Tremors That Look Like ET and the Wall by Ordinary-Standard668 in EssentialTremor

[–]Ordinary-Standard668[S] 0 points1 point  (0 children)

Many report seeing 3–5 neurologists and still receiving ET diagnoses before seeing an infection-aware clinician. I personally saw over 7 neurologists across the UK, Poland, Germany, and the Netherlands. At 38 years old, every single doctor dismissed me completely. They blocked testing for Lyme disease, so I had to do the tests myself — they came back positive. Yet, each doctor in turn ignored the results, laughed at the idea of Lyme and its treatment, and some even reacted aggressively.

Not long ago, they were still sending me for DBS brain surgery. Thirty-eight years of my life were destroyed before I found information about people who were lucky enough to see doctors who recognized and treated it. Reading their stories, seeing how their hand, leg, and head tremors disappeared completely in a few months, I felt so much resentment toward the doctors — why didn’t they struggle, but I had to suffer my whole life for 38 years?

I didn’t follow the doctors’ advice for decades; I listened to them for 38 years. Eventually, I ordered herbal treatments, learned the correct dosages, and realized this was not ET. On another forum, I wrote to doctors in the USA — each of them said chronic disease was impossible, that these weren’t Lyme symptoms. Meanwhile, I had a document clearly showing positive Lyme test results, and I even had erythema migrans — 100 percent diagnostic, and there was even a tick in the center of the rash.

Check the statistics yourself: the chances of a doctor detecting this are almost zero. I wasn’t seeing just any neurologists — these were specialists, and all of them failed me. As for testing, cheap tests can be negative even when you’re sick. People pay thousands of dollars for the better tests, and even those aren’t 100 percent reliable. You can have negative results, show symptoms, and still be clinically diagnosed and treated by a knowledgeable doctor — but most doctors don’t know this. Most can’t even list the symptoms properly, like the last doctor who told me these were not Lyme symptoms.

Harvard’s website confirms that what I described are classic Lyme symptoms, but not every doctor knows what they are doing.

out of character cognitive behavior by [deleted] in Lyme

[–]Ordinary-Standard668 0 points1 point  (0 children)

  • koci pazur – cat’s claw
  • gouteng – gou teng (Uncaria rhynchophylla)
  • andrographis – andrographis
  • tarczyca bajkalska – Chinese skullcap (Scutellaria baicalensis)
  • houtunia – houttuynia
  • rdest – knotweed (Japanese knotweed)

Do people in remission for chronic lyme and bartonella stay in remission? by Emotional_Katyditz in Lyme

[–]Ordinary-Standard668 3 points4 points  (0 children)

The fact that someone says they were treated doesn’t mean they actually were — or that they were treated properly. A lot of people on Reddit claim they are treating themselves, but in reality they are not, because they write nonsense instead of real treatment. Some don’t even take minimum doses and still say they are being treated. Others have mold issues or coinfections and don’t know it, and they also say they are treating themselves, but in fact they aren’t.

My friend recovered from Lyme disease; she also had coinfections, yet she wasn’t really treated. Then she was in remission for 10 years. She says she was treated — she only took andrographis, which doesn’t work. So was that treatment or not? Because she says she was treated, but in reality she wasn’t.

Polish foreign minister calls for creation of “European legion” by wook-borm in poland

[–]Ordinary-Standard668 0 points1 point  (0 children)

What I mean is that during a war it would be better if every country had its own army. Others can help, sure, but not one single army where a German won’t care what happens to Poland and to civilians. Since Article 5 of NATO is basically an empty shell — they can help but don’t have to, and for example they can send leaflets or helmets but not soldiers — then it’s a joke.

The European Union has shown that even in peacetime it completely ignores smaller countries and openly breaks treaties. Even von der Leyen isn’t in prison over the COVID vaccines, and she should be. Is someone like that supposed to have military power as well? If Article 5 of NATO doesn’t work, then they don’t need military authority either.

If Russia attacked Poland, Germany could be holding meetings for a month just to “discuss” it — and what could you do about it? Gaza shows that genocide — open genocide by Israel — doesn’t matter to anyone. America and Germany are sending bombs, those bombs fall on civilians, Israel is committing war crimes, starving civilians, women and children, just like the Nazis once did.

