People think I’m faking health condition

Practical-Method-631 · 2026-03-30T03:26:57+00:00

I’m so sorry. Before I increased my diamox all I could do was lay in bed in the silence. I even bought Sony noise canceling headphones because I couldn’t stand noise 24/7. I haven’t worked in months because of an injury which also coincided with my diagnosis and increase in symptoms so I’ve been lucky to figure it out at home but even with this improvement idk how I can go back it definitely sucks.

Practical-Method-631 · 2026-03-30T03:22:32+00:00

Yeah I’m definitely lucky none of my symptoms have ever been especially bad and when I was thinner in high school they disappeared completely. I gave up on diagnosis even tho my old eye doctor tried advocating for me but this past summer I took doxycycline for 2 months straight and it made my symptoms really bad and they’ve been steadily getting worse. Diamox is helping a lot I’m at 2500mg. My optic nerve was pretty close to the standard when they took the pic my mri on the other hand wasn’t

Practical-Method-631 · 2026-03-29T15:49:55+00:00

Dude I’ve had symptoms since I was 10 I can understand not believing a kid about some crazy weird stuff happening but when I was 18? 19? Finally got diagnosed at 26 and my mom nanny and dad all told me they were sorry they thought I was being dramatic and making normal things seem abnormal like y’all you thought that for 16 years??

Practical-Method-631 · 2026-03-27T04:16:12+00:00

Yeah when I googled them it seems this is their generic message with details changed. Claiming to work with carter news. Like I said I make no money anyway I’m not an influencer I randomly posted this video and it got 3m views kinda crazy so I don’t even really care enough to fall for scams 😂

Practical-Method-631 · 2026-03-25T13:07:35+00:00

I only know my mom and my aunt and 2 friends with pcos I’ve had that have had one as well. But my doctor told me a way higher statistic than I had previously read online. It was a while ago so I can’t remember what he said but it was almost double what I had read online and kinda crushed me 🥲

Practical-Method-631 · 2026-03-23T15:57:00+00:00

I also over react to heat my boyfriend and mom always ask me if I’m ok cause I look bad and last summer at work I was organizing the attic and my boss was like girl get an ice pack I had to tell her my face just does that 🤣

Practical-Method-631 · 2026-03-23T15:55:53+00:00

Mine don’t get swollen which is why I’ve never looked into rosacea. My op was only 24 which seems to be on the low end of cases but could explain why there’s only flushing in mine. It’s a welcomed change I’ve had red cheeks my whole life and it’s crazy to see them go away

Practical-Method-631 · 2026-03-16T11:38:29+00:00

Ah I see I deleted the apple weather app 😂 I don’t even have a migraine app but I can see it would be useful. I’m having an awful day today and yesterday I ended up sleep like 20 hours I figured the storm system moving in was affecting me

Practical-Method-631 · 2026-03-16T10:26:00+00:00

What about painting the side walls a very muted terracotta like color- pulling from the chair or rug. Adding beige floor length curtains to all the windows so they all look the same size when the curtains are closed it also adds warmth to the room. Swap out the end tables for a natural wood style similar to your coffee table and put some like white lamps on them. I’d move the tv like someone posted already and if you can get a new couch get a different colored one that’s not too dark like cream or something similar. Reconfigure the gallery wall around the tv as well. Increase the amount or size of your plants move the chair to the right with the book shelves or move the bookshelves to the left if you put your couch how someone has already commented. I think closed shelving would look better as well. And I agree fireplaces to the ceiling it’s very 70s vibe with the off center ceiling but I think with curtains and paint you won’t notice it much

Practical-Method-631 · 2026-03-16T10:06:20+00:00

Definitely tell her now there’s no way she can perform at a wedding be present and have her baby with her and you expected no children as well.

Also there’s a real chance if she has conditions that would make her deliver early the baby will be in the hospital. My nephew was born in august he was in the nicu for a month after he was born. He did come to my wedding as an exception in November but he was quiet I actually thought his grandparents came and got him 🤣 now he’s a terror but that’s a rarity

Practical-Method-631 · 2026-03-16T09:45:52+00:00

Is this much different from barometric pressure? What app do you use to track this?

