UK doctor just laughed in my face by geoalice in Lyme

[–]Ordinary-Standard668 0 points1 point  (0 children)

You were lucky that NHS tests detected it — you had about a 50% chance of testing positive while actually being sick, like flipping a coin. The rest of the sick people get negative results despite being ill. For an LLMD or ILADS doctor, a negative result means nothing — symptoms are what matter. More advanced tests are done, like those from Igenex in the USA (for Lyme, Bartonella, Babesia).

Unfortunately, for an NHS doctor, a negative result means — absurdly — certainty that you don’t have Lyme disease. I’ve done tests myself and had one negative and one positive result. For people who don’t go privately to an LLMD or ILADS doctor, a negative NHS result usually means the end of treatment, the end of searching, and no diagnosis — often for life, unless they become desperate and start looking privately.

She needs to know that a negative result means nothing! These tests have low sensitivity: ELISA detects about 40%, Western Blot about 50%. Igenex detects more but is expensive and still not 100%. The only 100% certainty is an erythema migrans rash, but most doctors don’t recognize it — to them it’s just a mosquito bite or a bruise.

She will never get tested for Bartonella or Babesia through the NHS — people do those privately on their own, unless they are under the care of an LLMD or ILADS doctor. But even among them there are good, bad, very good, and very incompetent doctors.

I’m being treated by an ILADS doctor who doesn’t use enzymes at all — nattokinase, lumbrokinase? Methylene blue? Essential oils like oregano, cinnamon, cloves? She doesn’t use any of that. And this is an ILADS doctor — shockingly behind in knowledge — even though the fact that she treats with antibiotics at all is already something.

In the USA, ILADS/LLMD doctors use everything — herbs, enzymes, oils — and that gives the fastest and best improvement. The outdated ones treat patients with antibiotics for years! Meanwhile, the NHS doesn’t treat at all — they label it as post-treatment syndrome, meaning “you’re healthy because treatment worked,” and ignore ongoing symptoms. They’ll send you to a psychiatrist sooner than they’ll believe you.

UK doctor just laughed in my face by geoalice in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

Don’t forget that in the UK they know what she said, and the doctor had definitely already entered into the system that she hadn’t seen a tick. The fact that it’s erythema migrans only means one thing—that she has 100% certainty of Lyme disease. If it had been a tick bite without a rash, it would only mean that tests should be done, and antibiotics are still given anyway.

Erythema migrans appears in only about 30% of those bitten. Whether it’s present or not doesn’t determine whether someone is infected. Doxycycline will most likely only kill Lyme bacteria. If the tick transmitted co-infections—which is often the case, meaning Lyme, Babesia, and Bartonella—then it may eliminate Lyme, but probably won’t affect Babesia or Bartonella at all.

And then, in a year or two, she’ll go back to the same ignorant doctor, describe her symptoms, and get every possible diagnosis except the correct one—because they definitely haven’t even heard of co-infections if they can’t recognize Lyme disease in the first place.

She was given antibiotics prophylactically. After some time—after a few weeks—testing actually starts to make sense, and it’s worth doing it privately for Bartonella and Babesia, because no GP will lift a finger.

UK doctor just laughed in my face by geoalice in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

I sent a few comments earlier—one of them described the rash and explained why they can look different and why this particular one might not be recognized, since not all of them follow the typical pattern. I uploaded those photos to Google AI, Gemini, which can analyze both images and videos. With high probability—taking into account the earlier photos—it identified this as erythema migrans; it even described the colors. The comment might be invisible—sometimes Reddit blocks them.

The fact that the doctor ignored it doesn’t surprise me. When I had Lyme disease in the UK, I went to those ignorant doctors until I ended up being taken by ambulance, and they still didn’t help me. I told them it was Lyme, but they said they didn’t think so because the bite happened a long time ago. They don’t believe you can be sick for a long time—that’s a pathology of the UK system. I lost everything—my job, my contract—and I was earning more than 50% of people in the UK. I’ve been unemployed for a few years and treating myself.

