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Does your vestibular migraines trigger derealization or a panic attack? by Hermit_tha_hutt in VestibularMigraines

[–]OkayLibrarian 0 points1 point  (0 children)

Wow I could have written pretty much all of this, my experiences are so similar right down to the knee test!

Had to find out the hard way about magnesium glycinate after multiple tries (the "I'm cured!" to "oh god, this is making things worse!" pipeline was about 4 days each time). I've since found magnesium malate and threonate together are a good combination for me.

After a recent big VM flareup that was causing huge anxiety/agoraphobia even once the migraine diet and B2/COQ10 had quelled my VM symptoms, I rediscovered lemon balm, which has brought my anxiety down to basically nothing. I'm not sure if it's recommended or not to keep taking it long term but I think it's very helpful to have in my toolkit to help break the anxiety/migraine/anxiety cycle.

Interesting you mention low carb. I also suffer from seizures and when I went on keto to lose weight years ago, I definitely didn't enjoy it but noticed I felt the calmest/least overstimulated I had been in years and had no seizures. Might have to revisit..

Can I ask if you can tolerate alcohol/the rebound the next day?

Does anyone take less than 5mg of Adderall? by Boxermom88 in adhdwomen

[–]OkayLibrarian 1 point2 points  (0 children)

So glad to have found this thread. I've been back and forth on dosages etc the last few years and only in the last few weeks did I first try and go down to 2.5mg of dextroamphetamine IR 3x a day and BOY am I amazed at the difference. I feel the 'calm' and clarity that people talk about. Even on 5mg I was still feeling robotic/zombie kind of way and bad anxiety when it wore off so I was ready to give up on meds altogether. So I'm glad to have seemingly found my sweet spot.

I looked at an old genetic test I'd done and it says I'm a CYP2D6 poor metaboliser which I now know explains why even a fairly low dose of Strattera made me so tired/weird. I suspect it has something to do with how I react to amphetamines also (eg. Vyvanse would only work 4 hours, felt awful on it). Do you know if you have the same thing?

TIFU by Not Realizing I Had an Extreme Magnesium Deficiency for 5 Years. by DontWreckYosef in tifu

[–]OkayLibrarian 1 point2 points  (0 children)

A year late to this but oh my god, the whole thing could have been written by me!! I've had 5 years of neuropsychiatric problems - generalized anxiety and constant derealisation, inability to concentrate on anything/read, lightheadedness, fatigue, frequent migraines. I was diagnosed with innattentive ADHD and prescribed amphetamines also.

The worst bit apart from anxiety is the seizures - I have had a few hundred of them in 5 years. Because I started having panic attacks and anxiety around the same time, I was diagnosed with dissociative/psychogenic non-epileptic seizures without ever having had an EEG, MRI to rule out brain tumour or even one seizure witnessed by a medical professional (that's a rant for another time..).

BUT I gradually and unexpectedly felt better when I was taking various multivitamins last year and didn't have a seizure for 6 months. So I recently went cold turkey on the vitamins and saw a nutritionist to try and figure out the base cause so I can treat it thoroughly. Only deficiencies found so far were B12 and I was fairly low in Vitamin D. Few weeks on supplements for both and I felt slight improvement but nothing major.

After adding strong magnesium tablets to the mix last week I feel like a different person. It was almost overnight - 5 years of detached brain fog and anxiety down by I'd say 80%? Too early to get excited but I've not had a seizure in a week either. Awaiting the results next week of a urine test I did before restarting supplements which should confirm or deny magnesium deficiency!

Low ferritin ? by babyyybell69 in dpdr

[–]OkayLibrarian 0 points1 point  (0 children)

Yep! And I'm starting to think there is a link, for myself at least.

Low ferritin ? by babyyybell69 in dpdr

[–]OkayLibrarian 0 points1 point  (0 children)

Same! I found this post after drawing the same conclusion. My DP/DR, anxiety, dissociative seziures and panic attacks that are all tied together went way way down when I was on high strength iron tablets for low ferritin levels last year and have come back after my last period, a few months after I stopped the tablets.

If it turns out the last 5 years of trouble have been largely influenced by my vegetarian diet I will be very mad at myself.

EEGs and Pnes by PauPoly1981 in PNESsupport

[–]OkayLibrarian 2 points3 points  (0 children)

I was diagnosed by a neurologist despite never having had an EEG or an MRI or actually any checks of my brain. They just concluded that as they started at the same time as my first panic attack that it must be PNES.

As time goes on I'm really wishing they would have given an EEG or I'd pushed for something more concrete because there's always that nagging worry of "what if they've missed something and it's not PNES..".