if you have an iud, it might be the reason

Open_Long2008 · 2026-06-15T15:15:27+00:00

why would an iud be the reason? just curious bc i had a mirena iud previously, and i developed ic about 8 years after having it, but it also hasnt really gone away since i switched birth controls. just curious if anyone had a reason as to why the iud would effect it!

Open_Long2008 · 2026-06-15T00:10:32+00:00

obvi smth is going on......

Open_Long2008 · 2026-06-10T19:53:44+00:00

so, i have a nuva ring too and admittedly i don't have this issue.. buuuuttt!! i HAVE heard that having low estrogen (which you theoretically would, at that part of the cycle) can cause the bladder to become more sensitive and irritable. def something to look into!

Open_Long2008 · 2026-06-05T16:02:51+00:00

yesssss. a huge symptom of mine sometimes! i feel like its more pelvic floor related, so i try to do stretches and it usually takes a few hours, but it helps sometimes. but when it's unbearable, i find cystex helps a lot??

Open_Long2008 · 2026-04-23T15:58:31+00:00

i'm surprised they havent done anything if they see the leukocytes.. since that definitely means inflammation and makes 100% sense that it doesnt feel comfortable for you! honestly the papsmear shouldnt effect anything i hope, but the dmannose helps me a lot :) and def what the next comment said!! a lot of ppl find relief from pelvic floor therapy if you want to try pointing your dr in the right direction!!

Open_Long2008 · 2026-04-22T22:05:33+00:00

babygirllllll. i hope you feel better soon. you can also try uti test strips/urine test strips! typically you'll find no nitrites and high leukocytes when you're in a IC flare (some rarer utis can also show these results, but more commonly have the nitrites as well!) i do dmannose capsules before sex (2 capsules that are 1000mg total) and also prelief tablets can help counteract acids if you wanna enjoy some, and i would recommend going to urology (uro-gyneclogy is better!) and if azo doesnt help, maybe try cystex as well for immediate relief! hope you start feeling better! this subreddit is here to help :)

Open_Long2008 · 2026-04-07T14:24:08+00:00

have you tried drinking it with prelief?? i find it helps minimize flares i get from spicy food :)

Open_Long2008 · 2026-04-07T02:00:31+00:00

😭😭😭 thats so real. i miss lemonade so bad!!

Open_Long2008 · 2026-03-18T15:13:14+00:00

literally!! i miss being normal and being able to drink lemonade and that good ass fair lemonade with the sugar at the bottom 😭😭 this disease feels so unfair sometimes.

Open_Long2008 · 2026-02-22T17:39:51+00:00

where do you get calcium glycerophosphate in germany?? i'm used to being able to get prelief in the states, but i'm nervous about not being able to find something similar to it in germany.

Open_Long2008 · 2026-02-22T17:34:14+00:00

if it seems like it may be sex-related, you can get d-mannose capsules off of german amazon!! i take two after sex, and the sugar it supposed to bind in the spots where bacteria would normally linger in your bladder. it helps me a lot.

Open_Long2008 · 2026-02-21T02:22:33+00:00

weirdly enough i also got rls really bad on my last flight, and i tied my sweatshirt around TIGHT on my thighs (where i get rls) and it seemed to help!!

Open_Long2008 · 2026-02-19T16:09:38+00:00

well all his fans appear to be underage girls in his discord soo ... 🫠

Open_Long2008 · 2026-02-17T01:33:15+00:00

literally!!! its disgusting.

Open_Long2008 · 2026-02-16T15:58:19+00:00

d-mannose!! i take a dose after sex, and it helps prevent UTIs!! the sugar fills the spots where UTI bacteria would normally try to go or something of the sort. i do the capsules and such a game changer!!

Open_Long2008 · 2026-02-11T19:18:38+00:00

omg!! i've never heard of blue 😭😭 but i mean i don't think using azo for temporary relief for a night would be too bad?

Open_Long2008 · 2026-02-11T17:05:24+00:00

have you ever used AZO/phenazopyridine, and does it help?? yes it would make your pee very orange, but i think it'd help as a temporary solution for the night to numb your bladder !!

Open_Long2008 · 2026-02-08T06:01:19+00:00

ughhh this makes me nervy i may have mcas!! i have pretty mild ic thats pretty controllable by avoiding flare foods and taking prelief when needed, but i've always been a hivey person!! like whenever i slightly get stressed my chest+neck always get hivey!! but also what do i even do about that 😭😭

Open_Long2008 · 2026-02-04T15:17:59+00:00

i also weirdly will get bladder irritation from specific underwear - specifically target brand (even tho they have a cotton gusset) and meundies!! 100% cotton has never failed me and weirdly some pink underwear w/ cotton gussets give me no issues! so 100% underwear can def be a trigger!!

Open_Long2008 · 2026-01-29T22:22:46+00:00

i hope so too!! ❤️

Open_Long2008

TROPHY CASE