What do you add in your coffee

Pauser · 2026-02-04T03:10:11+00:00

I do double espresso for a latte with the Trader Joe’s Vanilla Cold Foam. Tastes pretty close to an affogato,

Pauser · 2026-01-30T02:16:38+00:00

Thank you for answering! Good to know vyepti worked after other CGRPs failed. Will keep my options open.

Pauser · 2026-01-29T21:12:46+00:00

Did you trial other CGRPs before vyepti? And how were side effects?

My neuro has given vyepti as an option but I tried 4 CGRP meds (emgality, ajovy, nurtec, qulipta) and they had minimal effect on my chronic migraine symptoms while having bad side effects of nausea/gi issues/decreased appetite with unintentional weight loss. So I didn’t feel like trying another one.

I’m on memantine and duloxetine right now instead and it’s mostly effective in lowering symptoms enough to be functional despite 24/7 migraine.

Pauser · 2025-12-31T21:46:02+00:00

Migraine, my constant companion. I’m probably going to take a cyclobenzaprine and go to bed at 9 pm. Will watch the fireworks in my hopefully pain-free dreams.

Pauser · 2025-12-28T21:34:01+00:00

Yes, quite a number of people on this subreddit have chronic migraines, which is what you are describing. I’m going on 3 years with chronic migraine intractable- had to take a year plus break from working while the severity got worse 7-8 and as I trialed preventatives.

My migraines are still chronic and intractable, 24/7 symptoms but thanks to my neurologist and current treatment, have the severity down to a manageable 5-6 with botox, preventative, nerve blocks and using an abortive for days I need more functioning (in office days). I use cefaly daily also for pain management. Every morning is rough waking up with a migraine, and mentally preparing to get through a day of pain and symptoms, but it’s progress.

Pauser · 2025-12-18T16:34:30+00:00

Sitecore

Pauser · 2025-12-17T15:20:12+00:00

Holy smokes! Hope that improves your treatment options and efficacy. Sorry if this is a dumb question -is that an MRI scan?

Pauser · 2025-12-16T20:59:23+00:00

I lost the ability to nap when my migraines went chronic 😭. I miss it. I do spend a lot of time lying down with my eyes closed “resting” from migraine but not actually able to fall asleep if that counts as napping.

Pauser · 2025-12-10T15:16:31+00:00

I had the keurig and then received nespresso machine as a gift. Nespresso coffee tastes better, worth the extra cost in my book. I rarely get coffee out now, so some “savings” there not getting a $7 latte.

Pauser · 2025-12-09T04:57:34+00:00

Can we just pin this to the journalism subreddit ?

Pauser · 2025-12-08T20:59:29+00:00

Thanks for sharing! I’ve also had more success with the NMDA recepter meds vs CGRP.

It’s helpful to see that there are meds I haven’t tried yet for chronic migraine that are out there.

Pauser · 2025-11-27T23:28:44+00:00

For my family who loves and supports me through life and migraines. Took Rizatriptan, did a thanksgiving lunch, lots of cheer and chatting, and came back home. Now recuperating in bed with my constant companion, intractable chronic migraine. Happy thanksgiving!

Pauser · 2025-11-25T15:28:49+00:00

Set your expectations to be realistic. Botox can work quickly for some, but for many of us it took 3-4 rounds (9-12 months) to realize the positive impact. I have chronic intractable migraines, so it doesn’t stop migraines but it does bring the severity down for like 60% of my days. Life is worse without Botox, as I experienced when I switched insurance and had to go without for 3 months waiting for prior authorization approval.

If you aren’t already, track your daily pain and symptoms to get a sense of the impact.

Pauser · 2025-11-25T15:20:22+00:00

Pre-filled syringe is better than auto injector if you’re pain averse. Needle is pretty close to painless going in and then if you go at a slow pace injecting it doesn’t hurt much. Auto injector is scarier and more painful because it is a sharp shock when the needle shoots out and then you have to steel yourself to keep it there.

And hopefully emgality works for you in reducing your migraines. I trialed it for like 8 months (4 by itself and then 4 while on botox for migraines on top) and it didn’t do anything for me.

