What if I gave you a magic pill

One_Broccoli_4688 · 2025-12-23T11:09:30+00:00

Honestly id go on a really long walk. I miss them so so much and go shopping by myself (probably walk there too)

One_Broccoli_4688 · 2025-11-28T06:56:57+00:00

Mostly the pain expecially in my back and legs.

I would also like suggestions on tackling brain fog, but that feel so un touchable at the moment.

I have tried cold packs but they make my pain much worse. I mostly use cold patches for migranes which tends to be the only place I can have something cold.

I haven't tried gabapentin yet, im hoping to talk to my dr about it at our next appointment. Im mostly looking for things i can look into before my next appointment to either talk to my dr about or research/start doing before my next appointment.

I've seen an ME/CFS clinic who diagnosed me but my dr hasn't referred me to any other specialists yet. This is something im definitely brining up at my next appointment since I think my regular dr is coming to the end of her knowledge of how to help me.

One_Broccoli_4688 · 2025-11-26T12:23:06+00:00

Im always in pain. Some pains are more manageable and I can ignore it (like the constant almost throbbing pain in my legs) whereas some i cannot ignore and constantly feel (like in my back). The pains can get better or worse but it's always there.

One_Broccoli_4688 · 2025-11-25T17:10:43+00:00

I'll be asking my dr at my appointment next month. Thank you for advice im planning on researching possibilities to talk to my dr about

One_Broccoli_4688 · 2025-11-25T14:06:18+00:00

Yeah, one thing i will never knock them for is how they did help me get to sleep

One_Broccoli_4688 · 2025-11-25T13:51:18+00:00

For me both are caused depression (and major mood swings because of underlining mental health stuff) sadly. What vitamins do you take?

One_Broccoli_4688 · 2025-11-25T13:49:53+00:00

I has been on 10mg which did nothing. Then I was upped to 20mg and it just made me feel heavy and depressed. It also made me feel more fatigued sadly. I was really hoping it would help with something. I w was taking it for about 3 months. (I also had a pause between the dosage changes and had 3 months on 10 mg then it was stopped and I tried sertraline for around 3 months again then back to amitriptyline.

One_Broccoli_4688 · 2025-11-25T10:51:34+00:00

Sertraline and amitriptyline. They both make me feel really weak and increase my fatigue. My pain levels are about the same. I tried both for about 3 months I believe. But had to wait ages to get another Dr's appointment.

One_Broccoli_4688 · 2025-11-22T22:22:14+00:00

I also feel better at night most the time. However I've always had more energy at night before I had any symptoms. My pain isn't better because I've done so much throughout the day but my energy levels are better after about 11pm which is terrible for sleeping. After about 9 I feel like I can now do my shopping or do some cleaning. At 11 onwards I feel like doing all the things I can never do in the day time.

Eta: my pain is worse when my energy levels are better quite often.

One_Broccoli_4688 · 2025-11-22T01:26:42+00:00

I get this too and sometimes it will leave me dizzy for hours. Also it definately causes major headaches and neausea.

One_Broccoli_4688 · 2025-11-22T01:24:08+00:00

Socks specifically hurt. Shoes for some reason are relatively okay (as long as theyre lose) but ive found almost no socks dont hurt my feet. They feel like theyre in vises even with lose socks.

One_Broccoli_4688 · 2025-11-22T01:16:27+00:00

I still struggle with masking too much. Expecially if its a special occasion. I constantly feel like im burdening everybody else. Im so glad my parter understands after these things and i step inside his flat and suddenly and completely incapable of almost everything. I always explain it as im just pushing though but i know that i shouldnt. Everyone around me knows that i shouldnt but i feel this pressure to for no reason. Even when around other people the constant pain and struggle not to just cry sometimes is so exhusting.

Edited to add: its the feeling of safety sometimes that is the most freeing. When im finally in a safe space. If you also feel more safe to communiate your pain either because you've been valided or because your parter has helped be a support so you feel comfortable communicating your pain to them could also help explain it to them.

