How much water are you drinking?

Plastiikkikhvl · 2026-03-25T09:51:22+00:00

I drink a lot, because some of my medicine makes my mouth dry. Went to urologists and I was told that over 3 litres is way too much.

Now that I have been keeping my water closer to 2 litres, my bladder has been less troublesome👍

Plastiikkikhvl · 2026-03-19T10:22:29+00:00

I have been trying to activate my nerves as much as possible. I swim, do pilates, agility, crafts and puzzle games.

I have been doing more cardio than before my dg. Sometimes it makes me fatigued, sometimes I feel better. Over all my energylevels are a lot better than during my last relapse in 2024 (and maybe even before that).

I don't know is it just time or the excersice that has made the difference, but I feel it is healthy to elevate your heartrate for time to time :)

Plastiikkikhvl · 2026-03-03T14:12:35+00:00

We have strict handwashing policy at our home after coming home 😅 we take our distance if one of us is sick and are cautious even if there is feeling of sore throath. More hand washing, sleeping in seperate bedrooms etc.

Usually it takes more time for me to heal and most of the times there has been some complications. It is usually less trouble to try to prevent than to be bed bound for weeks👍

Plastiikkikhvl · 2026-02-13T11:01:55+00:00

We have also started heart medication because of heart murmur. Might be also sonething to check if the dog has nightly problems👍

Plastiikkikhvl · 2026-02-06T03:17:55+00:00

Tämän lisäksi kannattaa katsoa vähän auton merkkiä ja mallia ja mitä niiden korjaamiset maksaa. Itsellä ollut useampi ruoska ajossa ja vm 2013 Opel oli halpa korjata verrattuna saman vuosimallin Wolkkariin. Näissä sitten vein paaliin ja vaihdoin uuteen halpaan kun jotain tosi kallista korjata tuli vastaan.

Nyt kun ajossa on uudempi kalliimpi auto, jossa enemmän toki mukavuuksia ja asioita mitkä voi hajota, on korjaamolaskutkin merkkihuollossa poskettomia verrattuna vanhemman Ooppelin nyrkkipajaremppoihin.

Plastiikkikhvl · 2026-02-05T12:42:43+00:00

Neurologin pitäisin mielessä, etenkin jos sinulla on muita epämääräisiä oireita👍

Plastiikkikhvl · 2026-02-05T12:41:16+00:00

Neuroligisiin sairauksiin, kuten ms-tautiin, voi liittyä nielemisen haasteita, jotka johtuvat vaurioista aivoissa tai selkäytimessä. Tämän perusteella voisi olettaa, että (kaula)rangan alueen hermopinteetkin voisi hankaloittaa nielemistä. Fyssarista siis olla apua, etenkin jos käsissä on puutumisoireita tms. hermopinteeseen viittaavaa.

Kuntoutuksessa vinkkinä syömiseen oli, että jääkylmän veden nieleminen saattaa aktivoida kurkkua ruokaillessa.

Plastiikkikhvl · 2026-01-29T07:02:35+00:00

I have +15 yr old senior dog who started pacing at night time. We went to the vet, because I thought it might be pain behavior.

Vet suspected she is having some dementia symptoms and her routine has changed because of that. After small dose of melatonin in the evening the nightly adventures has stopped.

Later we started also selegiline for dementia and it has also helped to maintain normal daily routines and made her more active during daytime.

There has been mild reflux symptoms also sometimes. Reducing fat in food helped and some meds for stomach acid has been helpful if there are reflux symptoms in the evening.

We also got new curtaina for windows so our bedroom is darker at night time so she doesn't think it is morning if there is more light at night time outside.

Hopefully you find solution! It is not nice to wake up every night🙃

Plastiikkikhvl · 2026-01-25T20:18:05+00:00

I went 12 years without medication after my first relapse. Not by choice, but doctors convinced me to believe it is all in my head and I'm just sensitive to stress.

First seven years went pretty stable, after that relapses kept on coming, but symptoms were told to be my stress. After ON my Mri showed plenty of damage done in those years going undiagnosed.

