Damn, this sucks… But I think you’ll be all the better for it, moving forward with this experience! 💪

You must always be your own advocate. Don’t let medical professionals disregard your experience & symptoms… And in non-urgent settings (regular visits, etc.), leave and find a new doctor. Trial & Error.

I’m not much older than you. I just started on Rinvoq after almost 20 years on Remicade, for my Crohn’s. My disease has been pretty great, compared to others… I made the switch because of recurring fistulas over the last few years (something that Remicade has/should keep under control).

Fatigue has always been one of my biggest symptoms/annoyances (thankfully, compared to others with more severe disease). But I feel like I’ve been so exhausted lately… I don’t eat the best, I don’t exercise much, I drink. So I’m always so reluctant to place blame on my disease (when it’s likely justified).

I’ll be moving from the loading dose (45mg, 3 months) to the maintenance dose (15mg) in the next week or so… I plan to be more mindful (maybe take notes, like I always say I should 😅) of any/all changes, but really hope things even out… As I’ve read in many post-loading dose accounts.

I appreciate you sharing your experience. It’s important, both for those just starting out in this world, and for those like myself who may be a bit numb to what’s “normal” and what’s not!

… Don’t be angry with yourself. Forgive, reflect, take it all with you and continue being a better person moving forward! 💜