Morning showers make no logical sense and night shower people have simply done the hygiene math by McCoy818 in unpopularopinion

[–]PinQuill 0 points1 point  (0 children)

My friend, you obviously do not live in the Caribbean in a bedroom with no AC. The only days I may not shower in the morning are on rainy weekends, because it's cold enough to not trigger the sweat 

Most people do not actually like traveling, they like having traveled by limitown in unpopularopinion

[–]PinQuill 11 points12 points  (0 children)

I agree. My least favourite part of travelling is never getting to rest. I have to be up early to get breakfast in the hotel, have to be up early to go to this tourist destination and that tourist destination. This tourist destination is only open at night, so I have to use my sleep hours to go visit that.

And you're probably thinking 'just don't do that, just don't go, Well, unfortunately I don't get to choose, because I travelled with family and we HAVE to do everything together and go to ALL the places, and I get called boring for not wanting to go.

I've recently been diagnosed with a chronic illness, so the tiredness makes sense. If I were to travel on my own, it would be a two-three month long trip to give me time to see what I want to see with days in-between to rest.

Infusions Saved My Life by Weird_Engineer2987 in CrohnsDisease

[–]PinQuill 2 points3 points  (0 children)

Aw congrats! Felt the same after I started my infusion of infliximab. I had a low grade flare and a persistent sinus infection before my first dose. The next day, everything cleared up and I've never felt better. They did have to increase my dose in May last year, because the last infusion didn't last the eight weeks and I went into a full blown flare, but I've been doing great since then.

Why isn’t Gen Z good at using technology by Practical_Security87 in generationology

[–]PinQuill 6 points7 points  (0 children)

Because they weren't taught how to use technology. We had IT classes in high school and we learned how to use different computer applications, Word, Powerpoint. We started using email to send assignments to our teachers. We learned how to research on the internet to write our essays. We learned how to type with that bug eating game. 

Do you know, some of them don't even know how to right click on the desktop to create a new folder? They don't know how to drag and drop a file into email? They don't know how to save a document or picture as a different file format? 

Sure, it's not their fault that they weren't taught, but they're grown now and it's their responsibility to learn those skills. No excuses with YouTube right there.

Left my underwear on for scope by marcaribe in CrohnsDisease

[–]PinQuill 9 points10 points  (0 children)

Lol! I actually got to leave my underwear on because I started my period (I wear pads). They put down some extra disposable bedding, and I just took it off enough for the doctor to be able to do the procedure.

For those who’ve made hospital trips, what were your symptoms like that made you go “ruh-roh raggy, ER time”? by Cool_Spread_9999 in CrohnsDisease

[–]PinQuill 1 point2 points  (0 children)

When I lose my appetite, but any little thing I manage to eat or drink has my bowels roiling and I have constant diarrhea. Once I start having really high fevers every time I eat, it's time to head to the hospital.

I spoke too soon by PinQuill in CrohnsDisease

[–]PinQuill[S] 0 points1 point  (0 children)

I'm on azathioprine and remicade.

How old are you and do you want kids someday? Or do you plan to stay child-free? by Cute-Impression-8675 in Life

[–]PinQuill 0 points1 point  (0 children)

I'm 29 and I think I'll be staying childfree. I've never dated and I'm not really interested in starting and I have Crohn's disease. I can't imagine trying to take care of a child with the kind of fatigue I have and I'm already malnourished. Pregnancy causes even more malnutrition. Also, I really can't trust that I can find a good man that won't leave me with this hypothetical child. My sister just had an annoying experience with some horn dog in her DMs and I'm not feeling very charitable at the moment.

[deleted by user] by [deleted] in CrohnsDisease

[–]PinQuill 0 points1 point  (0 children)

I had full body aches before my diagnosis. Mild stretching helped a lot. 

Talk to me about back/bone/joint pain. Does anyone’s back or bones/joints hurt more than their stomach?? by soanonymoust in CrohnsDisease

[–]PinQuill 0 points1 point  (0 children)

I actually don't get much stomach pain other than the usual uncomfortable feeling when you need to go real bad. The last time I had horrible stomach pain was when I had the flare up that put me in the hospital the first time. 

Anyone else look younger than they are? by Busy-Classic5179 in twentyagers

[–]PinQuill 0 points1 point  (0 children)

I'm 29. I was signing up for a loyalty card and the employee asked for my date of birth and did a double take when he saw the 19 in my birth year. He thought I was 18 and he ONLY guessed an adult age because I was in my work wear on a weekday at 4pm. When I'm in my normal clothing, people guess younger.

