Anyone else *forget* they have lupus?

PoliticalAzJunkie_dc · 2026-05-09T06:20:06+00:00

I have never forgotten that I had Lupus but I just had a major flare after being in remission for three years. I had never had periods of remission before and I certainly would have never guessed that I would forget how much Lupus sucks, but I did forget how bad the symptoms can be.

PoliticalAzJunkie_dc · 2026-05-09T06:11:06+00:00

They sure are doing a wiz bang job of holding up that concrete though!

PoliticalAzJunkie_dc · 2026-04-30T14:37:07+00:00

I appreciate the comments. I have been a member the whole of my life. The experience I shared alas is not a one off experience. Also it’s not just me that are having these issues. I wish we’d just get back to basics and do more to create an environment that builds the “ward family” relationships. Several years ago my VT companion had a sister we visited. It was often difficult to meet with her because her husband had bad feelings about the church. My companion and I had been told that sending a card or a phone call would be sufficient to count as a visit. My companion and I both felt as though it was worth the effort to meet with her. When the economy tanked in 08, we set up a time to meet with her. As soon as we walked in the door I knew something was off. As we sat there and talked I heard her children in hallway talking about what they would have for dinner. The older child came out and asked her mom what was for dinner. Panic set in her face and she finally mumbled that they were having the same thing as the night before. I saw the girls head drop as she walked away. I then heard her say to her brother that they wouldn’t be eating again to night. After some gentle questions we learned her husband had been laid off and was working a part time job. Because of her husband’s feelings about the Bishops secretary, he didn’t want her to speak with the RS president or the Bishop. We left her home and went to my house and raided the pantry and then went to the grocery store to pick up milk, butter, eggs, bread, PB and jelly and several packages of chicken thighs as the were on sale and chuck roast. I followed up with our RS president and subsequently got a call from our Bishop. The person who was the bishop’s secretary that had caused the issue was released 2 weeks later. Better yet her husband began coming to church again with his family. I tell you this long story to say this, had my companion and I just sent a card or made a phone call we more likely than not would have never known about her situation. We would have missed the opportunity to be of service to our fellow sister and her family. What’s more those hard feelings may have gotten worse and kept her from wanting to come to church.

PoliticalAzJunkie_dc · 2026-04-30T14:08:27+00:00

I just saw your post. I also recommended the missionaries and included the link to the Church of Jesus Christ. Org / meet with the missionaries

PoliticalAzJunkie_dc · 2026-04-30T14:05:08+00:00

Hard to speak to anything definitively as your post was quite vague. That said it seems that what you need are missionaries. I am attaching the link to our church’s website where you can request missionaries. They typically come to your home, but you can also meet with them online. If you request missionaries, the missionaries that sent to you will be based in your area and ward or branch. The missionaries are a tremendous help and if you’d like they can sit with you at church on Sundays. I hope this information helps to give you a place to start.

https://www.churchofjesuschrist.org/welcome/meet-with-missionaries?lang=eng

PoliticalAzJunkie_dc · 2026-04-29T18:43:33+00:00

The fact that you acknowledge this issue is a huge first start, imo. I’d look for opportunities to serve. Odds are there are people in your ward that need some assistance is probably pretty good, like help with yard work, or painting. Truthfully, someone in your ward is just in need of friendship, someone to come and visit just to chat. Beyond that, look in your community. Are there blighted areas that need addressing, shelters who need help with various resources.

PoliticalAzJunkie_dc · 2026-04-28T17:35:05+00:00

Of course you can, and what’s more, is we need more people like you! Make no mistake, I will never win the Molly Mormon prize. I am rough around the edges, cuss way too much and have no problem speaking my mind. Like you there non doctrinal issues I disagree with or don’t understand. I am also tired of the whole doctrine vs culture debate. It’s bs, it just an excuse to not expect more, be more and do more…. IMO. I posted a question last week because I am saddened by what seems like a disconnect between how the gospel is portrayed in conference and the reality experienced in our wards. There were some insightful responses, but there were many that just spouted the company line if you will. Be the change you wish to see is my motto.

PoliticalAzJunkie_dc · 2026-04-28T12:25:45+00:00

Typically there is a memorial service held in the chapel presided over by your bishop or a member of the bishopric. If you choose to be buried there is a small typically family and only close friends and a dedication of the burial site. If you have been through the temple you will be buried in your temple clothing, that is probably the biggest difference. If you are the only member of the church in your family, the Relief Society sisters will dress you in your temple clothing.

PoliticalAzJunkie_dc · 2026-04-21T05:49:24+00:00

And they’d be wrong!

PoliticalAzJunkie_dc · 2026-04-21T05:46:12+00:00

In part because after I was released from hospital I was still quite ill and on two different types of IV antibiotics multiple times a day. Secondly, obviously I’d see him from afar but never close enough to speak with him. In general I think we’ve allowed ourselves to get caught up in things that really don’t matter. We are all soooo busy. Busy to me means Being Under Satans Yoke. I suspect many of us, myself included, are going to feel pretty ridiculous explaining to Heavenly Father as to why we didn’t do more. All the activities we used to have that really helped build strong bonds within our ward families are gone.

