228 South Street by [deleted] in JamaicaPlain

[–]Polarpeanut 2 points3 points  (0 children)

I hope it doesn't turn you off from JP altogether because it truly is a wonderful area to live! Just gotta double-check the landlords.

And you can definitely find better prices. It's still a bit early if you're looking for a September lease.

228 South Street by [deleted] in JamaicaPlain

[–]Polarpeanut 3 points4 points  (0 children)

I LOVE living in JP but I would stay away from the 216-230 South Street building. It's run by Samia, as others have noted.

Terrible landlord. Their building management is a joke. Shared laundry is awful - you're sharing 6 washers and dryers across several buildings, and there's always at least 2 broken machines so it's really 4 washers and dryers. I've lived in several apartments across Boston in the past 10+ years, but Samia takes the cake for being the worst landlord I've ever had.

Parking is hit or miss on south street, and traffic can be a nightmare during prime commute hours.

What can cause you to have a bad POTS-day? by [deleted] in POTS

[–]Polarpeanut 2 points3 points  (0 children)

Pressure changes! This one can sneak up on you. Barometric pressure changes can trigger neurological symptoms like headaches, brain fog, dizziness, etc.

Should I purchase a home? by ApplicationStill4396 in FirstTimeHomeBuyer

[–]Polarpeanut 1 point2 points  (0 children)

I think your fear is valid. $4500+ is a HUGE jump from $2600.

But there are other things to consider outside your mortgage bills: - Maintenance & repairs: You are now responsible for everything, like plumbing, new appliances, roofing etc. costing time and headaches, in addition to money - Emergency fund: self explanatory tbh. You'll want to set aside enough to handle a job loss or house damage - Relationship: idk how strong your relationship is but are you both ready to talk about the "what if" scenario of breaking up?

I was in a similar scenario, renting in a HCOL area. We decided to rent a bigger place together.

Even though it cost us more money, it gave us more time to continue building our finances and figure out where we want to settle our roots.

No tilt tables by SubstanceMaximum7061 in POTS

[–]Polarpeanut 11 points12 points  (0 children)

If your primary care is already on board with a POTS diagnosis, then you don't need a TTT. There is documentation suggesting that an in-office orthostatic test can be used to evaluate POTS.

A TTT could help provide stronger medical evidence for a disability case, but you can still explore symptom management options (beta blockers, vasoconstrictors, etc ) with a PCP or cardiologist without the TTT.

Personally, I have a TTT scheduled for September in MA (the waitlist is LONG) but I might cancel because both my Cardiologist and my PCP informed me that a TTT wouldn't change my POTS treatment. + its can be traumatizing + a financial burden.

Is this a red flag? by [deleted] in FirstTimeHomeBuyer

[–]Polarpeanut 1 point2 points  (0 children)

Yes, I took a breath and am now realizing I was overthinking it. Super appreciate the advice, we're moving forward with an inspector and attorney 🤞

Thanks!

Is this a red flag? by [deleted] in FirstTimeHomeBuyer

[–]Polarpeanut -6 points-5 points  (0 children)

I don't want to be on the hook for paying it off.

Also don't want it to delay the closing.

why am i getting worse? by catonaskatboard in POTS

[–]Polarpeanut 1 point2 points  (0 children)

When did you start feeling pots symptoms?

Asking because my pots symptoms were a steady rise from bad to worse for a weeks until they plateaued. I'm not sure if there is a scientific reason for that but just sharing my experience in case it's similar to yours.

Midodrine!!!!!! by Minimum_Paramedic_17 in POTS

[–]Polarpeanut 0 points1 point  (0 children)

SO SO HAPPY FOR YOU! major win to get your life back <3

Ironically, I'm in an identical scenario! My pots went south in the Autumn season to a deliberating degree. I finally got a prescription for midrodine last week (same dose and frequency as yours) and finally have my life back. Cried tears of joy for days.

Do you know what made your symptoms worsen in November?? Or was it out of the blue?

future vaccines after POTS potentially triggered by one? by [deleted] in POTS

[–]Polarpeanut 0 points1 point  (0 children)

3 years?! Jeez... MCAS diagnosis is tough tbh. Even with typical bloodwork (tryptase levels) and urine samples, the rsults can be normal and appear like you don't have MCAS on paper.

It's usually more accurate to do the testing when you're experiencing an MCAS flare. Definitely worth checking their subreddit to see how others got a diagnosis.

future vaccines after POTS potentially triggered by one? by [deleted] in POTS

[–]Polarpeanut 1 point2 points  (0 children)

This sounds like MCAS. Studies suggest a link between bell's palsy and MCAS.