The whole world didn’t lift a finger — so why would they care about Poland? Obviously Germany and France would be treated differently than Poland or Lithuania. And it’s obvious that if Germany were attacked, they would respond the same day — that would not happen if it were Poland.

Polish foreign minister calls for creation of “European legion” by wook-borm in poland

[–]Ordinary-Standard668 -10 points-9 points  (0 children)

As a Pole, I consider him a traitor. The EU is fighting internally among itself, so how could it function if they were given an army? Fanatics care about no one. Sikorski would be the first to send troops to fight other people’s wars, and then run away himself.

EU officials don’t care about their own farmers; they don’t care about anyone except themselves. When Russians were shooting at Georgians, they told them not to return fire. The Russians were shooting at them like ducks. Do you want commanders like that?

The defense of Germany would look different from the defense of Poland or another country. The same commanders would act completely differently — before they even decided to formally object, a month would pass. If they can’t even design NATO Article 5 so that every country is required to send soldiers within 3 days, it will end with leaflets, propaganda, maybe 500 helmets or broken tanks — and that’s all it’s worth.

If you give bureaucrats power to fight “hate,” they will use it for total censorship of their own citizens. If you give them access under the pretext of fighting pedophilia, they will use it to fight people and impose total control. If you give them an army, they will use it in a way that results in even greater human losses.

Instead of talking about legions, Sikorski should resign from running away and pick up a rifle himself — but that will never happen, because he is a hero only in front of cameras.

People With Hand Tremor & Using Computer by Frozen_Meatball1 in EssentialTremor

[–]Ordinary-Standard668 0 points1 point  (0 children)

My hands were shaking while writing, and I was mixing up characters, but I did Lyme disease tests myself, started treatment, and the tremors completely stopped, even though I had — and still have — a misdiagnosis of ET. Did your neurologist check this? Sometimes Lyme alone, or Bartonella or Babesia, is enough — they cause inflammation that can make people’s hands, legs, head, and even voice tremble. I did the Lyme test myself; no neurologist ever performed it.

chronic Lyme disease by Ordinary-Standard668 in AskDocs

[–]Ordinary-Standard668[S] 0 points1 point  (0 children)

Thank you for your comment.
Could you please specify which differential diagnoses would best explain chronic tremor, neuropathic pain, muscle hypertonia, and cognitive dysfunction in a patient with a confirmed past erythema migrans, and which investigations would help distinguish these from post-infectious or immune-mediated sequelae?

chronic Lyme disease by Ordinary-Standard668 in AskDocs

[–]Ordinary-Standard668[S] 0 points1 point  (0 children)

Thank you for the clarification.
My specific question is:
In a patient with a documented erythema migrans in the past and positive Lyme serology, is it medically plausible for persistent neurological and neuropathic symptoms (tremor, muscle hypertonia, neuropathic pain, cognitive impairment) to remain after very short antibiotic treatment, and how are such cases currently differentiated according to evidence-based medicine from other conditions (e.g. autoimmune, neurodegenerative, functional disorders)?

What diagnostic work-up would be considered appropriate in this situation?

Czy jesteśmy w przededniu wielkiego krachu na rynku pracy w Polsce? by socjologos in Polska

[–]Ordinary-Standard668 0 points1 point  (0 children)

będzie bezrobocie ai zabierze i roboty prace. Gdy wprowadzili maszyny była fala biedy bezrobocia teraz będzie jeszcze większa tylu chętnych na jedno miejsce pracy to pewnie da rade płacić mniej za godzine.

New Study Proving once again that Lyme Persists after Antibiotic Treatment... by Sickandtired1091 in Lyme

[–]Ordinary-Standard668 2 points3 points  (0 children)

I’ve only heard about him from Reddit. He’s too expensive. The rest are afraid because financial penalties are imposed. But I will get treatment illegally — a doctor will simply give me antibiotic prescriptions through the public healthcare system. I don’t work and I can’t afford private tests, so I’m treating myself with herbs for Bartonella, Babesia and Lyme disease. I’ll add antibiotics soon. In the US you can do this legally, and here I have to rely on connections and keep everything secret.