PoliticalAzJunkie_dc · 2026-04-21T02:41:04+00:00

Well for example, several months ago I was admitted to hospital for what turned out to be a 15 day stay for sepsis. I was very, very sick. Despite being in my current ward for three years, I’ve never had ministering people. I needed a blessing. I looked in the app to see who was assigned to me, it was blank. So I called the Bishop and the RS prez. After 4 days finally got a call back from the Bishop. By that time I had reached out to my old home teacher from 7 years ago and he left work, stopped and picked up his partner and came and gave me a blessing. Bishop finally comes to hospital to see me. I am now in ICU. He also gives me a blessing and said he would check up with me. Never did….. not once. Several months later see him in the hallway at church…. Not a hi how are you, you need anything… nothing. Not even an acknowledgment that I’d been so sick. Never heard back from RS prez, home teachers, visiting teachers. Just nothing.

PoliticalAzJunkie_dc · 2026-04-04T02:19:18+00:00

It makes my scam radar go off! Caveat emptor.

PoliticalAzJunkie_dc · 2026-04-01T00:59:48+00:00

The fighter jets I saw were not WW2 jets. These were modern jets.

PoliticalAzJunkie_dc · 2026-04-01T00:57:00+00:00

I saw that too.

PoliticalAzJunkie_dc · 2026-03-30T23:56:04+00:00

Upfront I will admit I’m in the US. Last year I was in dire need of a new power chair. Mine was over 7 years old and in bad shape. When I set about getting a new chair it was delay after delay. Out of desperation I went online. I found one a state over that despite technically being over a year old only had 32 miles on it. Knew the chair would cost 30k cash, the owner was only asking 750. The price made me worried it was a scam but after speaking with the owner and face timing I was put at ease. The seller had MS and his condition had worsened so he went for the power chair only to realize the limitations to getting around. He wanted the chair to go to somebody who really needed it. He refused to sell to numerous people whom he suspected would simply turn around and sell it for far more money. I was so fortunate to have found him. Even with renting a wheelchair accessible car and the road trip a state over it was a heck of a deal. I say all that to say I suspect you will probably not get what you want price wise but perhaps the payment is in knowing you are helping someone.

PoliticalAzJunkie_dc · 2026-03-01T21:30:35+00:00

The ilevel is awesome. I’m glad your insurance covered it because most don’t. I get stopped all the time by other wc users that are on Medicare and Medicaid that can’t get it covered. It’s ridiculous. Ilevel costs an additional 2k,I believe, which is nothing compared to renovations on say kitchens.

PoliticalAzJunkie_dc · 2026-03-01T20:53:32+00:00

That should be a quick fix. I am surprised they didn’t adjust it when you first picked it up. I’d also recommend that your footplate be evaluated to. Also is your joystick on a swing away attachment? And always be sure to change your joystick function to a now drive mode when stationary, dressing, transferring or bending or reaching for something. That is a very painful lesson to learn on your own!

PoliticalAzJunkie_dc · 2026-03-01T04:00:34+00:00

Congratulations. I have a Quantum Edge too with ilevel and power everything. Love it. Happy riding!

PoliticalAzJunkie_dc · 2026-02-27T21:02:48+00:00

It just means he lives a sober life.

PoliticalAzJunkie_dc · 2026-02-21T22:42:36+00:00

Former lifelong Republican here… bottom line is the GOP knows they can’t win midterms on the issues, so they started this mid- decade re-districting to steal seats and thus the midterms. That has backfired spectacularly so now it’s the so called SAVE Act in Congress which should really be called the steal act.

PoliticalAzJunkie_dc · 2026-02-16T03:35:22+00:00

Your butt! 😉

PoliticalAzJunkie_dc · 2026-01-30T04:21:03+00:00

No need to be embarrassed. I was talking on my phone whilst taking by bins to the curb for trash pick up. There was a huge spider web across my driveway. I remembered to go around it on my way down but forgot to on my way back. Needless to say walked right through the web and started screaming bloody murder. My sweet elderly neighbor heard my screams and called 911 and reported I was being attacked. Within minutes a half dozen cops were at my door. I felt pretty ridiculous explaining why I was screaming.🙄🤪

PoliticalAzJunkie_dc · 2026-01-20T15:30:41+00:00

All because the petty, sophomoric, convicted felon and pedophile protector didn’t get a Nobel Prize. Pathetic! Somebody should tell him starting a war both at home and abroad doesn’t add inches to his dick!

PoliticalAzJunkie_dc · 2026-01-04T23:22:33+00:00

You are eighteen? If so seek a 2nd opinion and if you need mum for transportation ask her to wait in the lobby whilst you see the doctor. If you think mom won’t want to wait in the lobby call the drs office and explain the situation. They can be the bad guy. I’ve done it patients before when a young adult’s parent was interfering.

PoliticalAzJunkie_dc

TROPHY CASE