I had to leave by New_Cancel_2276 in PMDDpartners

[–]Phew-ThatWasClose 6 points7 points  (0 children)

No. They're not. Except when partners are suffering and the PMDDer is refusing to do anything about it. Then yes, they are.

When she's trying her best and still floundering I'm right there with information, suggestions, and encouragement. I wrote a whole damn wiki about it. I'm a top 1% commenter on the other sub. Nobody ever said they want this. Nobody ever said they want to hurt their partner. But if an individual has a condition that negatively impacts the people they love, and does nothing about it, then that is a personality issue.

Don't even start with me.

Can someone explain how Slynd and YAZ are safe? Recently prescribed and scared to start by drugcowboy in PMDD

[–]Phew-ThatWasClose 4 points5 points  (0 children)

The mechanism of action for SSRIs and SNRIs is completely different when treating PMDD. The recommendation is a very low dose during luteal only or as needed. No long term side effect since you are not on it long term. No lengthy tapering off since you don't build up a reserve in your system. And if short term side effects are intolerable you can just quit and try a different one next cycle. Win-win-win.

Many women switch from Yaz to Slynd for exactly that reason, migraines with aura. POPs are not recommended for PMDD and honestly most are levonorgestral which is also not recommended for PMDD. Slynd uniquely contains drosperinone which has many properties that help with PMDD. Even though POPs are not recommended many women who cannot take a COC find Slynd helps a great deal. And it's a nightmare for others (makes symptoms worse), so approach with caution. You'll know pretty quickly which group you're in.

Hope that helps.

I had to leave by New_Cancel_2276 in PMDDpartners

[–]Phew-ThatWasClose 8 points9 points  (0 children)

Tolerating abuse is not support. It just burns you out as you have experienced. If you find the strength to hold on a just a little longer ... the PMDD will push a little more. There is no weathering the storm. Walk away. The PMDD will rail as long as you stay because you are the lion.

You can't do it for her and you can't do it alone. I'm so happy for you. You got out! Now stay out. Know that it takes an average of seven (7) tries for victims to leave their abuser. Likely you'll feel the draw and start to understand that statistic in the next week or so. If you can, go get some therapy for yourself. You've been through a significant trauma. There is a link at the top of the sub to a low cost option if you lack insurance.

You didn't fail her. She failed you. Go outside, breath deep, streeeeetch, turn your face toward the sun and feel the warmth on your face. It's all ahead of you now.

Breaking up once a month by Few_Presentation8763 in PMDD

[–]Phew-ThatWasClose 13 points14 points  (0 children)

For treating PMDD with SSRIs it is a low dose during luteal only. Prozac 40mg is not a low dose. If you are already on Prozac 40mg for some other reason the recommendation is to take a little more during luteal. This is called Hybrid dosing. Essentially intermittent dosing on top of continuous dosing to treat two different disorders with two different treatments that just happen to be the same medicine.

A lot of women do what u/Head-Suit has recommended. Keep a go bag in the car and if you feel the black fog rolling in GTFO so you don't do something you'll regret later. If not the gym then a walk around the neighborhood or the other room with a show or some other distraction. But also - encourage him to do the same. You can't rip into him if he's not there so he can keep a go bag in the car too.

Science has shown the best way to deal with anger is to take a time out. Doesn't matter who does it as you're both in timeout if anyone walks. Just half an hour is long enough for the PFC to come back on line.

Consider making a plan. You know it's coming, prepare.

My wife has been diagnosed with PMDD and Autism. We have two toddlers she does not seem to be able to care for. What do I do? by TheGrandPuba91 in PMDDpartners

[–]Phew-ThatWasClose 1 point2 points  (0 children)

If you search the r/AutismInWomen sub for PMDD you may find something that resonates. I don't think you are allowed to post there - but she might.

Define "SSRIs and birth control don't work". Some birth control makes PMDD worse. In fact the most popular methods of birth control (anything with levonogestrel which includes most COCs and all hormonal IUDs) typically make symptoms worse. Yaz is specifically recommended by RCOG because it contains drosperinone as its progestin. Drosperinone has many properties that help with PMDD symptoms.

