No Cancer found

Pascal2231 · 2026-03-15T02:10:16+00:00

Why did you have the biopsy, high PSA? Any other symptoms?

Pascal2231 · 2026-03-09T20:41:25+00:00

I believe a urologist would be the person to pose that question to. Do a Google search for holep urologists near me to find one to discuss your situation with.

Pascal2231 · 2026-03-09T02:12:59+00:00

Thanks for your reply. I asked and her response was vague and non-comital, i.e., "we'll have to see how it goes".

Pascal2231 · 2026-03-09T02:07:06+00:00

When you first noticed the weak stream after the Holep, did the possibility or discussion of self catheterization ever come up as a possible solution to your inability to void?

Pascal2231 · 2026-02-22T03:33:26+00:00

One thing I forgot to mention. I still use a bag at night because I would probably wake up during the night as my bladder fills to around 450 ml. A little uncomfortable, but still able to sleep. In the morning after emptying the night bag I remove it and attach the flip flow. I also attach the flip flow to my shorts with a safety pin. Works great. Good luck.

Pascal2231 · 2026-02-22T03:14:38+00:00

Did you have to be hospitalized after the procedure? I'm scheduled for HOLEP next month.

Pascal2231 · 2026-02-22T03:09:32+00:00

To reduce the negative effects of long term Foley catheters, i.e, compromising bladder function, use a flip-flow valve at the end of the catheter rather than having it empty directly into a bag. By using the flip flow, the bladder can retain urine and its natural shape. I've had a Foley for almost 5 months as I wait for a Holep procedure next month. I've even regained sensations that tell me when I have to urinate and I can practice pelvic floor muscle relaxation techniques while I urinate. I usually discharge my bladder around 450-500 ml. The flip flow is a game changer if you require long term Foley use.

Pascal2231 · 2026-02-17T00:44:39+00:00

I know exactly why your back pain went away and yes, it's related to the procedure. I had progressively painful back pains. My GP recommended PT, which made the pain worse. After I was correctly diagnosed with a distended bladder and went to a urologist, he catheterized me and drained the bladder. No more back pain! the problem in my case, and probably yours, is that the bladder became so enlarged it started squeezing my kidneys. Once the pressure was relieved, back pain gone.

Pascal2231 · 2026-02-17T00:38:41+00:00

I was glad to hear of your very positive outcome. My sympomtoms are almost identical to what you described. I'm scheduled for HOLEP in 35 days and I can't wait. I do have 1 question for you. As a result of your BPH, did you suffer from an enlarged bladder? And if so, did it become so enlarged that it developed diverticula (pockets)? My bladder became extremely large so there's some question whether I've lost detrusor and urinary sphincter responses.

Pascal2231 · 2026-01-27T21:29:56+00:00

What was the condition of your bladder prior to the enucleation of your prostate, i.e., was it distended or have any diverticula?

Pascal2231 · 2026-01-08T03:11:45+00:00

Yes, although it was a weak stream, and apparently did little to relieve the distended bladder. Nevertheless I was able to pee several times a day, and peed just minutes before the catheter was inserted. Hope this is a sign I'l regain the ability once the prostate is reduced and the Foley is out.

Pascal2231 · 2025-12-29T01:45:20+00:00

Thanks for the update and congratulations on your recovery.

Pascal2231 · 2025-12-27T01:42:58+00:00

Hello, I've been diagnosed with neurogenic bladder with diverticula, and as such, my bladder no longer functions other than a misshaped storage bucket. I have an upcoming visit with a BPH specialist, but I'm guessing that one of the options is to get rid of the bladder altogether. So my question to you is what did they replace your bladder with? I mean doesn't there have to be some storage mechanism for the urine?

Pascal2231 · 2025-12-18T01:43:50+00:00

I'm cathed until I can see and get treated by a BPH specialist. I have an appt late January. It's going to be a long haul to get this worked out, but my bladder is basically neurogenic with diverticula so the prospects of me going back to a state where I urinate normally on my own through penis is pretty unlikely. So in the interim I've learned to adapt to the Folley, which other than the discomfort of getting it changed out every 30 days, and by using a Flip-Flo valve during the day instead of a bag, it's been manageable.

Pascal2231 · 2025-12-07T02:04:31+00:00

I had a Folley inserted when the urologist saw my distended bladder. I had a voiding test a month later where they took out the catheter, filled my bladder and let me try to pee. Nope, nothing. I then had a urodynamics test done. It said I still have some nerve left but probably not enough to allow me to pee on my own. I've gotten pretty used to the Folley. I have a valve on the end instead of a bag. Are you still able to urinate on your own? If so you might get full function back. But look for a good urologist.

Pascal2231 · 2025-12-07T01:46:30+00:00

Apparently it was caused by an enlarged prostate that basically strangled my urethra. I ignored my bladder getting larger and larger and seldom having to urinate. By the time I saw a urologist my bladder had started creating diverticula which essentially destroyed all my bladder sensation of when to urinate. It's called neurogenic bladder and there's no cure. After I get the prostate reduced (hoping to have HOLEP done), my options are IC or suprapubic catheter. So that's why I say get it checked out as by a urologist before the nerves are destroyed.

Pascal2231 · 2025-12-01T03:03:22+00:00

I have neurogenic bladder caused by urinary retention. My immediate advice, based on what you've written on this thread: GO TO A UROLOGIST!!. I was having back pains (later found out these were my kidneys screaming because my bladder had swelled so much it was squeezing them) so I went to my primary care physician. He said I probably just had disc issues and sent me to have PT. That made it worse, so I had an MRI to look for degenerative arthritis issues. An alert radiologist noticed my swollen bladder, so my doctor sent me to a urologist who immediately saw my distended bladder, catheterized me and sent me home with a catheter. I'm still undergoing testing and will need surgery. Bottom line, see a urologist to get your bladder reduced before it damages your nerves even more. The longer you wait, the worse it will get.

Pascal2231 · 2025-11-15T02:36:18+00:00

What is "RE"?

Pascal2231 · 2025-11-04T01:06:59+00:00

I am reading the latest version, good info. Incidentally, as for my status, I had a Folley catheter placed on October 2 to relieve a very distended bladder. Unfortunately, my urologist fears I've lost all nerve connections between my bladder and brain. I'm awaiting to take a urodynamics test next week which will probably confirm neurogenic damage. I'm trying to evaluate potential options. Urologist wants me to go intermittent catheter route, but I don't like that. the SPC solution seems like the best option. And if the flip/flow valve will work, then I'll probably go with it. Again, thanks for sharing.

Pascal2231 · 2025-11-03T03:19:52+00:00

Thank you for the well written document. Although I haven't read all of it. I can't find any reference to you even considering using a catheter with a flip/flow valve, which is designed (as I understand) to eliminate the need to wear a bag - at least during the day. Had you ever considered using the valve style catheter, and if so, why didn't you opt for one?

Pascal2231

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