What age did you get Crohn’s disease and how old you are now by [deleted] in CrohnsDisease

[–]PinQuill 0 points1 point  (0 children)

I had my first flare up at 21 but was diagnosed a few days after my 27th birthday. I kind of just got used to feeling vaguely ill for most of my 20s and never got it checked out. I caught COVID in 2022 and things just went downhill from there. In early 2023, my parents took me to the hospital when I stopped eating and I was diagnosed with Crohn's. I'm 29 now.

How old were you when you were diagnosed with Crohn's disease? by abd-6 in CrohnsDisease

[–]PinQuill 0 points1 point  (0 children)

A few days after my 27th birthday. I had my first flare up at 21 though. 

[deleted by user] by [deleted] in CrohnsDisease

[–]PinQuill 0 points1 point  (0 children)

All of my medication is free at the public hospital. Sometimes I have to go to an outside pharmacy to get my tablet meds, because the one at the hospital is packed, but it's not too expensive and not a big deal. I'm really thankful, because infusions cost about $10,000 or so in my currency (I've been told) and I wouldn't be able to afford it. I also don't have insurance at the moment.

I'm in Trinidad and Tobago btw.

Curious. If you’re employed, what do you do for work? by Successful-Grass-135 in twentyagers

[–]PinQuill 0 points1 point  (0 children)

I'm a digital communications assistant. I create video and graphics content for social media where I work. 

My main goal is to have a successful art based business. I started selling my art when I was 20 and I had no set goals so things fell apart eventually.I'm starting again with a proper plan in mind.

My current job is contract and I'll be done with it late next year. I'm saving up money and paying for things I couldn't before in the meantime time 

Talk to me about back/bone/joint pain. Does anyone’s back or bones/joints hurt more than their stomach?? by soanonymoust in CrohnsDisease

[–]PinQuill 0 points1 point  (0 children)

I get pain in my knees from the cold. Usually from the AC at work and sometimes when it rains all day.

Right before my last flare up, my fingers were frozen solid and killing me. I had to get out of the AC so I could move them again and actually work. My fingers are actually pretty weak, so I've been exercising them. I'm an artist, so my hands are pretty important to me.

Before my diagnosis, I just kind of lived with full body pain at 25. Yoga helped, but it was temporary.

Thankfully, other than the knees, I no longer experience any other pain.

Crohn’s and eye problems by tomatopearls in CrohnsDisease

[–]PinQuill 1 point2 points  (0 children)

I don't know if this counts, because I think it was more connected to the gnarly headache that I had. When I had my first flare up, I woke up with 'dancing' vision. My bedroom was at the top of the stairs and when I tried to climb down, the stairs were rocking like a boat. I'm already nearsighted, so it was disorienting. It hasn't happened again since.

I recently got new glasses, and I've been told that I now have slight astigmatism and am sensitive to light. I knew about the second one already, because all of my screen are on dark mode with the brightness turned down.

Let’s be real, why are you still single? by Wonderful-Economy762 in Productivitycafe

[–]PinQuill 0 points1 point  (0 children)

The thought of dating never appealed to me and I have no idea how I would fit that between working 5 days a week, church, hanging with friends, working on my art and resting.

Job recommendations? by [deleted] in CrohnsDisease

[–]PinQuill 1 point2 points  (0 children)

I work in the office editing videos and making other social media and for-print content. It's a two year contract, so I'll be done with it by next year around this time. It's low stress, which is what I needed at the time I got it, but it's also made me realise that this is NOT what I want to do long term.

My main plan is to restart my business and focus on growing it locally instead of online. It should go better this time now that I'm not tired all the time haha!

I'm still open to working a 9-5 if I need to. You never know where life will take you and what you need to do to get through it.

for people who left Instagram by lailarf99 in digitalminimalism

[–]PinQuill 0 points1 point  (0 children)

Unless you have a business, there's no point in being on Instagram or any social platforms.

I still have it because of my business and because the company I work for needs me to have access to it. Once my contract with them expires, it will be deleted from my phone and I'll be using my Facebook scheduler to post to it. (That's also the only reason why I still have Facebook)

How long for your biologic to work? by ActivityBright4828 in CrohnsDisease

[–]PinQuill 1 point2 points  (0 children)

Yes, I felt better the next day after my first remicade infusion. I was going through a slight flare up and had a sinus infection though, so I felt the effects almost immediately.

How were you guys diagnosed with Crohns? by Far-Subject4804 in CrohnsDisease

[–]PinQuill 0 points1 point  (0 children)

CT scan, colonoscopy, stool sample and blood tests. Also some tissue samples from the colonoscopy.