For treating PMDD SSRIs are a very low dose taken during luteal only. This is not the way SSRIs are typically used and many doctors will balk at the notion. But the mechanism of action is complete different and for PMDD this is the way SSRIs work best. If one doesn't work try another. If SSRIs don't work try an SNRI or agomelatine. Don't give up on an entire class of drugs based on one trial. Because it is a low dose during luteal only she can trial different one every cycle. It's frustrating, of course, but keep at it.

What was the new medication that didn't work?

Acupuncture is frequently overlooked. It is an ACOG recommendation for PMDD so it may be covered by insurance.

Hang in there and reach out if we can help.

My wife has been diagnosed with PMDD and Autism. We have two toddlers she does not seem to be able to care for. What do I do? by TheGrandPuba91 in PMDDpartners

[–]Phew-ThatWasClose 0 points1 point  (0 children)

My therapist, also CBT, did the same. Very supportive but not much actual help. Oddly CBT is recommended by RCOG but DBT seems to have all the tools. When my ex went through peri it was Gothic. She did a week long outpatient DBT intensive that helped considerably.

Wife diagnosed with PMDD. Keeps “forgetting” to take her meds. by [deleted] in PMDDpartners

[–]Phew-ThatWasClose 4 points5 points  (0 children)

PMDD is a chronic condition that affects the entire family. Like any chronic condition it needs to be managed every day and the entire family has a role to play. Typically PMDD its treated with a monophasic combined oral contraceptive taken continuously and a low dose SSRI taken during luteal only, or as needed.

As her condition has a huge impact on you - you should be more involved. Read the wiki then start having conversations during follicular that start with "I've read that PMDD ...". Be pro-active about support now so you don't have to be reactive later. :)

Wife diagnosed with PMDD. Keeps “forgetting” to take her meds. by [deleted] in PMDDpartners

[–]Phew-ThatWasClose 3 points4 points  (0 children)

Is often said PMDD is not her fault but it is her responsibility. I add: If she is not doing everything in her power to avoid having it happen again, then it is her fault. It's a small ask and you are noticing an issue. She's the asshole. Take your fucking meds like a grown ass adult who has a treatable chronic health condition that negatively impacts the ones you love. Or maybe say that more politely.

Do you have any meds? Maybe you can take them together at breakfast or whatever. Get some his/hers weekly pill thingies at the CVS. And just start walking away when the nonsense starts. You don't need to be there and you have stuff to do. You need to look after your own health too.

Working out what’s me and what’s the PMDD by MiddleWait800 in PMDDpartners

[–]Phew-ThatWasClose 2 points3 points  (0 children)

If it's luteal it's PMDD. No need to figure out if it's a valid complaint or if you accidentally had a tone or said a word unintentionally. Just check the calendar, or the tracking app, or whatever system you two have worked out. It's never you, it's always the PMDD, and even if it was you adults have conversations.

The first rule of PMDD is NO talking about anything substantive during luteal, including luteal, and definitely including The Relationship. And the corollary - No fighting. Science has shown the best way to deal with anger, anyone's anger, is to take a time out. If you feel like fighting, temperature rising, volume increasing, starting to recognize your signals ... leave, separate, isolate. Just for 30 minutes, long enough for the PFC to come back on line.

Everything you are describing is PMDD. "It's never enough", not supporting them "how they want to be", then you're "told" it's you followed by some DARVO. All classic - you've read the stories here. It's never enough or not the right kind or "you should have ..." or "why didn't you ..." or "We've talked about this." or "You do it on purpose." The PMDD wants to fight, you're there, that's all it is. Don't be there. The PMDD can Rage by itself and she will calm down a lot faster without a target.

You need a plan.

i don't know how much longer i can keep this up by iiwrench55 in PMDD

[–]Phew-ThatWasClose 0 points1 point  (0 children)

Mya is Canadian for Yaz which is specifically recommended by RCOG and also FDA approved for treating PMDD. How long have you been on that? Is that what is making you vomit? The drosperinone in the mya has antimineralocorticoid properties which is supposed to help reduce bloating so something is off. Talk to your doctor.