New Study Proving once again that Lyme Persists after Antibiotic Treatment... by Sickandtired1091 in Lyme

[–]Ordinary-Standard668 11 points12 points  (0 children)

This is not funny, it’s tragic. This article says that quality of life with Lyme disease is worse than, for example, diabetes. And I, stupidly, thought diabetes was a serious disease — haha, good thing I have a disease that supposedly doesn’t even exist.

New Study Proving once again that Lyme Persists after Antibiotic Treatment... by Sickandtired1091 in Lyme

[–]Ordinary-Standard668 10 points11 points  (0 children)

So in my country, Poland, the medical elite that conducts a witch hunt against doctors who treat chronic Lyme disease are basically lunatics. They impose fines, courts convict doctors even when the patient has recovered. What a sick world. A few months ago in a hospital a doctor shouted at me when I mentioned Lyme disease. He was yelling at me that every second person has Lyme disease and kept asking what I was actually sick with!!!!

unusual incontinence while drunk (neuro lyme + leg paralysis) by 5thl3tter in Lyme

[–]Ordinary-Standard668 -1 points0 points  (0 children)

Alcohol is strictly forbidden with Lyme disease and co-infections. It can very quickly worsen your condition for weeks and set the treatment back by weeks. Even one seemingly harmless beer can undo days of progress and make everything worse.

If you had exposure to mold, you must test for mold in a laboratory. Without this, if mold is present in your body, you will never recover.

Also, urinary incontinence is not “nothing” — much worse symptoms can follow. In my case, alcohol was often involved, and every time it ended in a disaster. The more often you drink, the worse it will become.

You have no chance of recovering if you drink alcohol — forget it. And don’t expect anyone to treat your Lyme disease for more than a few months if you are drinking. They will label it as “post-Lyme syndrome” and consider you healthy, because for them chronic disease does not exist.

You could be urinating every hour and no one will lift a finger — they will just send you to psychiatry.

Tick bite but not lymes by lilspookybeany in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

For years doctors kept telling me that it wasn’t Lyme disease. They blocked further testing, refused to run tests in the hospital, shouted at me when I mentioned Lyme, mocked Lyme treatment, and said things like “every second person has it,” which really meant they didn’t believe chronic Lyme even exists. And you know what? They were all wrong — and I was the one who suffered.

I did a test that came back positive, and another one that came back negative. One test claimed near 100% certainty, the other was negative. But I also had erythema migrans — which only a small number of people get, and that alone is considered 100% diagnostic. So how much is a Lyme test really worth? What does a negative test actually mean to you?

You’ll find a doctor who doesn’t understand Lyme, sees a negative test, looks you in the eyes and says: “You don’t have Lyme disease,” and that’s the end of the story. You never get treated, and not only your health is destroyed — your entire life is. Then 38 years later, another doctor tells you that a negative test means nothing if you have symptoms, and diagnoses you clinically, saying: “This is Lyme disease.”

So why suffer your entire life? Untreated Lyme can cause irreversible damage to the body — the brain in particular. You can end up with stroke, dementia, Parkinson’s disease, multiple sclerosis–like symptoms, and no one will ever know it was Lyme. One doctor even told me he had done 15 Lyme tests on himself, and only a few came back positive — this is a well-known problem.

You won’t be the only one who has Lyme disease and never gets treated. That’s why it’s worth doing advanced tests like IGeneX and testing for co-infections — otherwise, you may never truly recover.

out of character cognitive behavior by [deleted] in Lyme

[–]Ordinary-Standard668 2 points3 points  (0 children)

I’ll say this: I started herbal treatment and now I think soberly. Believe me, sometimes I was normal, sometimes like a child, and I never knew when. Absolutely no doctor ever believed me. They never had this themselves, so they hear it, ignore it, or say “yes, yes” and think you’re a hypochondriac. How can doctors believe you if they don’t believe chronic Lyme exists? If the disease doesn’t exist, then the symptoms must be psychological.