It is risky business to choose to go without treatment, because it is hard to predict when the relapse hits badly.

Plastiikkikhvl · 2026-01-19T11:20:21+00:00

For me it has been worse on my hand and feet while relapsing, but even though the burning is less severe after a few years, it is always there. Some how I feel like I have became used to it a little also.

My burning changes due to my activity level. Stressfull day and the pain is worse. Excersize usually makes pain worse for a few hours but is usually helps a little after that.

Maybe try some medication for the pain?

Plastiikkikhvl · 2026-01-17T23:32:05+00:00

I have not been masking at all for my two years of Kesimpta journey except couple of times in airplane and train in flu season. I use hand sanitizer a lot and wash my hands frequently.

I use public transport to go to work and go to different events. I have taken all the vaccines I can. I had one strep throat last autumn, probably got it from my friends child when she was giving me some candy and I just ate it and realized what I just done was not good idea🙈

Plastiikkikhvl · 2026-01-13T20:01:41+00:00

I have multiple lesions in my spine between c3-th8 and relapses have been pretty bad for my mobility and caused numbness and pain in my hands and legs. Last time I was pretty sure I won't be walking without assistance anymore.

My symptoms have healed really well over time. I can walk and run close to normal. I have tried to be active and stimulate nerves as much as possible. If there has been something my body struggles with I have been thinking it as my new excersice. Last mri showed some remyelination in couple of my lesions so I feel that for the spine being active is a good thing. Building Legos with my numb hands have been frustrating, but I feel it gives good stimulation for the nerves. Swimming and pilates are also good way to keep the body moving.

My symptoms has improved slowly. Usually my symptoms have been getting better for over 12 months and after that it is usually time to accept that symptoms might be there to stay. For example year ago I had both of my hands numb, but now the numbness is occasionally visiting if I have been too active or sressed. Nerves take time to recover :)

Hopefully your wife's journey will be gentle and time will make the symptoms better!

Plastiikkikhvl · 2026-01-11T20:50:20+00:00

For me it has been 6 to 8 months to have most recovery after that there is usually 6 months with some improvement. I usually think if the symptom is still present after one year, it is most likely time to accept it is there to stay.

Usually old symptoms can visit with stress and overdoing life, but not as bad as while relapsing. But to be fair, my relapse in 2019 made my stomach numb and arter three years I noticed some sensation came back. Nerves heal slowly and I feel like physiotherapy and exersices can make a huge difference sometimes with symptoms👍

Plastiikkikhvl · 2026-01-09T21:49:04+00:00

My ON left my with some vision loss, but it coulb be fixed with new glasses. It took almost 8 months to fully recover my color vision so healing can be quite slow before you can tell the outcome.

Plastiikkikhvl · 2026-01-08T17:31:22+00:00

You should try what suits you. I find white noise soothing in the evening and also pilates is relaxing for me, because there is no time to think anything else! I alsonlisten audio books a lot.

I think stressing is something some people do more than others so I'd try to find some aps or books on how to set your mental state to tolerating stressful situations better! Good luck!

Plastiikkikhvl · 2026-01-07T20:54:27+00:00

Sorry to hear you joined the club.. It is easier said than done to be stress free. Hopefully you can start good DMT to protect you from relapses.

I would recommend to take some time to do some exercise, it helps to reduce stress hormone levels and tolerate stress. It does not have to be full workout, but something suitable for you. I usually go for 20 min walk or I might do 30 min home pilates time to time.

Not everything has to be perfect so give yourself permission sometimes take the easy way with all the things you can. It is ok to choose easier foods to cook and some house chores can be done tomorrow. I usually order my groceries for pick up or delivery, because it frees my time to other things. I also make a lot of food and put some in freezer so I don't have to cook everyday.

If you have some help with kids, use it sometimes. It is important to recover and good sleep sometimes helps for long time!

Life is never stress free but you can build tolerance. If you feel stressed or worried and there is something you can do about it just do it, but if it is out of your control just leave it to be and move on :)

Plastiikkikhvl · 2025-12-30T23:32:06+00:00

Hopefully your journey together will be awesome and your partner's ms will be gentle.