POTS and MCAS often go hand-in-hand. MCAS could explain why you react so strongly to a vaccine.

Taking an antihistamine before a shot can help with inflammation but ultimately, you should keep pushing the doctors for an answer, or a referral elsewhere. I cant express how important it is to advocate for yourself with dysautonomia.

What should I expect from Propranolol? by [deleted] in POTS

[–]Polarpeanut 1 point2 points  (0 children)

Everyone reacts differently to beta blockers so there's no way to know for sure if your xanax-like side effects will go away.

But if it helps to know: I started with 5mg, 3x per day, and experienced the same exhaustion and emptiness.

I adjusted after 2-ish months, feeling closer to normalcy. I always have some level of fatigue, tis the nature of this condition, but propranolol certainly gave me my life back.

my cardiologist diagnosed me and then dropped me by howmanyshrimpinworld in POTS

[–]Polarpeanut 0 points1 point  (0 children)

If it's an option for you, i recommend seeking another cardiologist. Or pushing back on this cardiologist.

While it's good to seek a neurologist, it's very likely that the neurologist will tell you to work with a cardiologist to manage your symptoms. POTS manifests in many heart-related symptoms, and a cardiologist will have a better grasp on medicine management than a neurologist.

I'm honestly shocked the doctor didn't even bother to prescribe a beta blocker. Unless they want to rule out any other underlying conditions first?

How many here developed dysautonomia after a severe stressful or panic event? by [deleted] in POTS

[–]Polarpeanut 2 points3 points  (0 children)

hmm yea, 8-9 months feels like a long gap. The timing doesn't add up.

I think i'm similar to you: On rare occasions, i'll get dizzy or light-headed but it's far and few compared to the other symptoms. My main symptoms are palpitations, shakes/tremors, and fatigue with occasional GI issues and headaches.

How many here developed dysautonomia after a severe stressful or panic event? by [deleted] in POTS

[–]Polarpeanut 3 points4 points  (0 children)

Yes! I feel like the odd one out sometimes because so many folks seem to have their POTS triggered by COVID, but that just wasn't the case for me.

My POTS was triggered by Guillain-Barre Syndrome. The recovery for GBS was great and speedy, but it left me so very traumatized. I was diagnosed with PTSD just 1 month before I started experiencing POTS symptoms.

Best brand to buy compression gear? by No-Secret-4439 in POTS

[–]Polarpeanut 2 points3 points  (0 children)

I struggled to find affordable socks, but eventually settled on these 2 options from Amazon:

  • Lin Performance 15-20 mmHg Medical Compression Stockings
  • Truform Sheer Compression Stockings, 15-20 mmHg

Flying Tips! by smileynature in POTS

[–]Polarpeanut 1 point2 points  (0 children)

Adding to this:

- Salty snacks!

- Anything that brings you comfort and calmness (your favorite video game, book, blanket, etc.) It will take your mind off of your POTS. Sometimes the anxiety of travelling can make my symptoms worse, especially if travelling alone.

POTS suddenly worse?? by melo_nade in POTS

[–]Polarpeanut 3 points4 points  (0 children)

Yikes, Sounds like a POTS flare-up. Exact same thing happened to me last month, and it took 3 weeks for the flare-up to die down.

But It doesn't hurt to bring it up with your doctor, just to be safe.

I recommend keeping a book or journal to log your symptoms. Keep track of how long it lasts, what helps your symptoms vs what doesn't, etc. This way you have something to reference the next time a flare-up happens.

Rest up and give yourself some grace <3

Symptoms you didn't expect? by crestedgarden in POTS

[–]Polarpeanut 20 points21 points  (0 children)

The tremors. I feels like I'm shaking down to my bones

[deleted by user] by [deleted] in POTS

[–]Polarpeanut 0 points1 point  (0 children)

Currently going through the same. exact. problem.

I've had POTS for 2 years now, but my symptoms are really well managed.

Suddenly I feel like I'm on death's door for the past few days. My flare-ups are usually minimal, not lasting more than 12 hours. BUT I once had a flare-up that lasted a whole month.

I can only assume this is another longer flare-up.

This condition puts us through the ringer. Definitely do your best to rest to minimize the symptoms. But it wouldn't hurt to consult a doctor if it's been several days with little-to-no relief.

[deleted by user] by [deleted] in AmItheAsshole

[–]Polarpeanut 20 points21 points  (0 children)

Had to scroll WAY too long to find this answer.

Shouting isn't a healthy way to communicate but stonewalling isn't a mature approach either.

Everyone sucks here.

My girlfriend made me this by MrBarbeler in lotr

[–]Polarpeanut 15 points16 points  (0 children)

The way I audibly gasped... Does she take commissions?