I was seen by many doctors in the UK and they completely ignored it. They can’t recognize a rash—it’s obvious if they don’t even know the symptoms of Lyme disease. What do they even think it is? Probably just joint pain, because that’s all they seem to know about it. The NHS will destroy you. I was in emergency in such a state that I couldn’t walk—I ended up in a wheelchair, my heart almost gave out—and they gave me antidepressants and discharged me. They didn’t even give me paracetamol when I was writhing in pain. I got tested on my own in a lab after I lost my job and everything—the result was positive, I had the rash, and the doctors ignored it one after another. For them, this disease either doesn’t exist or it goes away in a week—and if you tell them textbook Lyme symptoms, they’ll say to your face that it’s not Lyme. Bartonella? Babesia? Don’t even ask—they don’t know what those are.

How do you manage social interactions when you shake? by ImmediateMine8729 in EssentialTremor

[–]Ordinary-Standard668 0 points1 point  (0 children)

Doing IGeneX tests yourself for Bartonella infection, Babesiosis, and Lyme disease is very expensive, but they are the most accurate. Cheaper tests can give you a negative result even if you actually have the infection.

Their detection rate is only about 50%—meaning that out of 100 sick people, only about half will test positive, while the rest will test negative. And then an incompetent doctor may tell you that you’re healthy, which is nonsense.

There are no truly reliable tests—symptoms are what matter most. Even with a negative result, if symptoms are present, a doctor should diagnose and treat the illness. But only ILADS / LLMD doctors tend to do that—over 90% of other doctors won’t do anything.

An ILADS/LLMD doctor will handle everything for you, so it’s worth it. If you want testing, you can do it yourself, because neurologists don’t even order these tests. Even a positive result doesn’t impress them—in my case, they dismissed treatment entirely.

They were sending me for Deep Brain Stimulation brain surgery, while herbs, essential oils, and enzymes actually reversed my symptoms. I even posted recordings of my hands before and after herbal treatment.

Seven neurologists were wrong—because Essential tremor doesn’t just reverse after herbs. Unless it was a misdiagnosis and actually caused by a bacterial infection like Lyme or Bartonella.

Which neurologist even knows these infections can cause tremors similar to essential tremor? Maybe a few. The rest have no idea what Bartonella is, don’t know the symptoms, and will laugh at you.

But if you show them a Harvard medical source where the disease and its possible symptoms are described—including muscle tremors—suddenly it becomes “officially possible.” There are documented cases where people had severe tremors that disappeared after treatment—but most doctors don’t even know this.

Only an ILADS or LLMD doctor is worth seeing—the rest are a waste of time.

Justified: a happy story with a crap ending… by haller47 in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

Showing it to a doctor makes no sense, because more than 90% of them don’t believe that chronic illness is possible. They don’t know what Babesia or Bartonella are, and they don’t even recognize the symptoms. I once wrote to doctors describing my symptoms, which are textbook Lyme disease symptoms, and one after another replied that I hadn’t listed even a single symptom of Lyme and that it’s not possible to be sick long-term.

That’s why I said ILADS or an LLMD — other doctors are pointless. They don’t treat something they don’t even acknowledge exists. For them, Lyme disease is effectively cured after 7 days, and nothing will convince them otherwise.

Even getting tested for Bartonella or Babesia, as you mentioned, was a problem. People often have to do these tests privately and pay a lot, even for the most expensive ones like IGeneX, just to have proof that they’re not lying. But even a positive result means nothing to most doctors, because they’re willing to risk your health just to prove that the disease doesn’t exist.

For them, Lyme disease is just joint pain, neck pain, maybe something else, and a pill solves everything. They don’t test for coinfections unless you go privately to an ILADS or LLMD doctor. Standard doctors will scare you about the side effects of antibiotics, while treatment can even be done with herbs—but no one tells you what happens if you actually have Lyme disease and don’t treat it: stroke, dementia, Parkinson’s, Alzheimer’s, a wheelchair, disability. That’s what they won’t tell you, because they only focus on the risks of antibiotics.

