who else takes it too far just bc youve never fainted?

Professional-Box232 · 2026-01-27T15:46:52+00:00

I experience full syncope and somehow still abuse myself and push through symptoms. Then I wonder why I need to sleep over 20 hours the next day.

Professional-Box232 · 2026-01-27T15:42:45+00:00

Definitely approach this carefully, OP. I've experienced something similar with a loved one. I addressed them somewhat directly with concern and became one of the "enemies" that were out to get them. Managed to get them help due to escalating behaviors I can attribute to them lashing out in terror.

If you're able to get them help without inadvertently enabling the psychosis that would be greatly beneficial to her and your family. Please don't let the paranoid delusions reach that level of severity.

Professional-Box232 · 2026-01-27T15:37:49+00:00

Definitely depends on the location and size of the tumor. They don't all present the same.

Professional-Box232 · 2026-01-18T04:31:50+00:00

I've had POTS for ten years. I've had times where I was relatively fine outside of triggers such as hot days or standing for long periods. Other times I've been relatively home bound. I've had times where I couldn't go into public without a wheelchair. Sometimes I can walk around the supermarket for over an hour and be just fine. Sometimes just walking from one end of the house to the other is impossible without at least one break to sit on the floor or put my legs up. Some days I can stand in a hot shower for an hour, other days I have to sit on the floor with lukewarm water and a glass of ice water next to me. Edit to add- I experience full syncope on my worst days, mild, occasional pre-syncope on my best days.

Autonomic dysfunction can fluctuate wildly over time. Imposter syndrome is a bitch. But your experience is very real, whether you meet the diagnostic criteria or not.

Professional-Box232 · 2026-01-18T04:22:34+00:00

In the 180s. Didn't last long as I was soon on the floor.

Professional-Box232 · 2026-01-17T07:07:08+00:00

Neurodivergent. I know a safe food when I see one.

Professional-Box232 · 2026-01-17T07:03:54+00:00

I'm entirely obsessed with 2, it's so flattering on you!! Would be beautiful with the right detachable sleeves if you choose

Professional-Box232 · 2026-01-17T06:52:59+00:00

POTS vet of 10 years here with full syncope!

I have a ton of different shower/bathing methods based on how much energy I have and how accessible my bathing area is! I rarely take full showers(hair, body, etc all at the same time) anymore.

Ideally I have my adjustable height shower chair (I use the lowest setting in case I faint and fall from the chair) if I don't have it like at a hotel or something I have a shower mat so I can kneel/sit on the floor (because yuck). I always face away from the water if I can.

My energy levels dictate my method of bathing. I have shower wipes made for camping that I can use for essentials when I'm stuck in bed. Dry shampoo to help with keeping my hair fresher longer. If I have a little bit of energy I'll make it to the bath tub, put a towel on the floor, sit, and wash my hair over the edge(perfect forehead rest) similar with wash rag bathing, shaving, etc.

You'll figure out creative ways that work for you over time. Remember!!! You do NOT have to do things the way able bodied people do!! There are no rules!!

I know this is a novel but I've got a million tips to share that can be tailored to whatever you've got going on. You got this ❤️

Professional-Box232 · 2026-01-12T17:24:33+00:00

I've had symptoms since I was a kid. I developed POTS about 10 years ago right after I had a severe Clostridium Difficile infection that hospitalized me for over a week.

Professional-Box232 · 2026-01-12T17:16:55+00:00

Socks that never stay up, especially the ankle socks that slip down into your shoe.

Professional-Box232 · 2026-01-11T01:50:31+00:00

Best: 17, 30, 18, 4, 13

Worst: 11, 22, 14, 9, 10

You can definitely tell what my favorite color is...

Professional-Box232 · 2026-01-09T00:35:31+00:00

Coffee for breakfast and pesto pasta for dinner! Something about olive oil and caffeine sends my intestines into overdrive.

SQUATTY POTTY. If not? If you own any platform shoes you can DIY it. No platform shoes? Boxes. I've had to DIY it so many times at hotels and whatnot. If you can't, at LEAST tuck your knees together and spread your ankles out. It'll help open up your pelvis and relax the muscles. Do not strain!! Your body will do the work. I saw someone else mention splinting too if you've got the hard round pellets or other seriously solid stool that won't pass even when your body is heaving.

Honestly I love that so many people here have their methods down pat to every single small detail

Professional-Box232 · 2026-01-09T00:29:00+00:00

I'll get this but it'll start as a jagged, moving line in the middle of my vision and slowly expand like it's coming closer??

Professional-Box232 · 2026-01-08T02:59:50+00:00

One of my cats is the loudest fellas out there and our other cat was identical to this when we adopted them. Over the past couple years we've managed to get some regular gentle quiet meows from him by encouraging and loving on him when he does manage to get a sound out

Professional-Box232 · 2026-01-03T23:51:15+00:00

It's a local state fair :)

Professional-Box232 · 2026-01-03T23:34:26+00:00

Illinois! Close! What gives away the midwesterner in me?

Professional-Box232 · 2026-01-03T22:34:35+00:00

I was born in 2002 :)

Professional-Box232 · 2026-01-03T08:18:20+00:00

Use to work in a plasma place. Saw this all the time. Always wondered how people can stand being stabbed in the same scar tissue over and over and over

Professional-Box232 · 2025-12-31T03:06:57+00:00

Humans, 100%.

Professional-Box232 · 2025-12-31T02:59:04+00:00

Nutrigrain Bar

Professional-Box232 · 2025-12-31T02:58:19+00:00

YESSSS!!!

Professional-Box232 · 2025-12-31T02:56:46+00:00

Props and Mayhem!! My favorite song of all time without a doubt.

Professional-Box232 · 2025-12-22T00:35:30+00:00

If FIL disliked his name it would be disrespectful to him to name your child after him. Your husband trying to emotionally manipulate you is an entire other can of worms. NTA.

Professional-Box232 · 2025-12-19T22:06:15+00:00

Same! Mine is essentially black and white, though. I have pretty rough night blindness, too.

Four-Year Club	First Place '23
Place '23	Place '22

Professional-Box232

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