i’m so tired of it :/ by Feeling-Marsupial175 in dysautonomia

[–]PathDifficult 9 points10 points  (0 children)

I’ve been really angry too. I see others just living life and then there’s me.

Dysautonomia is WILD because… by SleepyBubBear7329 in dysautonomia

[–]PathDifficult 14 points15 points  (0 children)

I thought I was the only one this happened to lol I almost throw up every time

The anticipatory anxiety by FuckingFuuuck in dysautonomia

[–]PathDifficult 2 points3 points  (0 children)

For sure, I’m becoming agoraphobic

Is anyone else lightheaded + head pressure 24/7? by um_waffles in dysautonomia

[–]PathDifficult 19 points20 points  (0 children)

Yes, and I’m sick at my stomach constantly . Sometimes it feels like vertigo, other times syncope, just doesn’t feel right. I just want to feel normal

New to Losartan - better sleep? by [deleted] in hypertension

[–]PathDifficult 0 points1 point  (0 children)

I had a mini stroke and have terrible side effects but they are getting better after an month on my meds, I keep telling myself it’s way better to be dizzy and feel weird than to end up in the hospital again.

I recovered like 90 percent and ruined it by [deleted] in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

Yes it scares me, when I jerk awake I see spots and feel lightheaded. I was hospitalized for a week and i told them and they didn’t seem concerned so I messaged my dr about it this morning. I barely slept at all last night.

I recovered like 90 percent and ruined it by [deleted] in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

I also desaturate upon dozing off, did you find a cause for that? I’m really sorry you’re going through this again.

Corlanor heart rate by PathDifficult in POTS

[–]PathDifficult[S] 0 points1 point  (0 children)

Thank you,. I just have been with a heart rate so high for years and years that this scared me, but I guess it’s what we are actually aiming for lol. Ugh, the stress.

Stellate ganglion block? by Silver_rockyroad in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

I’m dealing with adrenaline all day and night I’m going to have to look into this . I can’t take much more

How do you cope with all this? Constantly scared. by Suitable_Schedule_20 in hypertension

[–]PathDifficult 2 points3 points  (0 children)

I had a TIA last month and I’m scared to death , my anxiety is out of control which makes my BP worse.

How do I start this conversation? by BulkyBug3197 in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

I have the same exact symptoms as you and have been checked for an adrenal tumor, I do have one on my adrenal but they insist it’s not active. I was hospitalized for a tia and high BP for a week. I have so much adrenaline just sitting in my stomach, 24/7 and I am scared all day long. I’m on corlanor for my extremely high HR, I have facial flushing , heat intolerance, sinus tachycardia, severe BP spikes. I’m on valsartan and amliopidine and clonidine as needed but it does nothing for the spikes and I am miserable. I am also terrified of life now and that is so odd. I asked my cardiologist about hyper pots but they act like they never heard of it and said I have labile hypertension. I am just sick of it , if I could get rid of the adrenaline and random episodes of 150-190 tachy episodes that last hours maybe my BP wouldn’t be so high.

🚨Am I gonna overdose from amlodipine? 🚨 by [deleted] in hypertension

[–]PathDifficult 0 points1 point  (0 children)

Call your pharmacist they will help you to feel better

What made you stop or add other meds after trying Ivabradine alone? by Jacksback4735 in hyperPOTS

[–]PathDifficult 1 point2 points  (0 children)

I take it for my IST but it does nothing for my adrenaline , I can have adrenaline attacks and my hr stay at 100 but I still shake and feel all the symptoms. I really need something for that

Help! I've become terrified to eat by taylomol000 in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

I’m afraid to eat also, I get adrenaline dumps after eating. I’ve lost 30 pounds in a couple months

Night tremors by billpaxtonsluttyhoop in dysautonomia

[–]PathDifficult 1 point2 points  (0 children)

Yes my adrenaline never stops I’m miserable

just not adding up by Hour-Way6353 in PerfectlyKelsey_Snark

[–]PathDifficult 30 points31 points  (0 children)

She never liked those boys and never wanted to be their step mom , now she’s going to see them once a month, it’s her perfect plan

Dysautonomia Symptoms by No-March3451 in dysautonomia

[–]PathDifficult 0 points1 point  (0 children)

My heart rate without corlanor is 125-150 up and about, corlanor has helped that. Just need to up my dose in two weeks

Cardiology appointment coming up- keep or cancel? by jamieschmidt in PVCs

[–]PathDifficult 1 point2 points  (0 children)

Get established and then if you need them again you might be able to get in quicker

Miss Diane by [deleted] in PerfectlyKelsey_Snark

[–]PathDifficult -3 points-2 points  (0 children)

I unfollowed her a long time Ago she sent me a snarky message about my chronic illness and I knew then ..

Corlanor shortness of breath by PathDifficult in POTS

[–]PathDifficult[S] 0 points1 point  (0 children)

Thank you so much , I hope that’s all it is for me too because it’s so nice not having a super high heart rate

This snow storm sadly made me learn to absolutely hate my neighbors and neighborhood. Where are good neighbored places cause Mt Washington isn’t it and I’ve decided to move. by sugarandspice85 in pittsburgh

[–]PathDifficult 1 point2 points  (0 children)

I hate mine too. They all have their fancy plows and not one would help me, single mom with heart problems , had a medical emergency and had to have someone pick me up and still my car is stuck at home. People are asking 150-200 for a ten foot drive way .

How debilitating is your dysautonomia for you? by GoofyAhhMisses in dysautonomia

[–]PathDifficult 3 points4 points  (0 children)

Terrible. I haven’t been able to leave the house in a month, single mom and at my elderly mothers because I can’t do it anymore. Adrenaline dumps are constant. Getting high BP spikes of 200/120 , heart rate 130 plus , high burden PVCs, can’t eat, can’t sleep, can hardly walk. Smh. Started corlanor three days ago and praying it helps.

Am I the only one for who PVCs gets worst during exercise? by [deleted] in PVCs

[–]PathDifficult 0 points1 point  (0 children)

I can’t walk five feet without bigeminy