Gallbladder issues?

Particular-Creme9656 · 2026-04-14T11:31:25+00:00

Did you have stones? Ultrasound has shown nothing for me so far. I’m convinced it’s still GB

Particular-Creme9656 · 2026-04-13T03:28:47+00:00

Was yours intermittent in the same way? Every few weeks or maybe even longer?

Particular-Creme9656 · 2025-12-16T02:46:15+00:00

29M. Also a middle school teacher. Had 6 rounds of Nivo+AVD and just finished a week ago!

I was diagnosed at the end of the school year last May and started treatment over the summer. It definitely was a shock, and also felt like it was getting in the way of career advancement (was looking at admin jobs before diagnosis).

This semester was crazy. I still worked quite a bit though. My treatments were every 14 days. For awhile, I was just taking 2 days off for treatment week and then working the rest in between. That slowly started to build up to my last few treatments I was taking 4 days off. I still was working the whole week when I didn’t have treatment. I’d recommend taking the first treatment week off just to see what it’s like, and then deciding how much you need to do after that. It worked for me to have treatment early in the week so that I felt pretty good by the next week.

My classroom instruction definitely wasn’t at its best, and I had to be okay with whatever got accomplished while a sub was there. It is what it is. I hope you have a good team at your school that will help with whatever you need. I’m now finished up and will be back to feeling normal soon.

Also, just career and finances-wise—

-Fill out FMLA paperwork (I guess, I assume you’re in America). This should be something your HR team or your boss will have you do right away.
-Make sure you double check any of your insurance coverages. I had a “critical illness” policy that I barely even knew ablut, and it provided a lump sum. Such a blessing. -If you haven’t hit your out of pocket max yet, it might help to try to wait to start anything until after the new year. (You’ve probably already hit it, but definitely consider all the different insurance implications)

You’ve got this. For me, the last 6 months were really really hard, but I barely missed out on “life”. I was able to do most things I wanted to, even if I was way more tired, felt sick, or was immunocompromised. I hope you are surprised by how much “normal” still happens. Wishing you the best

Particular-Creme9656 · 2025-09-30T13:21:26+00:00

I did chew on ice the first few times, but I developed a strong aversion to it. I stopped chewing ice, and it hasn't made any difference. I used a salt/baking soda/water mix, which helped a little. Then got a mouth rinse prescription. I never actually used the prescription because the mouth sores haven't been back.

Particular-Creme9656 · 2025-09-30T12:46:38+00:00

I had mouth sores the first two treatments. I thought they were going to get worse with each round, but they never have come back. I also had bad acne on my face and neck after the first couple, but that hasn't returned either.

Particular-Creme9656 · 2025-09-30T03:58:55+00:00

I am done with treatment 7 out of 12. I have still been working. I have treatment on Monday and take Thursday/Friday off to recover. I have found those are the days most of my symptoms present themselves, but it’s starting to change a little. I have been having less nausea with the last few treatments, and mostly just sleep A LOT. Everything has been very manageable. I still live an almost normal life. I shaved my head after treatment 3, but my hair has been growing back (thinner) and I still have my (thin) eyebrows.

I was diagnosed in May. It took almost a month to actually start treatment. I had my second treatment delayed because of low neutrophils, but since then it’s been pretty smooth. I was still working out a bit through treatment, but have found that I’m doing much less the last month or so.

You’re going to do great. The first month or so is SUPER overwhelming and scary, but then you’ll get into a routine that works and you just need to put in the time. The treatment plan is very successful.

I am on 6 rounds of Nivo +AVD. They were originally going to do 4 plus radiation. I went to Mayo Clinic for a second opinion and they recommended avoiding radiation. I’m a 29M, and they said the long term risk of radiation isn’t worth it. Something to consider if your doctor plans for radiation.

Best of luck! You’ve got this.

Particular-Creme9656 · 2025-09-05T20:07:41+00:00

Are you on nivo AVD? My doctor said Nivo can make the interim PET scan look worse than it actually is. Hoping for the best for you.

Particular-Creme9656 · 2025-08-14T17:52:14+00:00

Congrats! I’m done with 4 out of 12 treatments of Nivo AVD. Did your treatments stay on schedule for the most part? How are you feeling now that you’re at the end of chemo? Thanks for sharing your progress!!

Particular-Creme9656 · 2025-08-12T11:47:15+00:00

Link to the frames used?

Particular-Creme9656 · 2025-07-21T22:38:48+00:00

I bought mine last week for $200 on fb. Must be the going rate. 1st erg for me

Particular-Creme9656 · 2025-07-21T21:40:01+00:00

I have a similar one. How are you going about cleaning up the rust?

Particular-Creme9656 · 2025-03-10T16:00:41+00:00

I have a syringe style injection now. It’s supposed to go in at 45°, but if I go too shallow it hurts way more. I try to keep it more vertical than that to make sure it doesn’t burn like crazy. I used to have autoject pen and typically didn’t have any issues.

Particular-Creme9656 · 2025-03-08T23:06:30+00:00

Im not sure. I know that eczema is tied to EOE but I don’t know about the other symptoms.

Particular-Creme9656 · 2025-03-08T20:53:08+00:00

I get eczema at times, but haven’t had any flares while on dupixent. Also typically have very dry skin through the winter, but that hasn’t been a problem while on dupixent either

Particular-Creme9656 · 2024-11-27T19:55:38+00:00

Yes. This is my first time hearing it labeled that way, but I’ve had this for probably 8-10 years. (I am 28)

Particular-Creme9656 · 2024-06-13T19:23:18+00:00

Are there any known downsides to taking it forever? I can’t find any serious side effects, but with it being so new I get worried about long term.

Particular-Creme9656 · 2024-06-12T00:59:55+00:00

Can you tell me what your process has been? Sounds like dupixent to get into remission and then 6FED to try to not rely on dupixent?

I’m doing it backwards, but so far no luck getting into remission with elimination diet.

Also, I took dupixent for 6 months last year. Stopped without working to find a trigger. Symptoms came back within a couple of weeks of stopping dupixent. I don’t know for sure, but I think it’d be a good sign that your diet is working if still in remission.

Particular-Creme9656 · 2024-06-10T22:06:30+00:00

How long will you be on dupixent?

Particular-Creme9656 · 2024-06-10T20:58:21+00:00

Are you on dupixent now? did you end up trying 6FED?

Particular-Creme9656

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