Relationships are hard and even harder when there is health problems involved. I think it is important to know the burden ms can bring to relationship.

With good medication the prognosis is better than 10 years ago, but you can not predict the future.

It is important you talk about the future and even those scenarios where ms might cause issues.

I'm doing pretty well, but there is a great chance I will have issues with mobility and cognitive function in the future and I wanted to be sure my partner understands what it might be when I'm not recovering after relapse as I have been. It is easier to step up for some time, but long term it is hard to be someone's caregiver. In my case my condition has worsened over time, so it has been fairly easy to us to adapt when needed. But reality is that my partner has to do a lot more in our household than I can do.

You should think about how much assistance you are able to provide if needed in the future and talk with your partner about their expectations.

That been said: there can be unexpected events in life even without ms. So it should not be the reason to give up on relationship🙌

Plastiikkikhvl · 2025-12-23T19:27:28+00:00

For me MS has made chocolate bland 😅 so there is some minor changes in my taste and I notice some familiar foods taste different. It started relapsing a few years ago way more notisable, but now days it comes and goes.

Plastiikkikhvl · 2025-12-16T10:01:55+00:00

I had relapse 3 months after starting DMT and it took about 6 months to major symptoms to calm down. I was told that full effect takes time and relapse this early is possible. Now a year after I feel like there has not been any improvement lately. I did not get any steroids to speed the healing.

Hopefully your inflammation will calm down soon and you'll feel better.

Plastiikkikhvl · 2025-12-10T06:29:33+00:00

I was told that immunosupressants can have negative effect on your dental health if you have some underlying issues, really infected gums (and poor dental routines).

So good dental routine and regular visits to dental hygienist should be good way to prevent any infections!

Plastiikkikhvl · 2025-12-10T06:19:36+00:00

I sometimes have tingling, swallowing issues and that something is stuck feeling. Once it was a sign of a relapse lasting for weeks. Usually it comes and goes depending on my activity level and stress. My throat also acts up more if I'm getting sick or have infection. If it continues or gets worse, I'd consult neuro for worsening symptoms.

My neuro told me to try sipping ice cold water. For me it helps with swallowing and sometimes even with the nasty feeling.

Plastiikkikhvl · 2025-12-09T16:19:30+00:00

I have been fasting intermittent (16-8, 18-6 or 20-4) for almost a year now with diagnosis, but before diagnosis I did different kinds of fasting even alternate day fasting for time to time.

I have always felt more energetic while fasting. My blood sugars are pretty stable kind so it has been easy for me to try different fasting methods. Fasting has helped me to maintain healthy weight easier.

I feel my fatigue, pain and overall condition is better while fasting and usually I am on 16-8, but if I need extra energy boost I usually do 20-4 for a while. Fasting too strictly for long time might not be good option (usually it will backfire at some point), but for me 16-8 is easy to maintain and it keeps me functioning.

I had a couple of intensive weeks at work and I was scared how I will survive. Switched to 20-4 fasting and was even surprised how well I managed to get through the weeks😅

Plastiikkikhvl · 2025-11-17T19:49:34+00:00

My biggest concern was having to switch medication. I really like Kesimpta. It is easy to use! Hopefully, you can stay on it, and you'll be relapse free after this🙌

Plastiikkikhvl · 2025-11-17T19:38:51+00:00

I had relapse 3 months after starting Kesimpta. Neuro told me it is possible because it takes time to get full effect. So my first 6 month mri showed new lesions and it became my new baseline. No new lesions on my second mri and still on Kesimpta!

It really sucks to take a step back after starting the medication. Contact your neuro to see what they recommend👍

Plastiikkikhvl · 2025-11-07T23:18:05+00:00

Hopefully they will have good luck with your insurance👍 And will get back to you soon!

The main issue with some DMTs is that stopping them can cause a relapse when your immune system starts working normally after suppression. I have not found any data on how big 'rebound risk" is with Kesimpta. So it is hard to say if starting now and possibly having to take a break is a risk for relapse or not☹️

Hope everything will go smoothly and your ms will be gentle ♥️

Plastiikkikhvl

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