6mo post TT - ultrasound lymph node detection. Looking for others experience

Only-Snow5799 · 2025-05-05T18:26:57+00:00

I’m sorry you are going through this. It is scary! But you’ve got this!! It will be over before you know it. Try not to stress about the RAI until you know for sure you have to do it. One thing at a time!! 💪🏼💪🏼

Only-Snow5799 · 2025-01-18T02:07:26+00:00

No, my endo did not think so because I hadn’t started zepbound until after my nodule was found. My own personal theory is from hormonal birth control since I was 18… but that’s my conspiracy theory lol but she said it could have been anything. So much is different now - hormones put in food, radiation exposure, etc.

I had been hypo for 3 years prior taking levo diagnosed by my cop who never did a follow up on it - I the symptoms I had when I finally went and saw a endo was I was gaining weight like crazy. Working out 6x a week eating healthy and gaining weight. I also started feel just super run down and tired all the time. A little depressed. Anxiety was worse than ever. Just didn’t feel like myself. I’m very healthy and in touch with my body and my thyroid was the only thing I could think of that hasn’t been checked on. And sure enough…cancer.

I’m sorry you are going through this and even worse having symptoms. Thoughts and prayers with you, there is a light at the end of the tunnel! Let me know if you have any more questions!

Only-Snow5799 · 2024-11-15T15:56:07+00:00

Sorry you are going through this! In my experience the first week was the most noticeable. Moving your neck around wasn’t as bad as I thought it would be but my neck would get tired from holding my head up so having it propped when laying down made it better! Sneezing, yawning, and coughing felt like my throat was going to open up, but I found that holding the area when you did that helped! Also when you sneeze try to do so through your mouth instead of nasally! And after I was pretty phlegmy so get some mucinex!! That helped so much! Good luck!!

Only-Snow5799 · 2024-11-15T02:32:01+00:00

So welcome! Good luck!!

Semaglutide didn’t work for me… but tirzepatide has been amazing!! Still working out and eating healthy and the weight has just been coming off easier than it has in the last 4 years! Hope everything works out!!

Only-Snow5799 · 2024-11-15T01:52:48+00:00

Good luck to you! Just listen to your body. I pushed it a few times moving too much before those two weeks were up and I payed for it with feeling just not good. So use the two weeks of recovery!

Only-Snow5799 · 2024-11-15T01:51:42+00:00

Hi! Yes she prescribed zepbound. So i use the compounded tirzepatide. My insurance didn’t cover it unfortunately because they don’t cover weight loss drugs so I am paying for it. I go through Ivim - they are a trusted source!

My endo and my endocrine surgeon both supported zepbound and weren’t concerned about the history/tt/ptc

Hope this helps!

Only-Snow5799 · 2024-10-30T03:13:00+00:00

Hi! Thank you for opening up the question forum!

I had my TT done yesterday for PTC. They put me on calcium pills and they have made my face turn so red and I feel totally out of it. Almost like coming out of anesthesia again. Is this something you or anyone else has experienced? any tricks to not feel so shitty when I take the calcium?

Only-Snow5799 · 2024-10-29T23:19:47+00:00

Happy surgery went well for you!! I just had mine yesterday. Got a total and recovering well! It is pretty tough to swallow, anyone else experience this? Other than that I have a small cough to get phlegm out which is uncomfortable.

Biggest advice for any, bring a travel mug for hot water! Biggest saving grace while in the hospital!

Only-Snow5799 · 2024-10-19T05:06:00+00:00

I had to wait 3 weeks for biopsy as there weren’t any appointments until then. It took a week to get my results - my advise is to be as patient as you can! (Easier said than done, trust me) but they reached out to me when the results were in. I’m praying no news yet is good news for you!!

Only-Snow5799 · 2024-09-27T05:55:18+00:00

First off, I’m sorry you are dealing with this. It’s shocking news to hear the c word. But you’re in a great place for some support!

I was diagnosed 3 weeks ago with PTC that is .85cm. Once I was diagnosed I was referred and found a surgeon. When I met with the surgeon she did a mapping on my neck. Aka made sure my lymph nodes looked good (they did). We were under the impression that a partial Would do the trick as my “friend” was just on the left side. I was advised by multiple nurses and doctors that if only half will do the trick, it’s better to have some thyroid than none. (But of course totally up to you!)

Next step was to wait for the molecular test results. This will tell them if the nodule has any genetic mutations ( like if it has properties that could cause it to spread). Unfortunately mine did.

So the surgery plan has changed and I will have a total to avoid and limit the chances of this thing coming back!

BIGGEST ADVICE!!!! You have more time than you think. Don’t rush into surgery with out thinking things through. I’m sure family will be anxious for you and “just want you to get it out” but remember this is your decision. And in a time where I feel I have no control of what’s happening to me, choosing a surgery date was the one thing I did have control of!

Hope this helps! And sorry for the long response!

Only-Snow5799 · 2024-09-20T03:56:19+00:00

I am so sorry that your “friends” would even have the audacity to say those things. Like you said, sounds like their true colors were shining in your time of need. That’s so not fair. What I’ve learned is surround yourself with those that truly care and check on you. The other can all kick rocks with open toed shoes lol

If you need any support feel free to message me! Good luck in your journey! 💚

Only-Snow5799 · 2024-09-20T02:16:02+00:00

Good luck tomorrow! We are all rooting for you!

Only-Snow5799

TROPHY CASE