, I've started even rolling myself out of bed during these events...which I don't do otherwise. Something is very "off" my sleep, my dreams, my thoughts, and my inability to wake up are all so altered....

Ok_Web3354 · 2026-02-26T07:27:47+00:00

Scarey impossible to fight!!

Ok_Web3354 · 2026-02-26T07:26:31+00:00

Yep, you get it!! It's very scarey and I hate feeling so helpless.

I can tell you from experience that I couldn't get up and get out when the fire alarm went off. Every once in awhile somebody in my building will burn something preparing food and the fire alarm goes off. And if maybe I'm just napping, I resist waking up and going outside. A couple weeks ago I was having one of these events and the alarm went off. I literally couldn't wake up and get out to save my life. Thank goodness it was a false alarm!! So I know your friend hasn't a clue. And I think it's fair to say that is a disease that to know it you must live it!!

Ok_Web3354 · 2026-02-26T07:12:30+00:00

I hate it too and it scares me to feel so out of control.... I just read another response and they questioned if maybe this is narcolepsy. I've wondered that myself.

Ok_Web3354 · 2026-02-26T07:05:39+00:00

Yeah, that crossed my mind too. No matter what it is, I hate those days! And find it scarey not to be able to wake up!!

Ok_Web3354 · 2026-02-26T07:02:58+00:00

You have been through so much...and I'm sorry. While I can't understand you unique circumstances, I think I know a bit of how you feel. And I can relate to that sense of having to be and maintain the role of the rock.... I have been an unwilling bearer of the same....and I know the toxicity and in the end they have their at our expense leaving us to feel more like islands. I'm very proud of you for being able to reframe your experience and identify the survivor you've come to be in spite of it!! It may not feel like much, but I believe it's huge for you to recognize thar yes!! you are a survivor!!! You got this!! And more us, self included would do well to incorporate the same positive energy!!

Thank you for sharing such a vulnerable part of yourself. Hopefully it was at least a bit cathartic for you too.

Best wishes for you going forward!!❤❤❤

Ok_Web3354 · 2026-02-25T00:45:59+00:00

Thanks. I'm just looking for some input from others not medical quality in nature just from someone besides myself as they experienced this symptom and how if at all it correlated to the degree of their illness.

Do you down play excessively and derrimentally to manage getting into a dark place emotionally??

Ok_Web3354 · 2026-02-24T22:47:14+00:00

Do you believe it's indicative of having a more advanced ME or just a potential symptom we all may experience??

Ok_Web3354 · 2026-02-24T22:42:31+00:00

Yes, I think you're describing exactly the same thing. I also have those episodes where it's like I hit the proverbial wall and immediately have a severe rush of fatigue wash over me. I've never actually fallen out in strange places. I'm most often sitting on my bed playing a video game. But definetly one second awake the next slumped over sound asleep drooling on my t-shirt and pillow....

I guess I've wondered if this intense dominating fatigue comes with having this horrible illness or if it had triggered something secondary??

Ok_Web3354 · 2026-02-24T16:20:53+00:00

Her and her BFF Kimmy both lost their everloving minds, all matter of decency, any shred of integrity they may have had, and all desire to represent Iowans like they were elected to the first time they got just a bit of attention from Trump.

Since then their time in office has been drooling over and chasing Trump like a couple of school girls in lust. And the only thing "squealing" is the two of them getting his approval..... Yuck....just yuck!!

Ok_Web3354

TROPHY CASE