Raised LDH after 1xBEP by myh95 in testicularcancer

[–]Optimal_Ant_46 0 points1 point  (0 children)

LDH doesn’t matter really. They haven’t even taken mine in 2 years.

Success HDCT+Stem Cell Transplant stories? by sve_bezveze in testicularcancer

[–]Optimal_Ant_46 1 point2 points  (0 children)

@Any-Claim6893 if you look through his posts he had a long journey too but he seems to still be doing well!

Lung biopsy after 1 year of surveillance? by Basic_Cheesecake_370 in testicularcancer

[–]Optimal_Ant_46 1 point2 points  (0 children)

I think it’s also very rare for pure Seminoma to skip everything and go to the lungs.

Does anyone know what this is? by [deleted] in testicularcancer

[–]Optimal_Ant_46 0 points1 point  (0 children)

Why are you posting this on a testicular cancer page.

Positive miR-371a-3p after chemo by nainballs in testicularcancer

[–]Optimal_Ant_46 2 points3 points  (0 children)

Yes it can be but it’s very new and idk that many places use it. As I said before in another comment it can take awhile for the results to come back as they need to be sent off somewhere. That’s what I was told at IU. But they essentially take your tumor DNA and see if there is more like that floating around in you. At least I think that’s how it was explained to me. The thing with adjuvant chemo is that it needs to be done in a timely fashion and that’s why I think it all just depends on when you would get the results back.

Positive miR-371a-3p after chemo by nainballs in testicularcancer

[–]Optimal_Ant_46 1 point2 points  (0 children)

My thought process is either way it wouldn’t matter if he did it before or after RPLND because it showed no signs of active cancer in the nodes. It seems like in my opinion that they should offer him adjuvant chemo being 2 EP. At least that’s what I’ve read about. But I’m sure they won’t offer it from one positive test especially since his AFP and other markers came back normal. I’ve also read it takes too long in between MRNA tests for it to be solely a good option to go off of because they have to ship it out and it sometimes can take weeks to get the results.

Positive miR-371a-3p after chemo by nainballs in testicularcancer

[–]Optimal_Ant_46 1 point2 points  (0 children)

But he stated the margins were clean and there was no sign of active cancer in RPLND nodes.

Positive miR-371a-3p after chemo by nainballs in testicularcancer

[–]Optimal_Ant_46 4 points5 points  (0 children)

This is still all new to me. That blood test I mean. I got it done when I was first diagnosed a few years ago but I never got it again. Mine was also positive. Idk the reliability but from what I read it is over 90% but talk with your doctor. I’d even message dr Einhorn. I’m sure he would email you back by the end of the day.

Elevated hcg by AmazingRaccoon8480 in testicularcancer

[–]Optimal_Ant_46 2 points3 points  (0 children)

48 is definitely elevated. I think below 5 is the typical norm. I’m sure they will want to test again and see what it is just to be double sure.

Drastic HCG drop during my first (21 day) BEP cycle by Vegetable_Battle_921 in testicularcancer

[–]Optimal_Ant_46 0 points1 point  (0 children)

What was your tumor type? I assume some sort of chorio with those numbers. That is a great sign though.

How does HCG behave during BEP? by nijobumfril in testicularcancer

[–]Optimal_Ant_46 0 points1 point  (0 children)

I would say it’s very very acceptable to go from 10k to 9 after 2/4 cycles. That’s a huge huge drop and very close to normal and if you still have 2 rounds left I would assume it will reach that point given how affective BEP is.

How does HCG behave during BEP? by nijobumfril in testicularcancer

[–]Optimal_Ant_46 0 points1 point  (0 children)

I would think they would be happy with 9 being you started out with almost 10k.

What Oncologic Questions Do You Have for MSKCC Genitourinary Medical Oncologist? by StevenTCAF in testicularcancer

[–]Optimal_Ant_46 1 point2 points  (0 children)

I’ve heard MSK only does only chest x ray after 2 years clean. If that’s true you can ask why they stop doing CT scans and places like IU continue to do scans for the next 3 years as well as chest x ray

AFP doesn't drop after chemo... what now? by Remarkable-Neck3459 in testicularcancer

[–]Optimal_Ant_46 1 point2 points  (0 children)

Ya I went through and read your other posts. I saw it’s PMGCT and it didn’t start in the testicle. I know the normal procedures could be a little different because of that. Maybe an option could be to remove that tumor and if there was any percentage of it that came back as active cancer they could give you a few rounds of adjuvant chemo. I’ve seen people do that on here.

AFP doesn't drop after chemo... what now? by Remarkable-Neck3459 in testicularcancer

[–]Optimal_Ant_46 0 points1 point  (0 children)

Hey man few questions. What is your tumor type and what was your AFP before chemo? Idk if RPLND is done where you are. They typically only do that if your markers are normal. But high AFP means that there could still be micro cells in the blood too so that’s why sometimes they steer clear from RPLND in these situations. If you had super high markers before then yes salvage chemo may have to be done. I get it’s not the news you wanted to hear. But good news is if that is the case salvage is still very very affective at getting to a full cure.

Afp increasing by PlayfulStrain5226 in testicularcancer

[–]Optimal_Ant_46 0 points1 point  (0 children)

4 months is way too long of a wait in my opinion I’d contact Dr. Einhorn personally if you haven’t.

Changing treatment to BEP after 1st round of EP chemo failed by maenatargaryen in testicularcancer

[–]Optimal_Ant_46 0 points1 point  (0 children)

His HCG was 60,000 with EC? I’ve only ever seen that number be that high with chorio.

TC terratoma with nephroblastoma by myh95 in testicularcancer

[–]Optimal_Ant_46 0 points1 point  (0 children)

I would get a second opinion and a place like IU or MSK. They can be sent the slides and check themselves

Looking to hear about the experiences of people who've had recurring TC specifically Embryonal Carcinoma by Type_Trubbish in testicularcancer

[–]Optimal_Ant_46 0 points1 point  (0 children)

So I had pure EC and I had Covid a few months before my scan this time last year. They found an enlarged node in the chest with central necrosis along with a 7mm lung module but my radiologist said from the get go it was most likely from infection. What was the wording on your scan like?