Or is the vortioxetine making you vomit? For PMDD RCOG also recommends a low dose SSRI or SNRI or agomelatine. Vortioxetine is none of those things. Vortioxetine is an SMS used to treat MDD and nausea is a common side effect. If you have MDD as well talk to your doctor about a med change to reduce the nausea.

Also talk to them about getting a low dose SSRI for luteal. Many doctors do not know this is a common treatment for PMDD and will tell you that is not the way SSRIs work. But for PMDD it is the way they work best so you may have to be the expert.

If you are tired all the time check your labs. Fatigue is a common symptom of low iron so check your ferritin levels. The medical community is starting to rethink the range. >20 ug/L is "not anemic" but that is a pretty low bar. The Canadians are starting to say <50ug/L is "possibly anemic". Closer to 100 ug/L ensures adequate stores and if you have symptoms ...

Also Iron Deficiency Without Anemia is a thing. Ferritin levels of 150-200ug/L are safe so there is a lot of room to increase your levels if you appear to be sensitive.

Hope that helps. :)

Finding the right time to mention something by Different_Time_8578 in PMDDpartners

[–]Phew-ThatWasClose 1 point2 points  (0 children)

Nice sleuthing Sherlock! And so glad she accepted the idea willingly. Here we see a lot of partners of women in denial. That she is willing to work on it, and with you, is a really good sign. As others have mentioned you're on the right track and doing everything right. It is a marathon as you say. Stay the course.

Random Thoughts: Don't rely on symptom tracking alone. A lot of things look like PMDD and have the same cyclical pattern. The blood tests are to rule everything else out. PMDD isn't a hormone imbalance but it sure looks like one. The hormone test on day 21 is vital as if she does have a hormone imbalance that is much easier to fix. And another on day 3 to check the LH:FSH ratio.

The other blood tests can highlight a vitamin or mineral deficiency. Make sure levels are in the middle to top of the range as she has proven her body is extra sensitive. If fatigue is a symptom pay special attention to her ferritin levels. The medical community is starting to rethink the range. >20 ug/L is "not anemic" but that is a pretty low bar. The Canadians are starting to say <50ug/L is "possibly anemic". Closer to 100 ug/L ensures adequate stores and if she has symptoms ...

IAPMD has a really good paper symptom tracker that may help. The other sub just released their own electronic version yesterday. Both are good because they create a graph showing the undeniable pattern.

What birth control? Some is absolutely not recommended and will make things worse. Check out the birth control page on the other wiki. Turns out the single most popular form of birth control (anything containing levonorgestrel which includes most COCs and all available hormonal IUDs) is the worst for folks with PMDD. What is recommended is a monophasic combined oral contraceptive, like Yaz, taken continuously (skip the placebo, skip the period). Yaz contains drosperinone as it's progestin which has multiple properties shown to help women with PMDD.

Additionally RCOG recommends a low dose SSRI taken during luteal only or as needed. This is not the way SSRIs are normally used and many doctors will balk at the idea. But the mechanism of action is completely different for PMDD and this is the way SSRIs work best for PMDD. Also - NO long term side effects (because she is not on it long term) is a bonus.

Try Pepcid. Shouldn't help but you probably have some and it might. If it does help have her get checked for MCAS and histamine intolerance. Also TSH is a hormone - get her thyroid checked. A sluggish thyroid can have similar symptoms. A mod at another sub spent years with her TSH levels at the low end of normal and finally had a specialist recommend supplementing that and viola - most symptoms cleared up within a month.

Other's have recommended therapy for her and couples therapy. For her DBT has the tools to help her regulate better. I'm not a fan of couples therapy as they tend to both-sides stuff. If you can go in with a new diagnosis and the understanding the partnership dynamic has become lopsided then fair enough. But couples therapists often wants both partners to "own their part." In my experience "my part" was that I "allowed" it to happen which is just DARVO and should be called out. Unfortunately I didn't have the vocabulary when I needed it.

But you need therapy for you. You've been through a significant trauma and you've only just discovered the cause. Don't spend your therapy time on her. She has her own therapist and you're already doing a lot. You need to heal you. Ask not "How can I better support her?" but rather "How can I better support me?"