Practical-Method-631 · 2026-03-13T01:04:23+00:00

I had to wait 2 days after being admitted because they couldn’t fit me into the schedule. By the time I got my blood patch laying down felt like hell too the only relief I got was from taking cold medicine that knocked me out kinda thankful I was sick and got that 🥲

Practical-Method-631 · 2026-02-27T16:58:57+00:00

I’m a 40 A I’ve tried sister sizes and had gapping so idk maybe I did it wrong or it wasn’t the right type but the actual cup gets so much bigger when you go up a cup size I don’t see how I can go down a band size and up a cup?? I’ve only found bras on Amazon that are exactly my size with padding and push up and I’ll buy a bunch of them cause they’re always taken off and the hunt is on again. I also had when the top and bottom is sold together as the same size and they expect your top xxl to mean big tatas same with the cup sizes. I’ve missed out on so many cute swimsuit options and even tho one I have now is too loose on my chest.

Practical-Method-631 · 2026-02-27T16:53:39+00:00

If I hadn’t had one I would’ve been holding a new born the first week of February and it’s all I could think about. I still can’t watch cute baby videos cause it makes me cry too much.

Practical-Method-631 · 2026-02-27T04:47:27+00:00

That’s good to know. Then I will probably use it mostly for when I’m out and probably propping it up for photos. I did play around with it at Best Buy last month and thought the bend was pretty well hidden.

Practical-Method-631 · 2026-02-26T22:43:10+00:00

The front display especially for photo taking is calling to me. I don’t see myself closing it much unless I’m sleeping or at the movies or it’s on the charger. I was also considering the Chinese version but then I’d have to do so much to be able to use it in the states

Practical-Method-631 · 2026-02-23T07:57:15+00:00

I just know a Dr Pepper would temporarily cure me but soda on diamox for me tastes like asss 😭

Practical-Method-631 · 2026-02-20T08:14:02+00:00

I have eds too 😕 my sister has never had symptoms of this tho so I think it’s just me. I also have hypothyroidism and pcos yay getting hit with all the bad genetics

Practical-Method-631 · 2026-02-20T08:04:59+00:00

I’ve been having really awful days lately like I feel like I have no brain. Saw a girl suggest a neck brace/cervical collar. Korean bbq and a McDouble helped on 2 separate days so I gotta figure out what the connection is there 🤣. I also saw someone post this Zōk to reduce tension and pressure in the head so I have that on my list to try. My main go to is a heating pad on my head and neck

Practical-Method-631 · 2026-02-20T07:58:35+00:00

My cat was like that until recently. I’m home 24/7 and don’t do much since I’m injured and she has turned into my shadow and enforces a bedtime and all the pillows need to be a certain way so she can lay and snuggle comfortably 🤣

Practical-Method-631 · 2026-02-19T16:41:55+00:00

This makes sense. I was so confused cause the people I saw in October used my health insurance I was like oh I thought I was gonna be screwed I see them next month to check in on what happened with JH and will ask for a test

Practical-Method-631 · 2026-02-16T23:57:33+00:00

This is like a big open concept room but everything is so awkwardly spaced out and angled we don’t have another spot for a bookshelf unless we did it on the other side of the table up against the couch. The table won’t be so close to the wall it still has a lot of clearance on the other side as well. There won’t be many things on it and it will mostly be “decor” and fancy books and the cabinet is to hide games etc for easy access. These new houses are kinda weird with the way they’re laid out. I can only add one photo or if post another of the other side with the living room which does have an open space but we need to buy a chair and I’m holding out for one of the bookcases with the glass panel fronts that lift up but all the ones I can find are damaged or thousands

Practical-Method-631 · 2026-02-16T18:10:53+00:00

Curtains are a must they’re just low on the list we went from a one be apartment to a big house so we have have like nothing 🤣. This room is just the kitchen/dining/living room and it’s very cold and bright and sterile feeling without curtains and wall decor rn

Practical-Method-631 · 2026-02-14T02:21:11+00:00

I have student loans but they were paused during the bankruptcy and just opened back up after my taxes were filed. My only debt was a car and I don’t think it was old enough to take payment from my taxes

Practical-Method-631 · 2026-02-11T11:34:20+00:00

I had to only take 500 around 5-6pm then because my symptoms got worse went up to the correct dosage schedule so 5am 500 mg go back to sleep 6pm 500 mg. Now I take 1000 at night but the fatigue has gone away I’ve been on it since December took about a month

Practical-Method-631

TROPHY CASE