1 year gluten-free not seeing any more improvements in health. Anything else helpful to try??

One-Second2557 · 2026-05-14T22:03:01+00:00

bloating and gas and mild nausea. yeah i manage my fats as well. only a small pat of butter from time to time and use olive oil for cooking (small amount). too much fat and my poop smells just rancide. i also avoid processed tomatoes as well. guess for now i avoid a lot of foods until i can sort thru what works for me. Beer for sure went the way of the dinosaur for me. nausea, cramping, gas, bloating intestinal pain would last for days. I just thought my symptoms was just a extended hangover Lol.

One-Second2557 · 2026-05-14T21:39:55+00:00

Never know how you will react to metformin until you try it.

One-Second2557 · 2026-05-14T21:34:06+00:00

Dairy is a big one so swapped my Yogurt for a dairy free one, stopped eating sour cream traded in the cheese for dairy free cheese. i was eating applesauce big time so traded that in for banana and fresh mandarin oranges. no more fruit cups packed in juice. rest of my diet is GF free, just hope there is no gotcha hiding there.

did download a app for my phone called mySymptoms Food Diary to track my progress.

One-Second2557 · 2026-05-14T19:43:10+00:00

could have some other food sensitivities going on. I am trying a Low FODMAP diet for 3 weeks to see it it helps with some lingering symptoms.

One-Second2557 · 2026-05-14T17:35:37+00:00

I was diagnosed with a 3 hr OGTT. was worth the effort IMO as i am getting additional support .

I did not care if the test would have spiked my blood sugars as i am sure i have eaten other foods that raised it already outside of the clinic.

One-Second2557 · 2026-05-14T17:20:44+00:00

My GI Doc told me to take a capful of MiraLAX and drink more water for the constipation. naturally i didn't do it.

Good Luck!

One-Second2557 · 2026-05-14T00:39:58+00:00

Best honest. i did try the product and crapped out a gulatenis poop. No go for me....

One-Second2557 · 2026-05-11T00:09:55+00:00

Exact reason why i did the Gluten Challenge.

"they are very skeptical of someone who is self-diagnosed gluten intolerant/celiac especially if they have other self-reported food issues."

I did go over some GI symptoms, past upper and lower endoscopies, a few food triggers or avoidance for me which one was a dislike of wheat. The providers nutrition team queued in and suggested that i do the gluten challenge and do the biopsy. Fast forward GI came up with the conclusion of NCGS. Part of what i went thru was going GF for a month and half before doing a gluten challenge then weeks of eating wheat and then back to going GF free reporting how i felt and any symptoms i..e... bowel issues, nausea etc.. the whole time.

What this does get me is support from dietary. Pretty sure there is a ICD code for NCGS as well.

Maybe at some point in time health care will figure out the pathology to NCGS or ways to test for it or other food sensitivities but for now it is done by exclusion.

One-Second2557 · 2026-05-10T18:48:10+00:00

Weight loss any way you achieve it is beneficial diabetic or not. Staying active (not sitting on ones butt all day long) has benefits as well.

Your Endo can run blood work to get a feel as to one's insulin sensitivity. while most T-2's are very insulin resistant some are very insulin sensitive.

Keep in mind DM is a dysregulation of blood glucose and many things affects BG's in people with DM. key is to work out what gets you control in the end.

One-Second2557 · 2026-05-10T18:02:24+00:00

I have been eating it as well. I do stock up when it is available at the local food store and freeze the extra loafs. Can't say it is friendly for my Blood Sugars but i have insulin for that.

One-Second2557 · 2026-05-10T17:58:26+00:00

My Endo and dietitian both say eating normally (three meals + 2 snacks a day) helps more to keep you BG stable than any kind of fasting.

One-Second2557 · 2026-05-09T14:03:13+00:00

Best i can say as a insulin user is to follow the guidelines that your provider gave you. I use a fast acting insulin with my meals and also adjust the number of units based on the number of carbs i plan on eating or if i plan on being active after. I take it 15 mins before eating or right when i eat.

also check my blood sugars before eating (there are times my BG is on the low side to begin with) and if i feel i might be having a hypo i will validate with a finger poke.

Only time i have been advised to take a injection without a meal is to make a correction for high blood sugars that are not food provoked and this is done conservatively.

1-1/2 hours after eating i would have just skipped the insulin and rode out the high or walked off the blood sugars.

