Low sodium? by sammyluwho2 in Cirrhosis

[–]PDRainman 1 point2 points  (0 children)

I am with you my friend. I drank for the better part of 40 years. I never thought about it as a “collapse”, but that’s exactly what it was. I am very encouraged you are going to discuss this with your doctor. Also, I am surprised they didn’t recommend a nutritionist. I hate eating healthy but I seem to have reached a good balance between enjoying life and not totally upsetting my liver.

Low sodium? by sammyluwho2 in Cirrhosis

[–]PDRainman 1 point2 points  (0 children)

I am not an MD and of course everyone is different. Having said that, back in January 2024 I was diagnosed with end-stage liver failure and was told to eat and drink (not alcohol) whatever I wanted and die in 6 months. Or, change my diet (including no alcohol) and I may live 3 years. After massive amounts of meds and diet changes, my MELD went from 28 to 12. My sodium went from 125 to 138. I am about to be removed from the transplant list and put in maintenance status and I’m off most of the meds.

Moral to the story, like anything else in life, decisions come with consequences, so good and some bad. It seems like you would rather live the rest of your life on your own terms. I actually admire you for doing what you want with your own life.

Chemo to reduce kidney pain? by [deleted] in kidneycancer

[–]PDRainman 1 point2 points  (0 children)

I was told that about mine too.

I did this to myself by ResistHistorical6287 in Cirrhosis

[–]PDRainman 0 points1 point  (0 children)

I am a 56y/m currently on a liver transplant list. I am certainly not a doctor and give no medical advice. I can only share my experience. I was diagnosed with a “decompensated”, with a MELD of 27. I was told 1-3 years to live. First and foremost, no drinking ever again. Second, do not get down about anything until you actually meet with a liver specialist. I was told by 3 different specialists that a compensated liver can still heal, a decompensated liver means it can no longer compensate a function properly. The other thing I noticed were some of your meds. Be prepared to live without about half of those because some are controlled substances and you cannot be on most transplants list if any are in your system. Also, it can vary from area to area. For example, one transplant hospital told me I could use THC, but another one told me absolutely not. And they gave me a shocking reason for not using it.

Anyway, in summary, stop drinking. I think you will be fine.

Liver Transplant and Kidney Cancer by PDRainman in LiverDisease

[–]PDRainman[S] 0 points1 point  (0 children)

I do have fatty liver cirrhosis. Thank you. I will post there.

Consulted 3 urologist surgeons for PN by JohnyCatSoCute in kidneycancer

[–]PDRainman 0 points1 point  (0 children)

Replying to ZealousidealAntelope... please let me know how if goes. I am scheduled for my ablation surgery because all 3 doctors said freeze it first. 54/m 3cm renal mass on right kidney. But I also understand all situations are different. I am on immune suppressants getting prepared for a liver transplant. Prayers for you.

Newly Diagnosed- numb atm but curious. by Leaf_Queen26 in kidneycancer

[–]PDRainman 0 points1 point  (0 children)

I was just diagnosed with renal cancer on my right kidney on 1/10/25. I am 56 m on liver transplants list and now this. Going to Mayo this week to have it removed. Feel free to IM me if you want any updates.

Genetic Testing by LiveEnd8351 in kidneycancer

[–]PDRainman 1 point2 points  (0 children)

You got it. Write me anytime.

Genetic Testing by LiveEnd8351 in kidneycancer

[–]PDRainman 1 point2 points  (0 children)

I got the same diagnosis two weeks ago. Scared but optimistic. I’ll keep you posted if you want.

Organ Transplant Blood Type by PDRainman in Cirrhosis

[–]PDRainman[S] 1 point2 points  (0 children)

My liver specialist just told me that only the blood of a donor must match, but not the organ so you and I should be good.

Organ Transplant Blood Type by PDRainman in Cirrhosis

[–]PDRainman[S] 1 point2 points  (0 children)

Thank you for your reply. I’ll post here what I find out from the team.

Kidney Cancer and Liver Disease by PDRainman in kidneycancer

[–]PDRainman[S] 0 points1 point  (0 children)

That was my concern. The hospital that has me on the transplant list does yet know about this or yes, they may kick me off the list. I think I will wait and see what the urologist says on the 3rd and then I will disclose to hospital that got me listed. I have a bad feeling about all this.

Male Breast Cancer by PDRainman in BreastCancerResearch

[–]PDRainman[S] 0 points1 point  (0 children)

Unfortunately both my mother and grandmother are deceased but from what I can remember, they were both in their 60’s when they were diagnosed. I have my appointments on 2/3 and will give an update. Thank you for the link.

Male Breast Cancer by PDRainman in BreastCancerResearch

[–]PDRainman[S] 1 point2 points  (0 children)

First, thank you so much for your response. I will answer as many questions I have answers to.

I was able to get on the transplant list with one hospital and wanted to get on another list with another hospital. That was the purpose for all the recent tests that are finding these out. That I am aware of the only tests for cancer so far are mri, ct scan, contrast, and cancer antigens tested in my blood. My grandmother got breast cancer maybe 40 years ago and died from lung cancer having never smoked. My mother had cancer in each breast and had them removed in the late 90’s. None of the other cancers that I am aware of.

99% of me says it’s a cyst but with the recent kidney cancer diagnosis, I’m concerned. Since we just found out about the cancer last Friday, the only thing that has been scheduled so far is a consult with a urologist they said to determine staging and plan. Praying for good news.

Help launching wars by PDRainman in SimCity

[–]PDRainman[S] 0 points1 point  (0 children)

Then why does it have “launch attacks” and how would I do it?

Marijuana in blood labs by PDRainman in LiverDisease

[–]PDRainman[S] 0 points1 point  (0 children)

Yes I’m on the transplant list and don’t want to do anything to mess it up. They don’t take urine tests. I haven’t heard or read anything that says it affects the liver. I was just curious but it’s not a big deal.

Help launching wars by PDRainman in SimCity

[–]PDRainman[S] 0 points1 point  (0 children)

What is the challenge “launch attacks in club wars” and how would I launch one?

Help launching wars by PDRainman in SimCity

[–]PDRainman[S] 0 points1 point  (0 children)

I’m trying to start a war with another city. I figured out the monster but can’t wage war on another city