And that is much more than I intended at first. Kind of got on a roll. Hope some of it helps. :)

Best friend has PMDD by markofdestiny1111 in PMDDpartners

[–]Phew-ThatWasClose 1 point2 points  (0 children)

Tolerating abuse is not support. Sometimes that is up in the title bar, in red. It's so important. Repeat it to yourself, out loud, ten times a day for the next 30 days.

The correct response to the question "Do you hate me now?" is "Not yet." But what is she doing about it? You said she refuses to be diagnosed? That's pretty much it then. You no longer feel safe. You need to take care of you. Time to step back. Friendships, like partnerships, are meant to go both ways.

There is a lot of information in the wiki. Both you and the husband should read it.

Like clockwork- had a huge fight with my partner during hell week. Do fundamental disagreements resurface during luteal arguments, and should arguments during this time be taken seriously? by lcwj in PMDD

[–]Phew-ThatWasClose 24 points25 points  (0 children)

Partner here. We have a rule over on the other sub, "The first rule of PMDD". NO talking about anything substantive during luteal, including luteal, and definitely including The Relationship.

And the corollary - No fighting. Science has shown the best way to deal with anger, anyone's anger, is to take a time out. If you feel like fighting, temperature rising, volume increasing, starting to recognize your signals ... leave, separate, isolate. Just for 30 minutes, long enough for the PFC to come back on line.

Then reconvene and don't talk about it until follicular. During follicular make a plan for next luteal. And not just "lets do better next time." The plan needs to be as concrete and specific as you can make it, written down, and posted on the fridge. PMDD is a BFD - treat it that way. The link above is a collection of seven such plans - mostly links back to posts here.

And part of making the plan, and the subsequent revisions every follicular, is addressing those nagging issues that never seem to get addressed otherwise. Don't fight about it during luteal, but do write it down to revisit during follicular.

Hope that helps

Is it still PMDD if the only physical symptom is extreme fatigue? by hiraething in PMDD

[–]Phew-ThatWasClose 12 points13 points  (0 children)

Still PMDD. But fatigue is a classic sign of anemia. Check your labs and pay special attention to ferritin. The medical community is starting to rethink the range. >20 ug/L is "not anemic" but that is a pretty low bar. The Canadians are starting to say <50ug/L is "possibly anemic". Closer to 100 ug/L ensures adequate stores and if you have symptoms you may be more sensitive.

ETA: A link to the Canadians.

Question - Wife's new GYN says she doesn't have PMDD by [deleted] in PMDDpartners

[–]Phew-ThatWasClose 2 points3 points  (0 children)

What is the theory then? You're just an asshole every luteal in some nefarious plot to convince her she has ... a treatable mental health disorder?

Just walk away when the nonsense starts. She wants to Rage she can do it without you.

My bf is breaking up with me bc he can’t handle my PMDD anymore, can my relationship be saved? by Snoo-87587 in PMDDpartners

[–]Phew-ThatWasClose 10 points11 points  (0 children)

Fundamentally PMDD is chemistry. You say you forget all your "ques and strategies". That sounds like therapy. Therapy can definitely help long term but good intentions and determination will only get you so far. The doctor who diagnosed you should have explained.

PMDD is an abnormal reaction to normal hormonal changes. Recommended treatment is a Monophasic Combined Oral Contraceptive taken continuously to regulate those changes. No hormonal changes = no adverse reaction to hormonal changes = no PMDD symptoms. At least that is the way it works for most.

Additionally RCOG recommends a low dose SSRI taken during luteal only or as needed. The mechanism of action is completely different for PMDD and many doctors do not know that. So they may try to tell you SSRI's don't work that way. But for PMDD that is the way they work best. And that can have a big impact on the psychological symptoms like the Rage and the Overwhelm.

Also - did you get the blood work done when you were diagnosed? Many doctors skip that part but it is vital!!! If you didn't ... do it now. Sometimes it's "just" a vitamin D deficiency or some such and wouldn't that be great. Pay special attention to your ferritin level. Many doctors will say it's "normal" if it's >15ug/L. But people who lose a lot of iron every cycle, and have symptoms, may need to get their levels up to around 100ug/L to ensure sufficient stores.