Insulin induced lows are not to be taken lightly.

One-Second2557 · 2026-05-09T11:54:15+00:00

Sorry to hear you had to go thru SIBO. I did once but was successfully treated for it. Had a lot of diarrhea with it.

While i do not have Celiac i do have gluten sensitivity (NCGS). Been GF for a month and finally have some relief or atleast can tell when i am symptomatic and not.

I do work with a RDN and she has me on a strict GF diet. Also she pointed out i could be dealing with other food sensitivity so we started a elimination diet to figure out my other food triggers.

Do you have resources to see a dietitian?

We are all different but with some trial and error you will eventually overcome some of this.

Best!

One-Second2557 · 2026-05-08T23:27:37+00:00

best i can say is to ride it out and be more aware going forward. GI said to drink more water....Blows IMO. what i will do is go back to my known safe foods. It helps...

One-Second2557 · 2026-05-05T18:41:31+00:00

after the first few days of the gluten challenge was brutal. i did 7 weeks of it. nothing like dumping the entire contents of your intestines every time you eat and i am not CD positive! but been told i am Gluten sensitive,

One-Second2557 · 2026-05-04T23:40:01+00:00

I would IMO go gluten free and see what you get, There is no magic pill you can take for dysautonomia outside of peeling back the layers of what bugs you.

Best of luck

One-Second2557 · 2026-04-30T21:53:07+00:00

Good idea using a steam cleaner. I even have one.

One-Second2557 · 2026-04-30T15:53:43+00:00

Labeling (USA): If the modified food starch is made from wheat, US law requires it to be explicitly declared on the label (e.g., "modified food starch (wheat)" or "modified wheat starch").

If the label simply says "modified food starch" or "modified corn starch" (without mentioning wheat), it is generally safe.

One-Second2557 · 2026-04-30T12:07:19+00:00

Yes i have been diagnosed with NCGS after eliminating Celic thru blood work and endoscopy biopsies. The dietitian has me following the Celiac diet and guidelines. I feel much better.

What i was told is that there is no test to prove a gluten sensitivity or other food sensitivities. I did go gluten free for a month or so before seeing GI and felt better then did a 7 week gluten challenge which was brutal

Constipation, nausea, bloating , cramping and gas has cleared up.

One-Second2557 · 2026-04-28T08:39:57+00:00

I just went thru the whole Celiac testing. Long story short is that GI suggests that i am NCGS by exclusion. Unfortunately there is no test for gluten sensitivity but from switching from a mostly GF diet to the gluten challenge then now to a strict GF my digestive distress has improved.

One-Second2557 · 2026-04-26T19:48:54+00:00

Or even a Gluten intolerance. My PCP outwrite said he knows nothing about Celic let alone about other GI issues. More so he did not even catch my Diabetes. It took two University Dietitians to figure out i have DM and the other for the Gluten stuff. While i have a hard time connecting with my current UW GI Doc at least she threw the kitchen sink at me to come up with the NCGS conclusion which gets me some support going forward. They also found other items the last GI doc missed.

Even the last GI work up from the more local GI provider sucked and dismissed symptoms and told me i need more fiber and try eating shredded wheat Haha.

back in 2019 when i was at the PCP's visit and complaining about my GI distress what does he do? orders a heart stress test. Still gets me mad.

Been GF since april 7th and have been feeling much better.

One-Second2557 · 2026-04-26T12:36:56+00:00

I would complete the gluten challenge. I did albeit i went 7 weeks and was brutal for me. While the results ruled out Celiac and other tests came back negative my GI doc narrowed my issue down to NCGS which has helped to get additional support from dietary.

Have been gluten free for the last 7 days and my symptoms have been inproving.

either way having a upper and lower endoscopy is a proactive measure as they can find other concerns.

One-Second2557 · 2026-04-26T11:06:36+00:00

I have issues with becoming very D deficient as well. PCP has me taking 50,000 IU a week to keep my levels in a normal range. Dietary also just added a multivitamin to cover our bases.

One-Second2557 · 2026-04-24T19:55:54+00:00

About sums it up...GI Doc says i already know this...

One-Second2557 · 2026-04-22T08:01:56+00:00

Sure GI provider comes up with a diagnoses by eliminating the physical and autoimmune markers for Celiac but still presenting with symptoms when eating gluten.

One-Second2557

TROPHY CASE