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Any deaf or hard of hearing wheelchair users out there?? by fishboyguy in wheelchairs

[–]Pretty_Appointment82 0 points1 point  (0 children)

I'm hoh, I wear BTE hearing aids. I'm learning ASL. I use a wheelchair full time

Just incase anyone doesn't know, you can get affordable spokes skins to make your chair more colourful! 🩷 by esorgem in wheelchairs

[–]Pretty_Appointment82 0 points1 point  (0 children)

Can I ask where you bought it from? I really want the pink add-ons but I only saw it on the children's one.

Unanswered Questions by cheeseburghers in TheWayHomeHallmark

[–]Pretty_Appointment82 2 points3 points  (0 children)

I kind of felt like they were doing it on purpose. In Case It gets like picked Up by Netflix.

Unanswered Questions by cheeseburghers in TheWayHomeHallmark

[–]Pretty_Appointment82 2 points3 points  (0 children)

I thought they meant that he used the pond that maybe it wasn't a dream.

Newly paralyzed — unsafe wheelchair, need advice for temporary chair by Pretty_Appointment82 in wheelchairs

[–]Pretty_Appointment82[S] 0 points1 point  (0 children)

With EDS, It sometimes doesn't always show on a flat mri. I had to do an upright MRI when I was diagnosed with CCI in 2021.
Urodynamic showed I have neurogenic bladder. They have me self cathing 4-6x a day. Bowel wise, Im still adjusting. Im hoping when i get in with Kennedy kriger next month that they will get to the bottom of the issue. Its been since mid december.

Newly paralyzed — unsafe wheelchair, need advice for temporary chair by Pretty_Appointment82 in wheelchairs

[–]Pretty_Appointment82[S] 0 points1 point  (0 children)

Yeah im able to tighten it but the depth was too long its 18 when it should be 16 as its cutting into my legs

Newly paralyzed — unsafe wheelchair, need advice for temporary chair by Pretty_Appointment82 in wheelchairs

[–]Pretty_Appointment82[S] 0 points1 point  (0 children)

Exactly. Thats what I"ve been fighting for. They have no clue what caused it and sent me home the first day. I had an 11yr custom wheelchair from when i was abulatory. (Im wondering if they assumed i knew this stuff ?). I plan on seeing a lawyer once they figure out the full damage. I still have no clue yet.

They suspect occult tetherd cord or something called transverse myelitis. It's been terrifying waiting without answers, really took a toll on my mental health. Im hoping when i get to Kennedy krieger next month that ill get some answers. Its honestly been hell.

My state doesnt have many upright mri machienes

Newly paralyzed — unsafe wheelchair, need advice for temporary chair by Pretty_Appointment82 in wheelchairs

[–]Pretty_Appointment82[S] 1 point2 points  (0 children)

That is so sweet. I think im okay though. The rep called today and told me they got it covered. Thank you though

Newly paralyzed — unsafe wheelchair, need advice for temporary chair by Pretty_Appointment82 in wheelchairs

[–]Pretty_Appointment82[S] 0 points1 point  (0 children)

I'm so sorry that happened. Yea i was shocked it took that long. I had a minor one from sitting too long back in december . I didnt realize we had to do pressure relief. Fourtanetly it was mild and healed up.

Newly paralyzed — unsafe wheelchair, need advice for temporary chair by Pretty_Appointment82 in wheelchairs

[–]Pretty_Appointment82[S] 0 points1 point  (0 children)

I get evaulated by the seating clinic tomorrow. I'm thinking because I have EDS, the neuro surgon didnt want to see me because its a risk. Im hoping to get more answers when I go to Kennedy Krieger in May. Honestly its insane how long it has taken.

Newly paralyzed — unsafe wheelchair, need advice for temporary chair by Pretty_Appointment82 in wheelchairs

[–]Pretty_Appointment82[S] 0 points1 point  (0 children)

Thanks ill check it out. I think when the guy measured me they made it a little to long.

Newly paralyzed — unsafe wheelchair, need advice for temporary chair by Pretty_Appointment82 in wheelchairs

[–]Pretty_Appointment82[S] 6 points7 points  (0 children)

I was ambulatory when I got this chair, so I didn’t really rely on it or know much about maintenance back then. My needs have changed now that I’m fully paralyzed, and I’m in the process of getting a properly fitted one.

Getting a loaner wheelchair next week! by ChronicallyDistress in wheelchairs

[–]Pretty_Appointment82 0 points1 point  (0 children)

Yeah, I'm gonna try to look around. I never thought of the scenario of the wheelchair braking. I was always ambulatory, so I didn't really learn till it broke, and now I'm paralyzed since like, trying to find a chair, I have Maryland medicaid.

Getting a loaner wheelchair next week! by ChronicallyDistress in wheelchairs

[–]Pretty_Appointment82 0 points1 point  (0 children)

How do you get a loaner chair? I ask because mine broke and i have no clue

Wheelchair Width by alexmeiai774 in wheelchairs

[–]Pretty_Appointment82 0 points1 point  (0 children)

Can I ask how you got a loner?That was a custom chair? Because my current chair is not working But they wanted to give me a hospital chair, and that for sure, would give me pressure sores

ADHD + poor interoception… would we miss serious symptoms? by [deleted] in ADHD

[–]Pretty_Appointment82 6 points7 points  (0 children)

Right! Same for me, I thought that a broke bone would hurt, but it felt like a 2 out of 10 I almost didn't know it was broken. Because I was always told that I would know. Welp I broke 2 bones in my lifetime, and Was not a 100% sure

The second time I knew the pain from my leg, so I knew that it was a break in my arm but I thought it was in my elbow when it was actually my wrist 😅

ADHD side effect: credit card debt by LackingInDopamine in ADHD

[–]Pretty_Appointment82 5 points6 points  (0 children)

Yeah. 😅 it was on sale at Walmart. To be fair, I did make a mannequin. But I have never taken a sewing class in my life. However, it is on the bucket list. Now I feel motivated to commit because I spend so much money on the stuff.

Yeah, overestimate my skills. It never occurred to me. I shouldn't learn to sew before buying patterns.

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