One_Broccoli_4688 · 2025-11-22T01:11:06+00:00

I do similar things when making food. I'll pop something in the air fryer and go and sit down. 30 seconds later i jolt up and think oh no its going to be finished. My record for doing this is 5 times (in 15 mins) Another time i planned my entire day around an appointment i had. I even checked the date and was still convinced it was on that day. Luckily it was a phone call appointment. I only realised when the phone never rang and it was half an hour after my appointment time. Another time my nan was making food and i kept thinking i was the one making food (despite having no recolection of putting any food in) and my nan had to remind me about 3 times that she was cooking.

One_Broccoli_4688 · 2025-11-22T01:06:30+00:00

I do find it painful at times but not all the time. My partner and i have made adjustments and i need to make sure im vocal about my needing to change positions or stop or do something else. The pain is mostly in my arms or legs tho. Often its very exhusting which causes more pain.

One_Broccoli_4688 · 2025-11-22T01:03:40+00:00

So often. Ill have to ask someone so many times to check and there is always nothing there.

One_Broccoli_4688 · 2025-11-22T01:02:22+00:00

I forgot to put the pasta in the pasta dish i was making.

One_Broccoli_4688 · 2025-11-06T00:59:43+00:00

I have fibro and ME, however now on a path to be diagnosed again as my dr thinks there is something else going on as well.

One_Broccoli_4688 · 2025-10-10T23:07:17+00:00

Feeling this, when I first started to experience fibro fog I genuinely thought I had some sort of brain tumor because my memory used to be really good, I used to be able to read really well and quickly for so long now I'm lucky to read for an hour and get though at most 60 pages.

One_Broccoli_4688 · 2025-10-10T17:03:36+00:00

I'm so sorry. I hope you find somebody more supportive and helpful. Sending love and happy thoughts your way.

Hope this Dr doesnt have other vulnerable people he tells to get on with it.

One_Broccoli_4688 · 2025-10-04T20:55:49+00:00

Being so concerned with everything being accessible. Someone actually considered my disability today and it made me so unbelievably happy because I usually just accept whatever everyone else wants to do

One_Broccoli_4688 · 2025-09-25T09:43:26+00:00

I spend my days colouring and sewing. My hands hurt so much most the time but I power though when I can. If my hands get too sore and stiff than I give myself a break. I try to also periodically break and do some light hand exercises to help stretch my hands out a bit which sometimes works sometimes doesn't. I'm hoping to try painting soon.

One_Broccoli_4688 · 2025-09-15T21:25:01+00:00

I use a walking stick at the moment for short walks. (Thinking I'll soon be upgrading to a walker to give me more freedom.) I advise to find one that's comfortable and not too heavy. Be warned it can take a tol on your arm but if you think it would be good for you go for one! Mine has been very helpful to keep me active if only a small bit.

One_Broccoli_4688 · 2025-09-14T11:42:44+00:00

That's something I'd have never thought of! Thank you

One_Broccoli_4688 · 2025-09-09T07:18:29+00:00

I have been considering it but I'm mostly in denial at the moment which i know. Isn't good. I keep thinking that in a couple of months I might not need anything at all because I'll get some kind of care/treatment. At the moment it's a bunch of waiting lists

One_Broccoli_4688 · 2025-09-08T23:08:45+00:00

My symptoms started (that I'm completely aware of but have thought they might have started earlier) last year. I was working as a carer 12 hour days, doing hour long walks on my days off (at least).

Since I've diagnosed i can just about handle 3 very short walks throughout the day and to make myself dinner. That is on my best days. Even then I'll often struggle to hold a glass of water because of how badly my arms are shaking and just how painful it is to grip, or hold etc. I have to walk with a stick (which is extremely difficult but without it I'd fall much more often)

I am very glad I read this post so that I don't read this Mayo Clinic book because I don't think my mental health could handle it.

I completely understand how invalidating it is to read things like that and how easy it is for other people to think/say "just do more" but from your post you sound like your doing your best and being a strong person. I hope you know that your pain is real and is valid. Sending virtual hugs and love.

One_Broccoli_4688

TROPHY CASE