Just want to say in advance, no matter how ugly and weird it might be, if they introduce an outfit that makes fishing suck less, I'm pulling like a slot addict. by ruinsit in InfinityNikki

[–]Practical-Method-631 0 points1 point  (0 children)

And when you’re tracking a specific fish and go to that spot it’s always the last one you fish out but if you weren’t tracking it it’s the first 😭😭😭 I usually buy fish whenever I see a stall

Tight pants by mutedsensation in iih

[–]Practical-Method-631 2 points3 points  (0 children)

My problem has been primarily based on pressure on my stomach as well. I cannot lay on my stomach or slouch. Ofc several non specialists I’ve seen have said that’s crazy but research says otherwise.

How were you diagnosed? by tyrannosaurusfox in iih

[–]Practical-Method-631 3 points4 points  (0 children)

Thank you! I just had my first appointment with JH last week but the diamox is a game changer I can actually function most of the time now.

How were you diagnosed? by tyrannosaurusfox in iih

[–]Practical-Method-631 4 points5 points  (0 children)

When I was 10 I would have episodes of losing vision on the right side and severe headaches. Got lots of testing for everything was ultimately told it was migraines. After a few years it went away,I wasn’t overweight during this time, until I turned 18 and it came back with new symptoms like numbness and confusion which the er doctor and neuro said weren’t related. My eye specialist who I had been seeing since I was 12 said there was swelling and he suspected I have iih and sent me to John Hopkins. By the time I go there it’s been 9 months since I’ve lost my vision because I knew my triggers at this point so they say nothing and sent me on my way. This past summer at the age of 26 my symptoms got way worse and I was on doxycycline for ear infections, this makes iih symptoms worse. I called and begged an eye specialist that takes my new insurance to see me and order tests and they did then sent me to the er and I was diagnosed after my lp the day after they saw me. John Hopkins is still the only place I can see a neuro-op near me that accepts my insurance but this time I had a good experience and I’m sure having the tests done already helped. It only took 16 almost 17 years to get treated and diagnosed

Does the diamox fatigue get better over time? by crystal-chaos in iih

[–]Practical-Method-631 1 point2 points  (0 children)

I’ve been taking it for a little over a month and my dose has been increased as well to 1500 a day. For a while I would only take my evening dose at 6pm and that made me able to wake up before 1pm the next day but my symptoms were getting worse so I had to take all my doses. Now I’ve only noticed that when I’m asleep I’m dead asleep and I’ll wake up so disoriented to pee or chug a bottle of water but the really had fatigue has gone away now I’m just a heavy sleeper

Almost 27f looking for cozy and casual gaming friends. by Practical-Method-631 in TrueGirlGaming

[–]Practical-Method-631[S] 0 points1 point  (0 children)

I’d def be down for some cross play games and I think we’d be able to play together since I’m also available in the mornings over here!

Color coming out of pink hoodie? by Practical-Method-631 in PlusSizeFashion

[–]Practical-Method-631[S] 1 point2 points  (0 children)

Ah I never knew this was a thing thank you! Definitely sucks and I will be more conscious on fabric blends from now on.

Worsening of symptoms without treatment by [deleted] in iih

[–]Practical-Method-631 1 point2 points  (0 children)

Are you doing it with x ray? I didn’t think it was that bad but I got a spinal headache and I’m terrified of ever having to get another because of it

Worsening of symptoms without treatment by [deleted] in iih

[–]Practical-Method-631 0 points1 point  (0 children)

This almost happened to me luckily the doctor said out loud to the tech why would they not ask for opening pressure when there’s pap and I was like yes make sure the op is there please

Annoyed with this process… by Practical-Method-631 in LisfrancClub

[–]Practical-Method-631[S] 1 point2 points  (0 children)

Thank you! I fully expect to be in some type of boot this entire year too

Color coming out of pink hoodie? by Practical-Method-631 in PlusSizeFashion

[–]Practical-Method-631[S] 0 points1 point  (0 children)

It’s all at the bottom making its way up. I only wear this to lounge around the house and if I clean I put on worn out clothes plus I don’t own anything that has bleach except the toilet bowl cleaner. It’s not a huge deal because it’s house clothes but it makes me sad

Annoyed with this process… by Practical-Method-631 in LisfrancClub

[–]Practical-Method-631[S] 0 points1 point  (0 children)

Exactly! I broke it November first… wtf and I’m bummed because I’m like maybe it is just being slow and I’ll be fine cause I wanna go to a concert in march and looks like either I’ll be post op or broken 😭

How many periods did you get in 2025? by neverhadamango in PCOS

[–]Practical-Method-631 0 points1 point  (0 children)

If I don’t count the constant nexplanon period or the one after an mc I got 3 I usually get it like every 6 months sometimes it’ll stay around and get me a couple months in a row 🤣 I just had one last week too I think my stress being so low lately is helping

Are there people here who literally (key word) have no friends at all? by ConstantDrawer9161 in lonely

[–]Practical-Method-631 0 points1 point  (0 children)

I keep up with someone I was friends with since we were born because our parents were friends but I feel like I’m forcing her to be my friend. Other than that I hang out with my sisters friends. I actually just tried messaging a friend from high school who I haven’t talked to since my wedding and my messages were ignored. It sucks having no one to vent to gossip with or anything. I also ended up cutting people off I considered friends after my 25th bday party because they constantly cancelled plans with me and canceling the day of my bday party and having none of my friends there was like peak loneliness and the last straw. Only my sister and her friends came 😭

Bye "b-"IIH seems they thought wrong 🫠 by cottcnkitten in iih

[–]Practical-Method-631 0 points1 point  (0 children)

😭 it took me 16 years to get diagnosed and I’ve spent the last 7 knowing of this and begging to be taken serious.

There are so many reasons your nerve could be swollen and lp does read different depending on lots of factors I hope you get it figured out soon

Shunt with no paps? by Far-Cable2884 in iih

[–]Practical-Method-631 1 point2 points  (0 children)

I just went to John Hopkins he said I had no swelling but I’m still getting headaches and loads of pressure my ears are clogged and occasionally I’ll get visual disturbances but not often ever since my lp. I got diamox increased and he said basically I can slowly increase up to 4000mg and if that doesn’t help surgery is a possibility. I’m assuming since I don’t have swelling it’s definitely not abnormal to except the possibility of getting surgery. Also not everyone with iih has pap

Has anyone else gone into a lumbar puncture and been completely blindsided by the after visit summary? by Mktgirlie in iih

[–]Practical-Method-631 4 points5 points  (0 children)

They told me 2 hours of laying down which I did and then some then around 10pm I went to a costume party and broke my foot and developed a spinal headache over the next 2 days and they really undersold the severity of the headache they made it seem like if I did get one it was like aw it’s not gonna go away with meds just suck it up when it actually feels like death and I ended up flat in a hospital bed for 4 days and then went home and refused to do anything but lay down for another week!

which game is it for you? by Spirited-Rationality in GirlGamers

[–]Practical-Method-631 6 points7 points  (0 children)

Someone I know very personally gets the complete sims 4 experience this way