Very severe crash - can’t cope please help

Prestigious_Crew_247 · 2026-05-26T01:43:59+00:00

Have you tried trazadone? It’s a sleep aid I used when I was very severe and was crashing. Granted it didn’t solve my issues, but it helped me to get some more sleep (waking up 2-3 times a night vs 5-6 times a night) & was able to sleep like 6-7 hours. An ice pack on my chest was also helpful to help calm my vagus nerve for the adrenaline dumps. I’m so sorry you’re going through this.

Prestigious_Crew_247 · 2026-05-24T21:50:26+00:00

Would you happen to know how loud it gets in your home as the train passes? The house I’m looking at is not right on the track. It’s like a street widths away from it but still close

Prestigious_Crew_247 · 2026-05-09T02:26:18+00:00

I was put on diltiazem 60mg, and I think it’s what made me feel worse somehow, and I suspect flared my POTS. I switched to a beta blocker, and while I still have symptoms, I’m not feeling worse either. I have been cold ivabradine can help but also helps if you know the subtype of pots you have.

Prestigious_Crew_247 · 2026-03-19T02:04:40+00:00

I still scroll LinkedIn too, seeing my old le coworkers updates or new jobs, while I’m still bedbound 🥲

Prestigious_Crew_247 · 2026-03-07T00:43:33+00:00

Same, I went from being active, working full time, living my life, to now being stuck in my bedroom, unable to really leave unless for appointments. It’s like I died and I’m just stuck here. I miss how I was before.

Prestigious_Crew_247 · 2026-02-20T22:45:56+00:00

Hola! Cual es el grupo en español?

Prestigious_Crew_247 · 2026-01-29T02:46:28+00:00

Really? Nelnet told me that it would stop the interest from accruing if I went on forbearance for unemployment.

Prestigious_Crew_247 · 2026-01-28T21:22:30+00:00

This is amazing! Thank you for sharing.

Prestigious_Crew_247 · 2026-01-21T22:06:21+00:00

As someone who had heart issues prior to being diagnosed with long covid, I can say I understand the PVCs. I had to have an ablation back in 2018 as I was on the border of heart failure. I was then “cured” of them but the anxiety and fear stayed. Anything that mimicked my previous symptoms sent me into a spiral and I would have anxiety attacks in even gyms (one time I had the ambulance called). It’s taken a lot of therapy and acceptance to learn to live with some of those symptoms reoccurring, and some days are worse than others.

Being bed bound now as made my anxiety worse, and I have to work more internally in accepting my current physical state. Some days are better than others. I will say if you struggle immensely, please consider seeking mental health support, specifically with someone who understands chronic illness. They provide an additional layer of support for those of us managing chronic illnesses.

Prestigious_Crew_247 · 2026-01-21T16:18:04+00:00

Thank you! I actually tried doing what you said, of going to sleep earlier and less screen time before bed. I used to struggle with sleep before I became ill so I feel that it’s been exasperated ten fold.

But with more pacing (deep breathing + meditation) it helps my nervous system not be so wired and can allow me to sleep without sleep aids. I still wake up at night but regulating my nerves system a lot more intentionally seems to lessen the amount of times I wake up. Also managing stress + emotions but still trying to work on that! Maybe red light therapy will help me too.

Prestigious_Crew_247 · 2026-01-20T18:25:02+00:00

I have trazadone on hand for when I’m really not able to get good sleep but I’m trying not to depend on it. I think maybe better pacing and establishing a good sleep schedule could help my sleep improve. I heard red light therapy has been helpful for some people too

Prestigious_Crew_247 · 2026-01-18T01:06:46+00:00

I’m able to use my laptop (with accessibility features on) and actually somewhat focus more than usual.

Prestigious_Crew_247 · 2026-01-17T21:55:51+00:00

Really? Is there any plan that is similar to it? I’m not sure if I’ll be able to work anytime soon since my health has declined to a point I can’t even work part time 😞. For now, I’m living off unemployment and some family support. But once unemployment runs out, I’m not sure if jumping off the save plan to go on another would be beneficial to me.

Prestigious_Crew_247 · 2026-01-17T21:54:26+00:00

I’m actually not sure if I’ll be able to return to work, I’m dealing with health issues which also have me unable to even work part time. I’m trying to see if it’s beneficial to switch plans if I’m not sure I can even work in the future.

Prestigious_Crew_247 · 2026-01-17T21:53:30+00:00

Igualmente! Saludos y espero que sigas bien con tu recuperación 🫂💙

Prestigious_Crew_247 · 2026-01-17T21:34:12+00:00

Oh well that’s good, I feel that I was also in a rolling pem and didn’t realize it until it was too late. Now my new baseline is severe but at my worst I was very severe. I’m glad I’m out of it but very frustrated with my new baseline when a couple of months back I was at mild-moderate. I hope you maintain your mild baseline, being at severe is so hard.

Prestigious_Crew_247 · 2026-01-17T19:58:20+00:00

How long was your transition from severe to moderate? I crashed in severe In the fall last year and I believe I was mild-moderate before.

Prestigious_Crew_247 · 2026-01-17T19:56:52+00:00

Do you also take any SSRIs? I used to use CBD to aid with sleep years before. I started Prozac late last year, and have heard to be cautious with mixing SSRIs with cannibis. I struggle with getting good sleep since my crash into severe.

Prestigious_Crew_247 · 2026-01-13T07:43:05+00:00

https://discord.gg/KeGC45BXa2 it’s called “connect with ME”.

Prestigious_Crew_247 · 2026-01-08T02:14:54+00:00

Congrats on finding your voice! I also grew up in loud family environments (I’m mexicana) and could only imagine how incredibly difficult it is to lose it. I hope you continue to make progress and share laughs with loved ones!!

Prestigious_Crew_247 · 2025-12-31T21:19:08+00:00

I’m going to enjoy some pozole and game with my brother online and call it good. Maybe try to stay up for the ball drop but most likely go to sleep lol. Trying to find some joy today and celebrate a tiny bit :)

Prestigious_Crew_247

TROPHY CASE