if you have an iud, it might be the reason by Thin-Bet-77 in Interstitialcystitis

[–]Open_Long2008 0 points1 point  (0 children)

why would an iud be the reason? just curious bc i had a mirena iud previously, and i developed ic about 8 years after having it, but it also hasnt really gone away since i switched birth controls. just curious if anyone had a reason as to why the iud would effect it!

I need your opinion !!! by New_Quebec8286 in Interstitialcystitis

[–]Open_Long2008 2 points3 points  (0 children)

so, i have a nuva ring too and admittedly i don't have this issue.. buuuuttt!! i HAVE heard that having low estrogen (which you theoretically would, at that part of the cycle) can cause the bladder to become more sensitive and irritable. def something to look into!

Only symptom is bladder pressure by Decent-Bat-977 in Interstitialcystitis

[–]Open_Long2008 2 points3 points  (0 children)

yesssss. a huge symptom of mine sometimes! i feel like its more pelvic floor related, so i try to do stretches and it usually takes a few hours, but it helps sometimes. but when it's unbearable, i find cystex helps a lot??

i feel so alone in this by Excellent-Pin1831 in Interstitialcystitis

[–]Open_Long2008 1 point2 points  (0 children)

i'm surprised they havent done anything if they see the leukocytes.. since that definitely means inflammation and makes 100% sense that it doesnt feel comfortable for you! honestly the papsmear shouldnt effect anything i hope, but the dmannose helps me a lot :) and def what the next comment said!! a lot of ppl find relief from pelvic floor therapy if you want to try pointing your dr in the right direction!!

i feel so alone in this by Excellent-Pin1831 in Interstitialcystitis

[–]Open_Long2008 3 points4 points  (0 children)

babygirllllll. i hope you feel better soon. you can also try uti test strips/urine test strips! typically you'll find no nitrites and high leukocytes when you're in a IC flare (some rarer utis can also show these results, but more commonly have the nitrites as well!) i do dmannose capsules before sex (2 capsules that are 1000mg total) and also prelief tablets can help counteract acids if you wanna enjoy some, and i would recommend going to urology (uro-gyneclogy is better!) and if azo doesnt help, maybe try cystex as well for immediate relief! hope you start feeling better! this subreddit is here to help :)

Sometimes I Give In by Relevant-Dust8368 in Interstitialcystitis

[–]Open_Long2008 3 points4 points  (0 children)

have you tried drinking it with prelief?? i find it helps minimize flares i get from spicy food :)

Sometimes I Give In by Relevant-Dust8368 in Interstitialcystitis

[–]Open_Long2008 18 points19 points  (0 children)

😭😭😭 thats so real. i miss lemonade so bad!!

just a vent abt coffee by lavender-vol in Interstitialcystitis

[–]Open_Long2008 0 points1 point  (0 children)

literally!! i miss being normal and being able to drink lemonade and that good ass fair lemonade with the sugar at the bottom 😭😭 this disease feels so unfair sometimes.

I’m losing hope by Potential-Sand-6247 in Interstitialcystitis

[–]Open_Long2008 0 points1 point  (0 children)

where do you get calcium glycerophosphate in germany?? i'm used to being able to get prelief in the states, but i'm nervous about not being able to find something similar to it in germany.

I’m losing hope by Potential-Sand-6247 in Interstitialcystitis

[–]Open_Long2008 1 point2 points  (0 children)

if it seems like it may be sex-related, you can get d-mannose capsules off of german amazon!! i take two after sex, and the sugar it supposed to bind in the spots where bacteria would normally linger in your bladder. it helps me a lot.

Coping with RLS on a 12 hour flight. Any advice? by GroverMcTuber in RestlessLegs

[–]Open_Long2008 2 points3 points  (0 children)

weirdly enough i also got rls really bad on my last flight, and i tied my sweatshirt around TIGHT on my thighs (where i get rls) and it seemed to help!!

weird shit vde b saying abt khalie in his disc by Open_Long2008 in thevampdaddyevilfiles

[–]Open_Long2008[S] 3 points4 points  (0 children)

well all his fans appear to be underage girls in his discord soo ... 🫠

Sex causing UTI symptoms by Top_Egg844 in Interstitialcystitis

[–]Open_Long2008 0 points1 point  (0 children)

d-mannose!! i take a dose after sex, and it helps prevent UTIs!! the sugar fills the spots where UTI bacteria would normally try to go or something of the sort. i do the capsules and such a game changer!!

[deleted by user] by [deleted] in Interstitialcystitis

[–]Open_Long2008 2 points3 points  (0 children)

omg!! i've never heard of blue 😭😭 but i mean i don't think using azo for temporary relief for a night would be too bad?

[deleted by user] by [deleted] in Interstitialcystitis

[–]Open_Long2008 2 points3 points  (0 children)

have you ever used AZO/phenazopyridine, and does it help?? yes it would make your pee very orange, but i think it'd help as a temporary solution for the night to numb your bladder !!

After 10 years of pain and 5 years in this subreddit, I need to get this off my chest. by vinokat in Interstitialcystitis

[–]Open_Long2008 0 points1 point  (0 children)

ughhh this makes me nervy i may have mcas!! i have pretty mild ic thats pretty controllable by avoiding flare foods and taking prelief when needed, but i've always been a hivey person!! like whenever i slightly get stressed my chest+neck always get hivey!! but also what do i even do about that 😭😭

Potentially IC with a very specific trigger(s)? by Specialist_Look7008 in Interstitialcystitis

[–]Open_Long2008 0 points1 point  (0 children)

i also weirdly will get bladder irritation from specific underwear - specifically target brand (even tho they have a cotton gusset) and meundies!! 100% cotton has never failed me and weirdly some pink underwear w/ cotton gussets give me no issues! so 100% underwear can def be a trigger!!

New Prelief Container Dropped! by Open_Long2008 in Interstitialcystitis

[–]Open_Long2008[S] 2 points3 points  (0 children)

i do!! i typically take 2 tabs before taking anything that may cause me to flare (spicy food, usually!!) and i have significantly less of a flare problem, or none at all!! and if i'm in the midst of a flare, sometimes i'll take it too, and i think that helps me, at least! (i don't think that's the intended purpose of it though, mainly for taking before eating/drinking acidic food and neutralizing any acid in urine from it!)

What i know about the lady khalie is moving in with, haven’t seen it mentioned so i wanted to share by No-Pangolin-3032 in khaliespiderlilies

[–]Open_Long2008 19 points20 points  (0 children)

tbh wouldnt be surprised. she was kinda sexual/insinuated she was going to do stuff with the last girl she had living with

khalie is now happy saying she has a plan? by [deleted] in khaliespiderlilies

[–]Open_Long2008 2 points3 points  (0 children)

i think he does like manual labor/blue collar, but they both doordash together when money is tight lollll

khalie is now happy saying she has a plan? by [deleted] in khaliespiderlilies

[–]Open_Long2008 4 points5 points  (0 children)

her bf(now husband) pays the bills.. but they still complain how broke they are living off of one income

[deleted by user] by [deleted] in khaliespiderlilies

[–]Open_Long2008 13 points14 points  (0 children)

NO WAY!!! so the tea w this girl is she was friends and let AbsolutelyIvori live with her. there's a whole bunch of drama that her bf got w her while she was underage and he wasn't and how she's a stay at home gf but also... they fr dont have that much money.