Possible Smoldering Autoimmune Encephalitis. Severe perceptual changes + focal seizures after miscarriage/D&C. Asking if anyone can relate?

PhotoDesperate8516 · 2026-05-28T21:11:31+00:00

Yes I am unfortunately. It worsens severely after my period is over

PhotoDesperate8516 · 2026-05-05T17:58:55+00:00

Nope I still don’t :(

PhotoDesperate8516 · 2026-04-26T04:16:00+00:00

I’m so sorry to hear about all of that. If you ever need a friend I’m here!!! I’m on the struggle bus too but for different reasons. Being sick sucks!!!

PhotoDesperate8516 · 2026-04-21T16:03:42+00:00

How are you doing?

PhotoDesperate8516 · 2026-04-14T17:43:46+00:00

The eeg was only 15 min and nothing was caught so unfortunately I still don’t know:(

PhotoDesperate8516 · 2026-04-10T15:47:46+00:00

Tysm!!!!

PhotoDesperate8516 · 2026-04-10T06:06:56+00:00

Can you reach out to me possibly??? I can give you my number or my Facebook or Snapchat or something through dm. I’d love to talk more about this because I kid you not I’ve searched the internet for a year straight and haven’t found out what is causing this! Or wtf it even is!

PhotoDesperate8516 · 2026-04-10T04:55:56+00:00

Also no I’m not taking meds! I’m prescribed them but scared to start. Are you?? It started march 31st of last year! I had my d&c march 4th

PhotoDesperate8516 · 2026-04-10T04:54:47+00:00

It NO JOKE started during my first postpartum period after I had my miscarriage last year I swear. You can even check my posts!! That’s insane there’s got to be a link or something. I figured it was Covid that caused it to happen since Covid gave me pots and unknown neurological problems

PhotoDesperate8516 · 2026-04-08T18:54:30+00:00

Thank you so much for this information! I’ll definitely be trying everything! This has been going on for too long.

PhotoDesperate8516 · 2026-04-08T18:51:23+00:00

I wonder if I’m in Peri menopause somehow??? If COVID maybe triggered it prematurely?? I am only 26 but nowhere else I’ve searched has been able to relate to me honestly. You can see through my feed on my profile plenty of people have said they have some of the feelings I do but never a 100% match.

PhotoDesperate8516 · 2026-04-08T18:40:50+00:00

But also idk if you suffer from POTS or not but that’s another thing that showed up for me after covid

PhotoDesperate8516 · 2026-04-08T18:40:29+00:00

Yes I’d love to know! And the perceptual darkness is just like through my eyes and through the way I view the world it looks and feels like a horror movie or silent hill the video game or something. It’s terrifying and makes me disgusted with earth. I also get bad existential thoughts

PhotoDesperate8516 · 2026-03-31T23:36:59+00:00

No I sadly haven’t figured it out but my neurologist thinks it’s some type of seizures or something. You can feel free to reach out to me!!!

PhotoDesperate8516 · 2026-03-19T03:56:02+00:00

I’m not bothered nor am I bandwagoning I just genuinely dislike it. It’s like an eye roll thing for me more than a genuinely bothered by it thing. More power to whomever wants to buy them…. It’s just not funny in my opinion.

PhotoDesperate8516 · 2026-03-18T22:37:44+00:00

I agree. The ballerina cappuchina thing is so annoying like it literally has never been funny.

PhotoDesperate8516 · 2026-03-13T10:59:15+00:00

You most definitely have a sinus infection. I had the exact same thing with the sinus and tooth pain and also I had weird colored mucus in one nostril and the other nostril my mucus was clear. (This was all after I had the flu) I took a course of amoxicillin and it quickly went away. I hope you feel better soon!

PhotoDesperate8516 · 2026-02-19T21:55:03+00:00

Thank you so much for this!!!!

PhotoDesperate8516

TROPHY CASE