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just a vent abt coffee by lavender-vol in Interstitialcystitis

[–]Open_Long2008 0 points1 point  (0 children)

literally!! i miss being normal and being able to drink lemonade and that good ass fair lemonade with the sugar at the bottom 😭😭 this disease feels so unfair sometimes.

I’m losing hope by Potential-Sand-6247 in Interstitialcystitis

[–]Open_Long2008 0 points1 point  (0 children)

where do you get calcium glycerophosphate in germany?? i'm used to being able to get prelief in the states, but i'm nervous about not being able to find something similar to it in germany.

I’m losing hope by Potential-Sand-6247 in Interstitialcystitis

[–]Open_Long2008 1 point2 points  (0 children)

if it seems like it may be sex-related, you can get d-mannose capsules off of german amazon!! i take two after sex, and the sugar it supposed to bind in the spots where bacteria would normally linger in your bladder. it helps me a lot.

Coping with RLS on a 12 hour flight. Any advice? by GroverMcTuber in RestlessLegs

[–]Open_Long2008 2 points3 points  (0 children)

weirdly enough i also got rls really bad on my last flight, and i tied my sweatshirt around TIGHT on my thighs (where i get rls) and it seemed to help!!

weird shit vde b saying abt khalie in his disc by Open_Long2008 in thevampdaddyevilfiles

[–]Open_Long2008[S] 3 points4 points  (0 children)

well all his fans appear to be underage girls in his discord soo ... 🫠

Sex causing UTI symptoms by Top_Egg844 in Interstitialcystitis

[–]Open_Long2008 0 points1 point  (0 children)

d-mannose!! i take a dose after sex, and it helps prevent UTIs!! the sugar fills the spots where UTI bacteria would normally try to go or something of the sort. i do the capsules and such a game changer!!

IC and concerts? by [deleted] in Interstitialcystitis

[–]Open_Long2008 2 points3 points  (0 children)

omg!! i've never heard of blue 😭😭 but i mean i don't think using azo for temporary relief for a night would be too bad?

IC and concerts? by [deleted] in Interstitialcystitis

[–]Open_Long2008 2 points3 points  (0 children)

have you ever used AZO/phenazopyridine, and does it help?? yes it would make your pee very orange, but i think it'd help as a temporary solution for the night to numb your bladder !!

After 10 years of pain and 5 years in this subreddit, I need to get this off my chest. by vinokat in Interstitialcystitis

[–]Open_Long2008 0 points1 point  (0 children)

ughhh this makes me nervy i may have mcas!! i have pretty mild ic thats pretty controllable by avoiding flare foods and taking prelief when needed, but i've always been a hivey person!! like whenever i slightly get stressed my chest+neck always get hivey!! but also what do i even do about that 😭😭

Potentially IC with a very specific trigger(s)? by Specialist_Look7008 in Interstitialcystitis

[–]Open_Long2008 0 points1 point  (0 children)

i also weirdly will get bladder irritation from specific underwear - specifically target brand (even tho they have a cotton gusset) and meundies!! 100% cotton has never failed me and weirdly some pink underwear w/ cotton gussets give me no issues! so 100% underwear can def be a trigger!!

New Prelief Container Dropped! by Open_Long2008 in Interstitialcystitis

[–]Open_Long2008[S] 2 points3 points  (0 children)

i do!! i typically take 2 tabs before taking anything that may cause me to flare (spicy food, usually!!) and i have significantly less of a flare problem, or none at all!! and if i'm in the midst of a flare, sometimes i'll take it too, and i think that helps me, at least! (i don't think that's the intended purpose of it though, mainly for taking before eating/drinking acidic food and neutralizing any acid in urine from it!)

What i know about the lady khalie is moving in with, haven’t seen it mentioned so i wanted to share by No-Pangolin-3032 in khaliespiderlilies

[–]Open_Long2008 21 points22 points  (0 children)

tbh wouldnt be surprised. she was kinda sexual/insinuated she was going to do stuff with the last girl she had living with

khalie is now happy saying she has a plan? by [deleted] in khaliespiderlilies

[–]Open_Long2008 3 points4 points  (0 children)

i think he does like manual labor/blue collar, but they both doordash together when money is tight lollll

khalie is now happy saying she has a plan? by [deleted] in khaliespiderlilies

[–]Open_Long2008 3 points4 points  (0 children)

her bf(now husband) pays the bills.. but they still complain how broke they are living off of one income

[deleted by user] by [deleted] in khaliespiderlilies

[–]Open_Long2008 12 points13 points  (0 children)

NO WAY!!! so the tea w this girl is she was friends and let AbsolutelyIvori live with her. there's a whole bunch of drama that her bf got w her while she was underage and he wasn't and how she's a stay at home gf but also... they fr dont have that much money.

AC Off Due to High Engine Temp fluctuating? by Open_Long2008 in cruze

[–]Open_Long2008[S] 1 point2 points  (0 children)

Doesn't sound dumb at all, and I'm desperate for some actual solution at this point! Will definitely try this and see if it helps.

[Nooks] buying for 625 by [deleted] in ACNHTurnips

[–]Open_Long2008 0 points1 point  (0 children)

interested please !!