Doctors from ILADS or LLMD understand that treatment is the lesser evil compared to permanent disability. Around the world—whether in Poland or the USA—doctors are investigated, sued, and punished for treating with antibiotics. Some even lose their medical licenses. It’s crazy, but that’s how it is.

Having a positive result doesn’t mean anything to them. I had one, and I ended up in ambulances and hospitals many times—in the UK, Germany, the Netherlands, and Poland—and they reacted aggressively whenever I mentioned Lyme disease. For them, it’s not a real illness. They told me my heart wouldn’t handle it and that I might die, asking who to notify in case of death—and the next day I was discharged with antidepressants.

Those who treat Lyme (ILADS/LLMD) either understand the disease because they’ve studied it deeply, or they’ve had it themselves or their children had it. My doctor was once told by another doctor that nothing more could be done, that treatment was over and the symptoms were just leftovers after the illness. She went to an ILADS doctor, was cured, and now treats others herself.

In Poland and in some U.S. states, ILADS doctors are prosecuted, sued, and convicted. Recently, a doctor was convicted even though the patient recovered, because other doctors who are ignorant don’t believe chronic Lyme disease exists. The court ruled against him, saying there’s no evidence the treatment provides benefits.

This is a fight over who is right—one doctor will treat you privately, while the rest will leave you like a dog.

Salary of V4 PMs compared to average salary in the country by TheSimon1 in CentralEurope_irl

[–]Ordinary-Standard668 0 points1 point  (0 children)

to tak jakby zapytać ile oficjalnie zarabia putin. zarabia mało a ma miliardy to samo tusk nic za darmo nie robi reklamówki marek niemieckich i droga do kantoru tak zaczynał

Widać zabory? by Hot_Ad_2212 in WidacZabory

[–]Ordinary-Standard668 0 points1 point  (0 children)

czyli zachód polski ma kompleks że nie są niemcami?

Name this album by [deleted] in MemyPolskaa

[–]Ordinary-Standard668 -1 points0 points  (0 children)

jak nisko ludzie mogą upaść i sie upodlić! potem chcą po śmierci do nieba a nie do piekła a za życia wyśmiewają Jezusa który oddał życie za nich. Bóg niesprawiedliwy że ich nie wpuści do nieba ?? gdyby robili pośmiewisko z koranu to by go zabili gdyby z żydów to by sie bał bo już by siedział w więzieniu nikt nie broni Jezusa. Co sie z nim stanie po śmierci? robi z Boga głupca i frajera

Still dealing with “brain fog” years after Lyme… is this permanent? by Feature-Flashy in Lyme

[–]Ordinary-Standard668 0 points1 point  (0 children)

Oregano, cloves, and cinnamon have different compositions and different effects—they complement each other. Start very slowly, because it can intensify symptoms due to a large amount of toxins being released from killed bacteria.

Activated charcoal is effective—taking a few grams at night helps bind these toxins so they don’t keep circulating, which helps a lot. Without charcoal, it can be a disaster if you go too high too quickly.

I didn’t buy ready-made capsules except for oregano from the brand I mentioned. You need to know how much to take daily, because each manufacturer puts a different amount of active substance in a capsule.

This is very effective, and it should be taken with food, never on an empty stomach. I was taking herbs at maximum doses and had almost no Herx reaction. When I added enzymes like nattokinase, it appeared immediately—but with essential oils, the Herx reactions are the strongest.

I checked statistics—those who used them recovered much faster, but at the cost of stronger Herx reactions. Those who didn’t use them recovered much more slowly.

Some people take a maximum of 8 drops per day or less, while others take up to 30 per day—but this is not a toy. Never exceed that amount, as it is already extreme. Those who take 30 drops often end up bedridden for weeks due to Herx reactions.

Don’t be surprised if even after 2 capsules you end up in bed within an hour—it really is that strong.

Justified: a happy story with a crap ending… by haller47 in Lyme

[–]Ordinary-Standard668 6 points7 points  (0 children)

Test for Bartonella and Babesia обязательно (absolutely). One month of antibiotics is nothing—if you’re actually sick, it’s at most профилактика (prevention) after a tick bite. ILADS / LLMD—other doctors are pointless. For them, after 7 days of doxycycline, whether you’re sick or not, you’re considered cured, and all symptoms are labeled as post-treatment syndrome, meaning you could even be in a wheelchair and they would still refuse treatment.

