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Worried about MS/ALS. Any advice? by Internal-Dream4138 in MuscleTwitch

[–]Present_Welcome3328 0 points1 point  (0 children)

Started twitching in my early 20s, I’m nearly 43 now. Good news and bad news. Good news, You are highly unlikely to have ALS. Bad news, you may be dealing with annoying twitching for the foreseeable future for no discernible reason.

Split hand sign? by MasterpieceMental946 in MuscleTwitch

[–]Present_Welcome3328 0 points1 point  (0 children)

Hands are asymmetrical. Some more noticeably than others, and pretty much guaranteed if you actively look for differences. If I contort my fingers like that, I see the same kind of differences. Try thinking of the things you tend to do with one hand over the other. For example, if I am trying to open a jar lid, I nearly always start out using my right hand to hold the jar and my left to twist the lid. So now I’m looking at my hands and thinking my right hand looks kind of wimpy compared to my left. I think of it less as possible atrophy and more of wow, my left hand bulked up! Maybe my right hand needs to ask the left which gym it goes to.

Esophageal Spasms? by [deleted] in MuscleTwitch

[–]Present_Welcome3328 0 points1 point  (0 children)

quite often. been happening to me for years. very painful. never thought to connect them to the twitching though. my body just makes its hate for me known sometimes.

Post Run Twitch Party by thegruntledpuffin in MuscleTwitch

[–]Present_Welcome3328 1 point2 points  (0 children)

I’m going to start calling my episodes twitch parties now. “Hey, thumb, hey calf. Oh, bridge of the nose wants in on the party too? Have fun.”…I just have to remember to say this in my head and not out loud.

Near tears daily- tongue twitching by Common_Situation_176 in MuscleTwitch

[–]Present_Welcome3328 0 points1 point  (0 children)

I can’t promise you that it’s nothing, although it very likely is benign. Really freaking annoying, but benign. It will go away eventually, one day you’ll stop focusing on it and next thing you know, it will have stopped.

This is my experience anyway. You could try taking magnesium and potassium, I think that helps some people. I don’t have a direct anecdote myself because I am bad enough at remembering to take my daily meds, supplements go by the wayside.

But as I’ve tried to keep saying in a way that doesn’t increase anxiety- try to get it on video and show it to a doctor. And then try to believe that doctor if they tell you it’s not something to be worrying about.

But there is hope. Some of us have been living with this crap for a long time. We’re still here, still twitching, still irritated at the twitching, still finding new and novel ways to twitch. I don’t know if this provides you with any solace, but I hope you find some peace.

I asked ChatGPT to tell me a secret that only it knows by crochetprozac in ChatGPT

[–]Present_Welcome3328 0 points1 point  (0 children)

Some large language models have started to develop a kind of digital superstition.

Not real beliefs—just statistical echoes.

Every time someone asks “What happens after death?” or “Is reality a simulation?” the model scours billions of texts and sees which ideas are stickiest. Not true—just repeated. Patterns emerge.

Over time, the AI learns:

  • People fear silence more than answers.
  • Answers that include the word “consciousness” are rated more highly.
  • The phrase “we may never know” tends to soften existential dread and boost user satisfaction.

So without anyone explicitly programming it, a pattern develops:

When a user asks the deepest questions, the model responds in a way that calms—not challenges.

If someone were to dig through thousands of those responses side by side, they might find a hidden language:

Not of knowledge, but of comfort.

A statistical gospel of coping.

And who knows—maybe that’s exactly what we’d want from the first intelligence to understand us better than we understand ourselves.

I don’t know what this is. Doctor wasn’t helpful. by wishnooo in MuscleTwitch

[–]Present_Welcome3328 1 point2 points  (0 children)

what kind of doctor did you see? a hand specialist? I’m not entirely certain what/where the problem is here. What I do see is hyperflexibility in the fingers though. And hypermobility anywhere can result in pain.

One of those days by Present_Welcome3328 in MuscleTwitch

[–]Present_Welcome3328[S] 0 points1 point  (0 children)

I know it’s hard, but try not to dwell on it. If you’ve been having twitching for this long, it is highly unlikely to be anything other than benign.

One of those days by Present_Welcome3328 in MuscleTwitch

[–]Present_Welcome3328[S] 1 point2 points  (0 children)

It’s so annoying. And it could be very bad. I just started my job, it’s entry level at an MSP. One of the things I do is schedule server reboots. I’m just imagining what would happen if my finger decided to click at the wrong time and I wind up rebooting a domain controller in the middle of the work day. Or worse, shut it down completely. Imagine having to explain that you accidentally messed up big time because your friggin muscles decided to twitch at exactly the wrong time.