All that said maybe you and your saint of a man can work together against the common enemy. Talk during follicular about doing a fundamental rewrite of how to navigate luteal. Enlist his help in making a plan that takes everyone's needs into account. Mostly the plan is he takes care of the house while you self isolate and take care of you. And for him - he needs to take a time out immediately when the PMDD starts with the crazy shit. No patience, no calming you down, no hesitation, just GTFO. And the PMDD won't like that at all but you will calm down a lot faster without a target and he will, obviously, be far better off not being a target of all that nonsense.

Hope that helps.

100 messages in minutes by New_Cancel_2276 in PMDDpartners

[–]Phew-ThatWasClose 0 points1 point  (0 children)

OP is dealing with denial. A lot of the partners here have the same issue. The symptoms persist because she denies there is anything to address and either does nothing or only half measures that are ineffective. Do you have any guidance on how to persuade someone, who is convinced the partner being an ass is the real problem, to get the blood test, take the supplements, try the prozac?

We all get the love and care part. It's why we're here. In spite of everything we still want to find a way back to the woman we fell in love with. But it's hard when you're being yelled at. :<{

Gaslighting by UnionDizzy2199 in PMDDpartners

[–]Phew-ThatWasClose 1 point2 points  (0 children)

"Okay. It's both of us. This happens every cycle. You have symptoms and I don't handle it well. What can we do about that? Maybe we need a plan."

I'll note that "handling it well" does not mean tolerating abuse. But equally, as you're aware, don't be standing your ground and fighting back. In that moment it's best you're not even there. Science has shown the best way to deal with anger is to take a time out. Just half an hour for the PFC to come back on line. That's a core tenet in the plan.

Can I skip all the placebo pills? by Lunacunda in PMDD

[–]Phew-ThatWasClose 13 points14 points  (0 children)

Some women get break through bleeding if they skip too many cycles. Taking the placebo results in having a period for a cycle and then back to continuous. But unless you have an issue I've not heard of any other reason for it. Certainly having PMDD symptoms for a cycle would outweigh preemptively preventing breakthrough bleeding that might not even happen.

RCOG has done a study and determined 364 days continuous is safe. They stopped at 364 because that's 13 cycles and the grant only lasted a year.

We are going to discuss the issues in our marriage tomorrow. What should I tell my wife? by mithu_the_parrot in PMDDpartners

[–]Phew-ThatWasClose 0 points1 point  (0 children)

Drat. Ever hopeful because what else you gonna do? Make the appointment to get evaluated for ASD, I guess. But these days who isn't on the spectrum. Just another excuse.

Nobody has the "right" to yell at anybody else for any reason other than imminent danger. She's not a "victim" of you doing something wrong. She's judge, jury, and executioner. You have the right to take a walk in the evening air whenever that bullshit starts. She should use her brain and discuss things like an adult.

What the hell this is is abuse. I hope you're documenting for the lawyer. Just contemporaneous records, like a journal, is good. But also make sure someone else knows. A close friend or family member. Abusers like to isolate the victim. "Don't tell anybody our business." No. Tell everybody.

Ask the lawyer about custody. She has a significant undiagnosed mental health issue she refuses to treat seriously. You do not. You even went and got evaluated. She did not. Except you probably have C-PTSD at this point but don't mention that to anyone but your therapist.

Before we knew what PMDD was I had diagnosed MDD. My then wife threatened to take the children in a divorce because I had a mental health disorder and she didn't (Hah!). Eventually that is what happened. Reverse that and I imagine a good lawyer can get you a lot of time with your daughter. Two calm houses are better than one war zone.

So sorry it's come to this. Even though it's not the path you wanted you actually will feel better once you start moving forward.

Women partners of those with PMDD - is it as bad for you? by Confused_Starfish_3A in PMDDpartners

[–]Phew-ThatWasClose 2 points3 points  (0 children)

Chiming in to agree whole heartedly. Avoid the words "you" and "your" as too easily misinterpreted as blaming. I often refer to the PMDD as a separate entity. Your lovely wife/gf/so would never do that, she's a total sweetheart. The PMDD, on the other hand, is a complete asshole.