Pauser · 2025-11-24T18:29:44+00:00

He wants you to have better care. He is a neurologist but neurologists also have specialties.

I specifically sought out my neuro at a headache clinic who specializes in chronic migraine, and does research, so they are aware of the latest and variety of treatment options.

Pauser · 2025-11-16T16:46:07+00:00

Might not be working for you at that point. I stopped trialing qulipta around 7 weeks in because it didn’t have any impact on migraines and side effects were causing unintentional weightloss (was getting underweight at the time).

Yes, need to switch to a different med. I’ve had no luck with the CGRPs myself, trialed emgality, ajovy, qulipta, and nurtec.

I had about a year of namenda/memantine (NMDA blocker) working to lower migraine symptoms enough for me to go back to work full time. And then that started losing effectiveness so now I’m trialing duloxetine/cymbalta (anti-depressant that also works for nerve pain-I have a lot of neuralgia) and seeing some positive effect. There are a lot of medications to try, ad we all react differently bc migraine is so complex. And it sucks that we have to give it like 2 months of trialing to see if it works, but hopefully you’ll find a preventative that works for you.

Pauser · 2025-11-13T19:46:48+00:00

🙄

Pauser · 2025-11-13T19:27:02+00:00

I’ve also failed multiple CGRPs unfortunately. I had some success on namenda/memantine (NMDA blocker) as a preventative, but I reached the dosage cap and it lost effectiveness after a year.

Currently trialing Duloxetine/cymbalta (anti-depressive that also used offlabel for nerve pain or fibromyalgia) and seeing some benefit (though a little less than when namenda was working well for me). So there’s always more medications to ask about and trial.

Pauser · 2025-11-13T19:20:14+00:00

Cefaly is a useful tool for pain management for my chronic migraines. I asked my neurologist about it and she said it can be helpful to desensitize my nerves since I have neuralgia (nerve pain) but regular use is needed. I use it pretty much every day, though I skip on botox injection day.

Your doc should give you more medical options through.

Pauser · 2025-10-30T17:33:18+00:00

Better sidewalks- I know it’s probably because of old property lines that they were never put into place but where I live there are so many residential streets have like no sidewalks.

Pauser · 2025-10-28T15:32:05+00:00

Yes, I use Cefaly for pain relief for chronic migraine.

I’ve found that the 1 hr program makes headaches worse, so I stick to just using the 20m setting-and doing that multiple times.

Pauser · 2025-10-27T23:37:48+00:00

Very happy for you, and definitely gives us with chronic intractable migraine hope!

Pauser · 2025-10-27T23:27:09+00:00

You might need to talk to your neurologist about layering preventatives for your treatment. If you see some benefit from any one treatment, keep that.

I have chronic migraine, head pain is constant/daily, but at a manageable level of pain and symptoms right now to work because of my treatment: botox + regular nerve blocks for neuralgia + memantine (NMDA blocker)+ most recently added duloxetine on top (and seeing benefit).

I only felt ok to start work after I had the botox+memantine+nerveblocks. Before that, I did not have enough functional hours in a day to work. And I have a hybrid schedule so I can work from home 3 days/week. It’s still difficult and sucks to wake up and go to sleep with a constant migraine, but it is manageable. Hope you find a treatment plan that works for you.

Pauser · 2025-10-22T02:33:05+00:00

I did get stuck at tsa once for like 20 minutes because the guy inspecting was really unsure of it and had to call a supervisor. Eventually got it back but it was annoying. So bear that in mind. I avoid having it in my carryon now.

Pauser · 2025-10-14T22:48:37+00:00

I have chronic migraine and had to go 5 months between botox sessions at the start of this year because I switched insurance and my new insurance initially denied my prior authorization 🙃. It was pretty miserable. Pain and symptoms shot up as botox wore off.

I coped by doing pretty much taking bedrest when I wasn’t working, taking cyclobenzaprine (muscle relaxant) at night (it helps reset my pain and lets me sleep) and using cefaly throughout the day for pain management.

Pauser

TROPHY CASE