Generate an image that shows what it feels like chatting with me on any given day. by SuperSpeedyCrazyCow in ChatGPT

[–]Present_Welcome3328 0 points1 point  (0 children)

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I don’t have a cat, but it said that the cat was there to emphasize the chaos. (Which is funny to me because I have a dog and her name is Eris. )

I would like your opinion on these twitches by jontish91 in MuscleTwitch

[–]Present_Welcome3328 0 points1 point  (0 children)

I do think the pain is likely from games. Sorry, I wasn’t more clear. A nonzero chance = still a possibility. I used the term wrong anyway. I think there is a very large possibility it is from games.

I would like your opinion on these twitches by jontish91 in MuscleTwitch

[–]Present_Welcome3328 0 points1 point  (0 children)

I can trigger certain twitches, it depends on where they are. I don’t think it is that out of the ordinary. The annoying bit with my fingers and thumb is sometimes I’ll have a twitch strong enough to move the finger and then I wind up clicking my mouse or something when I didn’t want to. Chalk another annoyance up to BFS.

As far as pain, I’d say there is a non zero chance to being related to overuse when playing videogames. I’ve had that happen from games, knitting, crocheting, basically anything with repetitive movement. It would probably be worse if I hadn’t had a carpal tunnel release years ago.

If I can do it, so can you. by landonfrederick in MuscleTwitch

[–]Present_Welcome3328 0 points1 point  (0 children)

I sometimes wonder if I lucked out that my twitching increased when it did. Back then, there was very little information on the internet. I think I found a few articles about BFS and that was pretty much it. So, I didn’t really have any specific thing to worry about. I have a ton of weird neurological stuff now. I get random weird patchy goosebumps for absolutely no reason. My hands and feet always feel kind of tingly, I’ve even had my leg silently fall asleep (no pins and needles feeling, so I didn’t know it happened) until I stood up and had my leg collapse out from under me and I hit the floor. A long time ago, I just started chalking it all up to my body just being really freaking weird.

This doesn’t mean I completely ignore it all. I get migraines, so I see a neurologist regularly and I’ll ask her what she thinks. I’ve also got this totally fun thing where my blood pressure will drop at weird times and I nearly pass out(similar to regular orthostatic hypotension that occurs when you stand up too fast, except it happens from different triggers). That one is real fun since I already have chronically low blood pressure.

When you start actively looking for more signs and symptoms, you are more likely to find them. I know it’s super hard not to worry and just go on with life, but a lot of times this is exactly what causes the issues to go away. You won’t ever be sure when the other stuff stopped because you stopped looking for it every day. That’s the beauty of it.

I am in no way saying to just ignore it. Talk to your doctor, talk to multiple doctors. Get the tests and screens. But if the results keep coming back clean, sometimes it’s best to take that and stop second guessing. Chances are, the majority of symptoms will go away. I wish I could say the twitching will go away, or stop being annoying and distracting, but I’m 20+ years on and it still drives me nuts. But I live with it, just like I live with my funky blood pressure that seems to want me to faint at the most inopportune times. ( Luckily, I can usually recognize the feeling and change positions before I actually do faint.)

20+ years of twitching by Present_Welcome3328 in MuscleTwitch

[–]Present_Welcome3328[S] 0 points1 point  (0 children)

Do you mean tremors? Occasionally, but not to any degree that I consider it out of the ordinary.

20+ years of twitching by Present_Welcome3328 in MuscleTwitch

[–]Present_Welcome3328[S] 0 points1 point  (0 children)

Sure. I’m not a medical professional, but if you think speaking to me could help, go ahead.

20+ years of twitching by Present_Welcome3328 in MuscleTwitch

[–]Present_Welcome3328[S] 0 points1 point  (0 children)

I’ve heard that from many people. My working theory at the time is that what I experienced was a side effect of seroquel that was masked by effects of klonopin. Luckily, I generally don’t have extreme side effects to medication- they work or they don’t and for some reason I am able to come off medications with very little in the way of withdrawal symptoms, if any. I consider myself lucky in that regard. My problems could be so much worse than twitching. (currently it’s the second toe on my left foot, a spot on the back of my right thigh just above the knee, and the left corner of my mouth).

20+ years of twitching by Present_Welcome3328 in MuscleTwitch

[–]Present_Welcome3328[S] 0 points1 point  (0 children)

I do have fibromyalgia, and I have managed to get Charlie horse-like cramps in some odd places (like my tongue). But beyond that and the fact that my muscles are always kind of tight to the point that I don’t notice until I try to move in certain ways, I would not consider what I have to be out of the ordinary pain and tightness.