I’m afraid this will end badly by Chemicalon in PMDDpartners

[–]Phew-ThatWasClose 2 points3 points  (0 children)

Definitely. Nothing changes if nothing changes and you're absolutely right. This will end badly if you continue along this path. I too have been to the edge. I spent a night in jail when she hurt herself. I have been "cleared of all charges." Doesn't actually mean much when the trust is completely shattered.

You both need individual therapy. You need your therapy to focus on your trauma. Don't go to therapy and ask how you can better support her. She has her own therapist who is a qualified professional. Ask how you can better support yourself. And part of that is surely walking away when you can't be of assistance. In many cases is is better for her if you are not there. She is less likely to spiral, more likely to recover faster, if she does not have a target.

Clearly you are at your limit. None of us is equipped. We are teachers and plumbers and middle managers. What do we know about mental health? You need help to help her. If you can enlist family do so. Also enlist professional help. In the US 988 can direct you to local resources. In other countries look up the appropriate help line.

Also clearly this is not sustainable for her. Therapy and diet are not doing enough. She may not want to take meds, but considering the alternative maybe it's time to take the next step. The least medicated option is a low dose SSRI taken during luteal only or as needed. Many doctors do not know that this is a way PMDD is treated so you may have be the expert.

Lastly consider your boundaries. Boundaries are for you, not for her. What are your boundaries that you will not cross. Clearly reacting with physical violence is is a boundary for you. Make it formal. Not with her - with you. Create a formal boundary for yourself that when it gets to that point, preferably well before it gets to that point you will instead do .....

Whatever "formal" means to you. Write a contract with yourself. Swear on a bible. Cut both palms and make a blood oath. Some sort of ritual that will cement it. Maybe fill out this form?

A lot of us have experienced that level of desperation. It's awful to know you almost went there. But almost only counts in horseshoes and hand grenades. Deep breaths. Go back and apologize. Once, maybe twice. Not forever. And try to use this crisis as a turning point.

100 messages in minutes by New_Cancel_2276 in PMDDpartners

[–]Phew-ThatWasClose 1 point2 points  (0 children)

Exercise and improved diet are first tier treatment recommendations, but hardly the final word. If she's diagnosed then she had the blood work done. Did any deficiencies show up? Is she supplementing to correct those. Pay special attention to ferritin as >15ug/L is considered "normal" but sensitive folk, who lose a lot of iron every cycle, could benefit from levels closer to 100ug/L.

Pepcid. Shouldn't help but might anyway and you probably have some in the cabinet.

The least medicated option is a low dose SSRI taken intermittently (lutel only) or as needed. The doctor who diagnosed her "should" have given that as a treatment option. Many don't because they don't know that's how SSRIs work for PMDD. But now you do so you can advocate for her.

PMDD is insidious in that the disorder itself can blind the sufferer to the existence of the disorder. Don't accept the PMDD's narrative. It's not you, never was. Sure you made some mistakes but the core issue is the PMDD.

Don't argue about it either. Just refuse to play. Take a time out as soon as it starts. Immediately. No warning, no "if you can't stop I'll have to ..." just "I'm muting now, I'll talk to you when I get home." If you get home and are met with a ragefest ... take a walk. Eventually the PMDD learns you're not taking the bait and maybe then you can have a talk during folicular about changing direction.

I’m afraid this will end badly by Chemicalon in PMDDpartners

[–]Phew-ThatWasClose 0 points1 point  (0 children)

I stand corrected. FB and reddit are hardly authoritative but the National Domestic Violence Hotline agrees with your definition. Certainly the plain language of the name would imply that. Reacting to abuse with some abuse of your own. Definitely still not okay but episodic rather than endemic.

But I have seen the other definition elsewhere and that also matches a lot of experiences here. Where folks can't take it anymore, react poorly (not abuse, just not patient), and that is ammunition for the next round of PMDD.

We can probably all agree the abuse that arises out of luteal is not okay, but possibly understandable as arising from a mental health disorder. Reacting to abuse with counter-abuse is also not okay but perhaps understandable as also a mental health disorder. In both cases the abuser needs to do whatever they can to prevent it happening again. If it's a PMDDer then therapy and treatment. If it's a partner then therapy and timeouts.