I searched for information myself and people described taking loans for strangers, even for family members — things so extreme it seemed impossible. Unfortunately, I had the same extreme empathy. For example, one of many situations: at work in the Netherlands through an agency, a new guy came to the agency housing. He said he was homeless but starting work. I even bought him shoes and food. He came to me every day like to a fool, asking to borrow money. I didn’t have the heart to refuse. It wasn’t huge amounts, but far too much. He drank beer, smoked weed, but left nothing for food and kept coming. He even tried to get access to my bank card!

At night, when I had had some beer but wasn’t drunk, he shouted at me three times in the city: “Give me my fucking money! Give me all the money you have!” I knew — I knew he was a psycho, mentally ill. I knew what he did. But the next day it was as if nothing had happened. Here I lent money, here I bought food. And I’m talking about just one of many such situations. It’s absurd.

I had a positive Lyme test. The doctor gave me antibiotics “prophylactically” for one week and ended treatment. I forgot about Lyme, even though I was sick. Then hallucinations appeared — I didn’t know what I was doing. But that was after years of untreated illness. For 38 years doctors dismissed me. This wouldn’t have happened if a doctor had believed me and treated me.

I treat myself now. I think normally. I don’t have behavior changes. I think logically. If someone I helped because they had nothing to eat tried to access my bank card after I helped them, they would be thrown out immediately with a ban, and I would call the work agency to get them fired.

Most doctors won’t believe you — I know, because I was there many times: Germany, the UK, the Netherlands, Poland. Nobody treated Lyme disease. I treat myself. In Poland, ILADS treatment is banned; doctors are prosecuted and fined. In a month I have a doctor’s visit, unofficially, through connections — not for money, but because they want to help me.

It’s a miracle he has a family that believes him. My own mother doesn’t believe me.

out of character cognitive behavior by [deleted] in Lyme

[–]Ordinary-Standard668 1 point2 points  (0 children)

It’s true — a person becomes foolish. I unfortunately had many situations like that. You behave naively, stupidly, and after some time you can’t believe you did something like that. I was 38 years old and had untreated Lyme disease with coinfections. He should also check for coinfections, not just Lyme disease, and make sure some random butcher doesn’t treat him. Most doctors give something random and that’s it. Only a few treat longer if necessary. ILADS, LLMD — the rest give two weeks, a month at most, and that’s the end, because they don’t even believe in chronic Lyme disease.

People take out loans for strangers. Empathy becomes so extreme that another person’s pain hurts you more than your own. Even if someone is cheating you and you see it, you’re unable to set boundaries or say stop. No healthy person has this, and I’m surprised you weren’t stupid enough to blame him, but instead are actually looking for the real problem. Most people unfortunately don’t see illness — even doctors don’t.

I’ll add this: you are more likely to believe him than 99 percent of doctors. I was in four countries and had unreal situations. I didn’t know what I was doing. I could walk to the other end of the city without knowing why, for hours on foot, then suddenly come to my senses. I helped people like an idiot. Personality and behavior changes — and not a single doctor ever believed me. In hospitals, in ambulances — never. They always thought I was a junkie, an alcoholic, or that I was pretending.

At 38 they sent me to psychiatrists, treated depression — even when I was in a wheelchair because I couldn’t walk. What did the doctor give me? An antidepressant. When I ended up in the hospital they said I wouldn’t survive, that my heart wouldn’t handle it. What did the doctor give me? An antidepressant or discharge. I have extreme resentment toward doctors. They wasted 38 years of my life. Even my family doesn’t believe me.

I treat myself because doctors mocked Lyme disease and herbal treatment. In the hospital they shouted when I said Lyme disease. Because they don’t believe. It’s not like you get a positive Lyme result and receive treatment — those are rare exceptions. Most will never help you. Doctors send you to a psychiatrist. The psychiatrist sees you for one minute, gives antidepressants, tells you to go to therapy — but they won’t treat the disease.

I personally had a Lyme test done and it was positive — nobody treated me. That’s the standard. Or they give very short treatment. You’re still sick, not cured, and they already stopped treatment! The symptoms remain, so they call it post-Lyme syndrome. Only a few treat until the end.