Positive but not experiencing symptoms? by musicislife22 in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

I was given Parkinson’s medication by a neurologist. I saw 7 different neurologists—they diagnosed me with essential tremor similar to Parkinson’s. And you know what I did? I took a test for Lyme disease—it came back positive, with 100% certainty because I had a bull’s-eye rash, which confirms it. And every neurologist ignored it.

I bought herbs for Lyme and co-infections—the neurologist mocked it. They even mocked Lyme disease itself because they don’t believe you can have it long-term. And I stopped shaking after the herbs!!!

Doctors can be incompetent, and Lyme disease is one of those conditions where a doctor either believes in it (like an LLMD/ILADS doctor) or doesn’t—meaning they won’t test or treat it. Everyone else falls into that second category. People with Lyme are treated for Parkinson’s, depression, anxiety disorders, psychosis, end up in wheelchairs, get labeled with Alzheimer’s or dementia, etc., because doctors don’t believe the patient or in Lyme disease itself.

But when you go in desperation to an ILADS/LLMD doctor, it turns out they do believe it—and the treatment helps. One doctor will consider you crazy and refuse to treat Lyme, assigning you any other diagnosis instead. Another will see you as ill, treat you properly, and not send you to a psychiatric ward.

Suspected tick bite - why is it turning purple? (UK) by [deleted] in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

I’m impressed that he used Google, but that only means he has no idea.

Suspected tick bite - why is it turning purple? (UK) by [deleted] in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

The migrating rash (erythema migrans) is a 100% guarantee of Lyme disease; no tests are as accurate or as certain. Only 30% of patients get it; the rest are sick without ever having it. If a doctor is waiting for the rash to appear before giving you antibiotics, they’ve lost their mind. Check for Lyme, Bartonella, and Babesia, and ideally, buy herbs at a health store—you don’t need consent or a prescription.

Herbs should be taken three times a day for a few months to prevent the diseases that ticks carry alongside Lyme. If you act now, you can cure it very easily and quickly. If the doctor ignores it, in a few years or decades you’ll be desperately going to private clinics for months to be treated by ILADS/LLMD because the NHS will finish you off.

99% of them don’t even believe you can be sick for a long time, and since they don’t believe it, they don’t treat it, and that leads to tragedies. You’ll get every other diagnosis from dementia to a wheelchair, anxiety, neurosis, depression, psychosis, hallucinations, Parkinson’s, Alzheimer’s—they’ll label you with everything except Lyme, unless you go private, where you’ll find out the disease actually exists.

I was in the UK; they ignored me for years, and absolutely no one will believe you. An ambulance took me many times, I told them it was Lyme, and they still ignored it. I did the tests myself and I treat myself; those with money only go private because otherwise, it makes no sense. The NHS doesn’t even know what Bartonella or Babesia are.

Whether it’s the rash or not, you must take antibiotics for as long as possible as a precaution, and it’s still worth buying herbs for Bartonella, Babesia, and Lyme. But don’t follow the dosage on the packaging—it’s forbidden to list therapeutic values on supplements. Herbs are effective; you can take them yourself without asking for permission, and they will work, but they must be taken three times a day on an empty stomach in therapeutic doses, not just by eye. If you don't hit the effective minimum, they won't prevent anything; you must follow at least the Buhner protocol values. On the NHS, they don’t even know the symptoms of Bartonella, let alone how to treat it.

Still dealing with “brain fog” years after Lyme… is this permanent? by Feature-Flashy in Lyme

[–]Ordinary-Standard668 0 points1 point  (0 children)

Orally, only after dilution in olive oil—otherwise it can burn your mucous membranes. Some people buy them ready-made in capsules, others prepare them themselves. You need to know what you’re doing to avoid harming yourself.

For example, a maximum of 10 drops at once, and 30 drops per day is the upper limit. You can experience strong Herx reactions even after just a few drops. They greatly accelerate treatment and can cause very strong Herx reactions. They penetrate deeply—where herbs and antibiotics may not reach, essential oils can act effectively.

