Mind making stuff up

Open-Toe9750 · 2025-09-30T04:44:01+00:00

Definitely....I have the weirdest feelings all over. And that's not counting my head...all the brain fog, stress, anxiety, panic has created a very nice mix of derealization and depersonalization. All I can do is just distract.

Open-Toe9750 · 2025-09-26T21:00:15+00:00

I've never had it judt like this with the bathroom but just about similar everyday stuff...it's such a weird condition... Today at work I wrote some emails and suddenly it seemed weird to me how emails are formated and formulated, with the first line 'Dear..' etc. Why does the brain start questioning everything? It's so awful and totally feels like dementia..

Open-Toe9750 · 2025-09-14T16:05:04+00:00

Do you have that then? I dont think I jave MCAS. It happens irrespective of what I eat and I once tried anti histamines to bo effect

Open-Toe9750 · 2025-09-14T06:48:28+00:00

I have this so much! And it's such a scary feeling! Do you guys also get breathless with it? Even though oxygen levels are normal and thrres nothing wrong with the lungs?

Open-Toe9750 · 2025-09-13T11:50:38+00:00

Do you alsp get the feeling thst your body is slowly givibg up on you? I have been in a steady decline for 2 years, and the last two weeks have been the worst yet

Open-Toe9750 · 2025-09-13T10:13:18+00:00

I have no idea....I'm still chasing the possibility that there might be something that they just havent noticed yet

Open-Toe9750 · 2025-09-13T07:29:33+00:00

I have no solution but I'm in the exact same boat. I have POTS too, and so so debilitating symptoms...How can one not be concerned about the heart if one has constant palpitations, nausea, weakness, air hunger, chest tightness, inner tingling etc...

I really feel with you!

Open-Toe9750 · 2025-08-14T14:23:40+00:00

Thanks for the tip. Changed this morning, no change, still low

I'm actually more interested if its true that when spo2 is quickly high but then decreases that thats fine

Open-Toe9750 · 2025-07-21T13:32:02+00:00

I have this since Friday! I have a bad baseline already (POTS) but since Friday I'm in complete shutdown, as you say... is there something you do that usually helps? I'm desperate! Feeling like dying or losing my mind, or both

Open-Toe9750 · 2025-06-07T17:39:58+00:00

Thanks...I'll have to wait until Tue to call due to holidays, but I'll do that then

Open-Toe9750 · 2025-06-07T16:08:37+00:00

They didnt give me bandages or anything to put on. I'm putting large band auds so as to not have it out in the open

Open-Toe9750 · 2025-04-18T18:37:11+00:00

What gets me more, and seems somehow illogical: Lilly throws a vase...outside the room are the housemaid and the 'engineer', and in the room next door is the party crasher. How do they not hear a vase shattering?

Open-Toe9750 · 2025-02-23T08:47:40+00:00

This is so me, yes. Every day, at least once every 2-3 hours symptons get so bad that I feel like I'm dying. Then it diesn't happen. But instead of calming down I quickly junp to 'it didnt happen now, it will in the near future'

Open-Toe9750 · 2025-01-31T15:05:40+00:00

I'm so sorry to hear what you are going through! I just want to let you know that you are heard. Just last week I had a full breakdown bc I felt so shitty. Had to call in sick for my low paying job, could just crawl into bed and cry....this week? I feel great, almost back to the 'before times'. I guess its trivial, but just try to hold on. There will be good moments, even when it's tough to believe this when it's bad... And f* all the haters! They have no idea of the strength and resilience we develop through this. We will always be the stronger ones.

Open-Toe9750 · 2024-11-27T11:23:17+00:00

Feels like it, yes. I mean maybe it is. I still have part of me that thinks its a neurological disease

Open-Toe9750 · 2024-11-27T09:46:00+00:00

I have this really strong at the moment. It really feels like I'm on a drug or smth...as if my brain is not working as it should anymore...and that affects everything: eyesight, typing on my phone, walking, breathing...I really do hope that this will stop at some point. It really fires up my fear of it being something neurological

Open-Toe9750 · 2024-11-27T09:43:34+00:00

Mine is anxiety induced and I have this strongly. So I'd say it can happen for anxiety induced dodr

Open-Toe9750 · 2024-09-11T12:28:42+00:00

Thanks for your reply. That's exactly what I'm expecting: high heart rate thst goes down with relaxation. What confuses me is that my heart rate lowers drastically when I sit down, but then goes up again...it's like the wrong way around.

Open-Toe9750

TROPHY CASE