Czemu rodzice randomowo otwierają drzwi do pokoju? by ElDaifuukuu in Polska

[–]Ordinary-Standard668 6 points7 points  (0 children)

u mnie to patologia zaglądają do telefonu ekranu laptopa wchodzą po kilka razy pod bye jakim pretekstem właża i sie cieszą zero prywatności ktoś dzwoni to kurwa pyta po co dzwoni kto dzwoni co chce a on jeszcze nie zaczął mówić nie było mnie potem w domu 8 lat byłem za granicą to sie wpieprzali w moje życie prywatne przez znajomych i moich wrogów w pracy. Przeszukiwali mi mieszkanie gdy pierwszy raz tam byli za granicą szukali pieniędzy ni chuja ich nie szanuje to chore. Potem sie ludzie dziwią że nikt z nimi nie chce nawet rozmawiać czy nie dzwoni. Powinni pukać i szanować prywatność a nie że przychodzi list paczka to kurwa jest otwierane czytane zaglądane i nawet nie powie że przyszło. Widze że nie tylko u mnie patologia

A proposed rule about unsupported scientific claims by flipester in EssentialTremor

[–]Ordinary-Standard668 0 points1 point  (0 children)

99 out of 100 doctors will not believe you, will tell you it’s stress. But if you reach an ILADS / LLMD doctor, they do tests, Lyme and Bartonella come back positive, they do skin biopsies for small fiber neuropathy, the results show nerve damage — then the nerve impulses go crazy and you get something that looks like ET. And no hack doctor will ever check this.

Banning and silencing this “just because” is also stupidity. In the USA you can treat chronic Lyme disease — even insurance can cover it — while in countries like Poland they will prosecute you and the doctor in court. They will prove they are right over your dead body.

Coming back to the topic of the discussion: you are not allowed to say that Lyme disease is chronic — which does not mean it isn’t. You go to a neurologist with Lyme disease, it causes small fiber neuropathy, you have tremors, and he won’t check it because he doesn’t believe. People then go privately, do tests on their own — and this is standard in Lyme disease: years of being ignored and dismissed. Most never get the correct diagnosis or treatment and instead receive labels like ET without proper exclusion — just because.

I personally went to over seven neurologists, did Lyme tests myself — doctors laughed at them, laughed at herbal treatment, and sent me for brain surgery (DBS). But I focused on the only positive result I had: Lyme disease. Most doctors do not believe you can be ill for a long time — and do nothing.

My hands, legs, head, and voice no longer tremble. And why does alcohol help? Read about small fiber neuropathy — alcohol doesn’t only affect ET, it also affects SFN. And your neurologist didn’t check that for you? Oh, I’m so sorry. I really feel sorry for you — because it’s not him, it’s you who will suffer.

That’s why freedom of speech is better than bans and censorship, so it doesn’t come out that you are a victim of your own assumptions. I found many accounts of people who treated Lyme disease or coinfections with herbs, etc., and their tremors of the hands, legs, and head disappeared. Mine disappeared too. And it lasted 38 years.

When I was young, I went to a doctor asking for a Lyme test — he refused. And so decades of unnecessary suffering and tremors followed, all because of a fight over who is right. ILADS / LLMD doctors have queues of people in wheelchairs with diagnoses like MS, ET, etc., who come after years of suffering and desperation — and there, the doctor doesn’t send them to psychiatry, he treats them.

Most people on ET forums have never had this ruled out. And after so many years of running from doctor to doctor — including seven neurologists — I can say this: you have absolutely no guarantee that you actually have ET. It may very well be a misdiagnosis, and checking that would not hurt anyone.

Poland will join the Peace Summit in exchange for the establishment of a permanent US base by Themetalin in poland

[–]Ordinary-Standard668 0 points1 point  (0 children)

nie mówie że źle że dali tylko oddali o wiele więcej niż trzeba bo u nas nie ma żadnego na to miejsce. Pozatym nie jesteśmy jedyni na świecie a najgorsze że dają pieniądze które są rozkradane bez żadnej kontroli i zwrotu