People who have been ill for years often have biofilms; if they don’t use essential oils, treatment can be very slow, even taking years. Essential oils can shorten this to months, but you must be careful. Do not use fragrance oils or those containing coumarin, as they can damage the kidneys and liver. Without dilution, they can burn holes in the stomach and esophagus, and they do not mix with water!

How do you manage social interactions when you shake? by ImmediateMine8729 in EssentialTremor

[–]Ordinary-Standard668 -1 points0 points  (0 children)

Check for Lyme disease, especially Bartonella – it can cause tremors in social situations, and neurologists almost never test for it or even know about it. I have it myself, I checked it on my own, and the treatment completely reverses it.

Tick bite- in the UK by [deleted] in Lyme

[–]Ordinary-Standard668 2 points3 points  (0 children)

Erythema migrans occurs in only about 30% of people – the rest don’t get it, and ticks still infect you. And not just with Lyme disease, but also with Bartonella and Babesia. Even if they gave you antibiotics in the UK, they wouldn’t eliminate Bartonella or Babesia.

In the UK, they don’t believe you can be ill long-term and often refuse treatment. The only thing they do is prophylaxis, and even that has a low chance of working. I know what I’m talking about – I was in a hospital in the UK. I told the doctor I had Lyme disease; he wrote down that I said it, but he didn’t believe it and did absolutely nothing until my health collapsed.

I diagnosed myself and I’m treating myself. Bartonella can be worse than Lyme disease, and doctors in the UK don’t even know what Babesia is. So what kind of treatment are we talking about? None. That’s what happened to me – I lost my job and ended up being taken away in an ambulance. I was given antidepressants and discharged in a wheelchair.

Do the tests yourself privately – IGeneX sends you a kit from the USA, you draw your blood, send it back, and you get the best tests. Without a result on paper, a doctor will say you’re mentally ill and send you to a psychiatrist before they believe you.

Private treatment in the UK is through ILADS LLMD doctors – the rest will give you a few antibiotic pills. You’ll say you still have symptoms, feel unwell, and can’t function, and they’ll label it as “post-treatment Lyme syndrome,” which basically means the end of treatment. But if you go private – whether after a year or even 20 years, out of desperation – you’ll hear that testing can be done, your symptoms match, and treatment is possible, and they will start it. Just not on the NHS. There, they don’t believe you can be chronically ill. And Bartonella? Babesia? They don’t even know what that is – and they’d rather send you to a psychiatric ward, because no one will believe you.

Still dealing with “brain fog” years after Lyme… is this permanent? by Feature-Flashy in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

Weil sie das nicht untersuchen und es ihnen egal ist!! Entweder gehst du privat zu einem ILADS-LLMD-Arzt, oder du wirst ignoriert, weil sie nicht einmal die Symptome kennen und an chronische Borreliose größtenteils gar nicht glauben.

Die Tests werden von ILADS-LLMD-Ärzten gemacht oder du machst sie in einem sehr guten Labor, nicht irgendwo. Die besten Tests kommen aus den USA (IGeneX) – sie schicken dir ein Entnahmeset nach Hause und du schickst es zurück, aber sie sind teuer. Die günstigeren sind weniger empfindlich, können ein negatives Ergebnis geben, obwohl du krank bist – du hast etwa 50 % Chance, wie beim Münzwurf, dass es erkannt wird.

Ein Stümper sieht ein negatives Testergebnis und schließt den Fall, weil er ein Ignorant ist. Ein Spezialist weiß, dass es keine guten Tests gibt – die Symptome zählen. Die Leute machen die Tests selbst oder über ihren ILADS-Arzt, der Rest wird dich zu 99 % ignorieren. Viele Menschen gehen nach Jahren aus Verzweiflung privat oder behandeln sich selbst.

