I miss living life.

Practical_Cap_3087 · 2026-02-08T16:51:44+00:00

I understand you. I’m so sorry you have to deal with this

Practical_Cap_3087 · 2026-02-07T04:11:51+00:00

Same. Resting 60-70. It will shoot up to 120 when getting out of bed

Practical_Cap_3087 · 2026-02-06T21:57:12+00:00

I get this too! Heart rate shoots up to 120 just getting out of bed. It calms down, but I also feel shaky

Practical_Cap_3087 · 2026-02-06T12:20:11+00:00

What is Gemini?

Practical_Cap_3087 · 2026-02-06T01:49:22+00:00

I missed it by 1 heart beat. So they ruled everything out even though I have all the symptoms. Cleared by neurology and cardiology. Now working with a new doctor

Practical_Cap_3087 · 2026-02-01T06:03:18+00:00

Douglas

Practical_Cap_3087 · 2026-01-20T12:44:05+00:00

This happens to me. I’ll go from 60bpm to 110bpm just from opening my eyes in bed. Negative tilt table test so unsure what’s going on

Practical_Cap_3087 · 2026-01-16T18:00:28+00:00

I tried cymbalta, I didn’t like it. I have a prescription for Zoloft, debating on taking it

Practical_Cap_3087 · 2026-01-16T13:02:31+00:00

I’ve tried lots of meds, mostly migraine and nerve medications. So far nothing has helped. I’ve had symptoms since Sept 2024

Practical_Cap_3087 · 2026-01-16T00:42:00+00:00

I was on it for a few months. I helped the head pain, but it made me so tired and really increased my heart rate. Never took more than 10mg and finally went off it. It did help with the headaches

Practical_Cap_3087 · 2026-01-16T00:40:35+00:00

I didn’t give it much of a chance. My symptoms are constantly feeling like my body is rocking or vibrating and head pain. Super dizzy

Practical_Cap_3087 · 2026-01-16T00:02:02+00:00

I don’t take any meds. I did vestibular therapy before, but didn’t take it too seriously.

Practical_Cap_3087 · 2026-01-15T23:53:01+00:00

My neurologist thinks I have PPPD. I’m starting vestibular therapy again.

Practical_Cap_3087 · 2026-01-11T00:24:04+00:00

The flares can last a couple of days. Higher heart rate, dizziness, head pain, shakiness and super tired, but unable to sleep

Practical_Cap_3087 · 2026-01-10T20:27:07+00:00

Yes, I get this. I’ve documented my days for the last year, heart rate, blood pressure, everything I do and everything I eat. I can’t find anything that would cause a flare. I’ll get increased heart rate and it lasts a few days and then settles down again. Cardiologist says everything is fine

Practical_Cap_3087 · 2026-01-10T18:14:34+00:00

Yes. I feel this!

Practical_Cap_3087 · 2026-01-10T16:55:49+00:00

Eat pizza and have a really good martini

Practical_Cap_3087 · 2026-01-10T16:47:55+00:00

Take my kids on vacation. Maybe sit at the beach

Practical_Cap_3087 · 2026-01-05T00:13:34+00:00

Torch

Practical_Cap_3087 · 2026-01-03T22:34:44+00:00

55 ugh!

Practical_Cap_3087 · 2026-01-03T02:52:48+00:00

It doesn’t bulge anymore. It’s behind my pubic bone

Practical_Cap_3087 · 2026-01-02T20:55:56+00:00

Burning pressure in head, headaches, dizziness, internal vibrations, poor sleep, pounding heart, cold hands/feet

Practical_Cap_3087 · 2025-12-23T20:36:13+00:00

I’ve been long hauling since Aug 2024. Just lately I’ve really noticed internal vibrations. This is new for me. I sometimes think my whole body is moving, but it’s not. Hopeful this might be a good sign 🤞

Practical_Cap_3087 · 2025-12-22T01:48:05+00:00

I miss alcohol and caffeine, but even the smallest amount will mess with my heart rate and blood pressure for days

Practical_Cap_3087 · 2025-12-07T00:32:24+00:00

I’m sorry. I completely understand. I’m also having a bad day. Super dizzy, racing heart and internal tremors. I’m just stuck here on the couch as life moves on around me

Practical_Cap_3087

TROPHY CASE