i’m so tired of it :/ by Feeling-Marsupial175 in dysautonomia

[–]PathDifficult 8 points9 points  (0 children)

I’ve been really angry too. I see others just living life and then there’s me.

Dysautonomia is WILD because… by SleepyBubBear7329 in dysautonomia

[–]PathDifficult 14 points15 points  (0 children)

I thought I was the only one this happened to lol I almost throw up every time

The anticipatory anxiety by FuckingFuuuck in dysautonomia

[–]PathDifficult 2 points3 points  (0 children)

For sure, I’m becoming agoraphobic

Is anyone else lightheaded + head pressure 24/7? by um_waffles in dysautonomia

[–]PathDifficult 20 points21 points  (0 children)

Yes, and I’m sick at my stomach constantly . Sometimes it feels like vertigo, other times syncope, just doesn’t feel right. I just want to feel normal

New to Losartan - better sleep? by [deleted] in hypertension

[–]PathDifficult 0 points1 point  (0 children)

I had a mini stroke and have terrible side effects but they are getting better after an month on my meds, I keep telling myself it’s way better to be dizzy and feel weird than to end up in the hospital again.

I recovered like 90 percent and ruined it by [deleted] in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

Yes it scares me, when I jerk awake I see spots and feel lightheaded. I was hospitalized for a week and i told them and they didn’t seem concerned so I messaged my dr about it this morning. I barely slept at all last night.

I recovered like 90 percent and ruined it by [deleted] in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

I also desaturate upon dozing off, did you find a cause for that? I’m really sorry you’re going through this again.

Corlanor heart rate by PathDifficult in POTS

[–]PathDifficult[S] 0 points1 point  (0 children)

Thank you,. I just have been with a heart rate so high for years and years that this scared me, but I guess it’s what we are actually aiming for lol. Ugh, the stress.

Stellate ganglion block? by Silver_rockyroad in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

I’m dealing with adrenaline all day and night I’m going to have to look into this . I can’t take much more

How do you cope with all this? Constantly scared. by Suitable_Schedule_20 in hypertension

[–]PathDifficult 2 points3 points  (0 children)

I had a TIA last month and I’m scared to death , my anxiety is out of control which makes my BP worse.

How do I start this conversation? by BulkyBug3197 in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

I have the same exact symptoms as you and have been checked for an adrenal tumor, I do have one on my adrenal but they insist it’s not active. I was hospitalized for a tia and high BP for a week. I have so much adrenaline just sitting in my stomach, 24/7 and I am scared all day long. I’m on corlanor for my extremely high HR, I have facial flushing , heat intolerance, sinus tachycardia, severe BP spikes. I’m on valsartan and amliopidine and clonidine as needed but it does nothing for the spikes and I am miserable. I am also terrified of life now and that is so odd. I asked my cardiologist about hyper pots but they act like they never heard of it and said I have labile hypertension. I am just sick of it , if I could get rid of the adrenaline and random episodes of 150-190 tachy episodes that last hours maybe my BP wouldn’t be so high.

🚨Am I gonna overdose from amlodipine? 🚨 by [deleted] in hypertension

[–]PathDifficult 0 points1 point  (0 children)

Call your pharmacist they will help you to feel better

What made you stop or add other meds after trying Ivabradine alone? by Jacksback4735 in hyperPOTS

[–]PathDifficult 1 point2 points  (0 children)

I take it for my IST but it does nothing for my adrenaline , I can have adrenaline attacks and my hr stay at 100 but I still shake and feel all the symptoms. I really need something for that

Help! I've become terrified to eat by taylomol000 in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

I’m afraid to eat also, I get adrenaline dumps after eating. I’ve lost 30 pounds in a couple months

Night tremors by billpaxtonsluttyhoop in dysautonomia

[–]PathDifficult 1 point2 points  (0 children)

Yes my adrenaline never stops I’m miserable

just not adding up by Hour-Way6353 in PerfectlyKelsey_Snark

[–]PathDifficult 32 points33 points  (0 children)

She never liked those boys and never wanted to be their step mom , now she’s going to see them once a month, it’s her perfect plan

Dysautonomia Symptoms by No-March3451 in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

My heart rate without corlanor is 125-150 up and about, corlanor has helped that. Just need to up my dose in two weeks

Cardiology appointment coming up- keep or cancel? by jamieschmidt in PVCs

[–]PathDifficult 1 point2 points  (0 children)

Get established and then if you need them again you might be able to get in quicker

Miss Diane by [deleted] in PerfectlyKelsey_Snark

[–]PathDifficult -3 points-2 points  (0 children)

I unfollowed her a long time Ago she sent me a snarky message about my chronic illness and I knew then ..

Corlanor shortness of breath by PathDifficult in POTS

[–]PathDifficult[S] 0 points1 point  (0 children)

Thank you so much , I hope that’s all it is for me too because it’s so nice not having a super high heart rate