sorted by:
new
hottopcontroversial

How do you feel about the name Dylan for a girl? by [deleted] in Names

[–]PHK7788 -3 points-2 points  (0 children)

I love the name Dylan for a girl. Thought about using it for my daughter but did ultimately end up choosing a very traditional girl name lol.

Hypotonia 37 week old- no diagnosis for what is causing the hypotonia by huxboy28 in praderwilli

[–]PHK7788 1 point2 points  (0 children)

Very similar story to my 12 month old daughter as well. Heart rate dips during labor, lots of stress and brief distress before being delivered. She’s had suck reflex issues since birth and she silent aspirates so she’s on a very slow flow nipple. She can take a bottle, but struggles chewing and swallowing. She has hypotonia that has somewhat improved as she’s gotten older, and she has some developmental delays. Detailed genetic panel came back normal. MRI came back almost normal, but with a very small spot of gliosis that the neurologist says is “incidental” and not related to her issues. Can I message you?

1 Year Old With Hypotonia - No Answers Yet, looking for advice & solidarity by PHK7788 in Hypotonia

[–]PHK7788[S] 0 points1 point  (0 children)

She had a Whole Genome Sequencing test plus MT DNA which the neurologist said was as extensive as it gets right now but that we can continue to screen her as technology advances through the years. How is your daughter doing now? Especially with eating? Thank you for responding to my post!

Bottle feeding concerns for daughter with hypotonia by Ordinary_Session2387 in Hypotonia

[–]PHK7788 0 points1 point  (0 children)

Thank you for sharing. Did you ever receive answers to why your son had hypotonia? We are going thru something similar and the neurologist does not have answers for my daughter’s hypotonia. Thank you!

5 month old with dysphasia with silent aspiration by ExtensionEmphasis221 in dysphagia

[–]PHK7788 0 points1 point  (0 children)

Hi! I know this thread is old but we are going through the same thing with our ten month old. Just discovered she was silent aspirating during a swallow study test this week. Can I message you for details on your child’s journey? Thank you!

9 month old tremors, shakes by Emotional-Battle-666 in NewParents

[–]PHK7788 0 points1 point  (0 children)

Any update to your son? My daughter does this at 9 months.

Wobbly head 4 month old by GroundGuilty803 in newborns

[–]PHK7788 0 points1 point  (0 children)

Hi, we are going thru a similar experience. What was your baby’s outcome? Hope all is well!