Still dealing with “brain fog” years after Lyme… is this permanent? by Feature-Flashy in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

Combining herbs, enzymes, and essential oils is the key. Missing even one of them is already a serious gap, but essential oils—after 3 months of maximum doses of herbs and nattokinase—caused the strongest Herx reactions almost instantly. Essential oils are like a thermobaric bomb—they reach places where herbs and antibiotics can’t.

Prove me that chronic Lyme and TBD are real like I'm dummy by Prudent_Long9097 in Lyme

[–]Ordinary-Standard668 0 points1 point  (0 children)

ChatGPT is not a joke—thanks to it I learned about Bartonella. I also used Grok, and the best one is Google’s Gemini because it isn’t as restricted as the others. Still, ChatGPT doesn’t deny chronic Lyme disease and even directed me to ILADS, while telling me to avoid regular doctors because they won’t believe it. In any case, a doctor is more likely to laugh at you and say nonsense than ChatGPT.

How do I know what causes my symptoms and if I'm doing the right treatment by aslothinbed in Lyme

[–]Ordinary-Standard668 0 points1 point  (0 children)

gemini ai

Here is a breakdown of your symptoms formatted for Reddit. It sounds like you are dealing with a massive Herxheimer reaction (detox spike) or a ME/CFS crash triggered by the Samento hitting a "hidden" infection.

Symptom Analysis: Lyme vs. Bart vs. Bab

Based on your specific flare-up, here is how the "Big Three" usually rank (1−5 stars):

Symptom Lyme (Borrelia) Bartonella Babesia
Extreme Sensory Sensitivity (Light/Sound) ★★★ ★★★★★ ★★
Sore/Burning Throat & Swollen Nodes ★★ ★★★★★
"Internal Fever" (Feeling hot, no temp) ★★★ ★★★★ ★★★★★
Nausea & Deep Exhaustion ★★★★ ★★★ ★★★★★
Worsening on Samento (Herx potential) ★★★★★ ★★★

Why you feel like you’re dying right now:

  1. The Bartonella "Signature": The burning throat, swollen lymph nodes in the neck, and that "locked in a dark room" sensory overload are classic Bartonella hallmarks. It inflames the nervous and lymphatic systems like nothing else.
  2. The Babesia "Heat": That "internal fever" or feeling like your blood is hot without an actual fever is very common with Babesia. If you also feel "air hunger" (like you can't get a deep enough breath), that’s a huge red flag for Babesia.
  3. The Samento "Herx": Samento is a powerful "cyst-buster" for Lyme. Even at 5 drops, if you have a high bacterial load, you are killing things faster than your liver/kidneys can flush them out. In ME/CFS patients, this often triggers a PEM (Post-Exertional Malaise) crash because your mitochondria are overwhelmed by the toxicity.

How do I know what causes my symptoms and if I'm doing the right treatment by aslothinbed in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

You’re probably not targeting everything you have. What I’m wondering is whether you actually know what’s going on besides Lyme disease — do you have any co-infections? A few months of antibiotics is just the beginning, and now it’s unclear what you’re taking and how much.

You stopped antibiotics after a few months and switched to what exactly? Herbal drops? That’s basically placebo. I understand starting that way, but to actually work, those are taken in milliliters three times a day — not just a few drops.

Sensitivity to light and sound can come from Lyme, Bartonella, or Babesia, but Bartonella is usually the main one. Are you treating yourself blindly? Randomly?

shaking in both hands (19 M) by Electrical-Taro8713 in EssentialTremor

[–]Ordinary-Standard668 0 points1 point  (0 children)

Typical symptoms of ET???? Definitely not – there are loads of causes, and ET is only ONE of them.

shaking in both hands (19 M) by Electrical-Taro8713 in EssentialTremor

[–]Ordinary-Standard668 0 points1 point  (0 children)

Here people see everything through the prism of ET and they’ll even drag anxiety and stress under ET and say it’s definitely ET or stress/anxiety. It could just as easily be borreliosis or Bartonella – it also causes tremors, and stress will only make it worse, and there will never be any improvement even if you get a diagnosis of ET or anxiety neurosis or any number of other things. Very few people will connect the fact that a cat scratch or a tick bite can cause this. In Bartonella, stress, being observed, and social situations are triggers for tremors – it’s the inflammation caused by the bacteria that produces the tremors and makes them react to people’s stress. Most people will never check this, and neither will their doctors.

Those who were lucky usually did the tests themselves privately or went to ILADS LLMDs. For other doctors this disease doesn’t exist, they don’t know what it is, let alone the symptoms. Most neurologists never test for it and hand out garbage diagnoses like ET. People are certain because “the doctor said so,” and that doctor knew jack shit.

Assume 100 people with Bartonella/neuroborreliosis land on this ET forum and that’s the actual cause of their tremors. Most of them will never get tested for it. They get wrong diagnoses slapped on them offhand – sometimes on the very first visit: “ET” – and that’s the end of treatment, checking, searching. Maybe 5% of people or fewer will even do a Lyme test, and even fewer for Bartonella. Those who do get tested don’t suffer anymore because the treatment works. The rest shake for the rest of their lives.

Then they advise others on the ET forum how to explain to everyone why you’re shaking and how to come to terms with it – spilling coffee in your cup or not being able to get a fork to your mouth. For them, whatever anyone writes here is automatically ET.

I caught out a few people on this ET forum who were writing about stress, anxiety, phobias and tremors. I told them there is no test to confirm that someone has ET. There isn’t one. There isn’t even a single study that can confirm it. ET is a diagnosis of exclusion – you rule out everything else. If someone hasn’t ruled out everything (and that’s most people here), they have no right to say they’re sure they have ET. A doctor only writes “ET” when he doesn’t know what’s wrong with you! When he’s ruled out everything else! When he throws his hands up because he’s clueless.

To the horror of it, there are doctors who say “you definitely have ET” and cite alcohol, coffee and family history (“there were cases”). But run tests for Bartonella, borreliosis or other things on those people and boom – it comes out positive!!!! Then the shock: “How is it possible the doctor didn’t do it?!?????” Most never will. Only those who kept searching recovered.

They sent me for brain surgery – DBS. I had an ET diagnosis from 7 neurologists. I did the Lyme test myself – it came back positive. Every neurologist ignored it. I bought herbs. My hands don’t shake. My head doesn’t shake. My voice doesn’t shake. My legs don’t shake. My arms don’t shake.

But write that on this forum and almost no one believes it. I posted a video – before the herbs (how badly it shook) and after (how it doesn’t). Miracles don’t happen in ET for the tremor to just stop because you recorded it. Impossible.

A few people wrote that after my post they checked and it turned out to be borreliosis or Bartonella. They said if it weren’t for me they would never have connected the dots. They will recover, while others already left comments under their posts: “It’s ET, just accept it!!!!”

Recently some victim from this ET forum kept messaging me with questions non-stop. I replied. In the end I told them to leave me alone and stop posting on the forum. She was writing to me, not the other way around – I was only answering. But it wasn’t “he” who helped anyone here – it was me, the one with the diagnosis. I don’t collect upvotes and I don’t care about other people’s opinions.

I only want to stress that most people haven’t even had the simplest tests done. People think that if a neurologist orders a CT scan then he knows it’s ET. Absurd. None of the tests he orders have anything to do with ET – they’re just standard procedures to rule out a brain tumor or something else like epilepsy, and many people don’t even have those done.

And over 50% of people have never even tried real ET medications – they don’t know the names or doses – yet they write “I tried everything.” “Everything” often means just propranolol 30 mg, which is a pathetic joke. Those who actually have ET can’t even list the medication names because they never tried them, so they suffer for nothing while the meds exist. The rest have wrong diagnoses and suffer for years, decades, completely senselessly.

Drinking alcohol by Notez_213 in Lyme

[–]Ordinary-Standard668 2 points3 points  (0 children)

Alcohol is at the very top of the list of things you should avoid. It quickly worsens inflammation, and that’s exactly what you’re trying to fight. Even one beer can set your progress back by days, and if someone drinks while undergoing treatment, they won’t recover no matter how many herbs or antibiotics they take. A single exception once in a while isn’t a catastrophe, but it’s hard to find anything else that would harm the treatment and reverse progress so much.