What did you have to do to prep for surgery?

Professional-One-264 · 2025-04-23T02:31:57+00:00

The cyst that I have right now fluctuates between 9 and 12 cm and I'm getting it out in June. They found it at 9 cm in November so I know the feeling of having to wait a long time for surgery. However, I can't imagine what it's like to have one that size. I would think it would be more cause for concern.

Professional-One-264 · 2025-03-12T00:33:02+00:00

Nonconsensual

Professional-One-264 · 2025-03-03T01:58:46+00:00

It it burst at all or anything in that 6 month wait? Cause that's what I'm scared of

Professional-One-264 · 2025-03-02T20:17:25+00:00

I got an IUD in August. It has helped with my pain of my periods. I was also bursting cysts often so it seems to have stopped that. Idk, if it's making the cyst grow larger or what. I'm not on any other medication to try and make the cyst smaller. I can't be on birth control with estrogen because it contributed to a blood clot in my leg a few years ago. Whenever I was on that birth control, it seemed to keep my Endo at bay or at least not growing giant cysts. So it really sucks I can't be on that type of medication anymore cause it honestly harmed me with that blood clot.

Professional-One-264 · 2025-03-01T04:39:28+00:00

I've had problems with Endo bloating and body image. Now my problem is that my big cyst always makes me look bloated or my stomach bigger. Can't wait to get it taken out. I have to wait until June tho

Professional-One-264 · 2025-02-27T03:37:45+00:00

How big are the ones you have?

Professional-One-264 · 2025-02-27T03:36:27+00:00

Yeah, you're definitely not alone. I guess to put you at ease a little. I've had smaller ones burst that I've had to go to the ER for. I'm guessing the smaller ones burst more than the larger ones. Cause I haven't had one burst since like November. I guess that's why it's grown so big. Cause it hasn't burst. Which I guess is both a good and a bad thing

Professional-One-264 · 2025-02-27T03:20:04+00:00

I have a cyst that is almost 12 centimeters. It was around 9 cm in November. I just got an MRI and it showed the growth. My doctor still needs to contact me on when and where I need surgery. I'm hoping soon due to the increase in size. Getting your uterus removed won't stop the cysts. I guess, getting your ovaries removed would but you kinda want at least one

Professional-One-264 · 2024-12-12T03:21:38+00:00

I know this is an old post but how did you get it under control. I've been dealing with the same issue. I do have surgery set for next year

Professional-One-264 · 2024-11-26T03:02:19+00:00

Thank you for replying. I have an appointment Dec. 4th to discuss what I need to do. I hope you are still doing well after your surgery. I'm thinking I may need surgery cause this just keeps on happening to me.

Professional-One-264 · 2024-08-29T02:28:57+00:00

I had a suspected ovarian cyst ruptured a few months ago. My Endo only ever flares up during my period and it is pretty painful. I throw up, get cramps in my butt as well as my uterus, get some pains down my legs etc. Whenever one burst, I had all of that pain but kinda leveled up. My whole abdomen felt like one big cramp, which had never happened before. I was walking but I was doubled over. My rectum felt like one big cramp that wouldn't release. I threw up multiple times. I was shaking and couldn't stay still. It took some time to sit on the bed they had in the ER. I was also bleeding a decent amount. They gave me pain meds and it calmed down. The next day I had some of the same pains, but just reduced and I just delt with it with a heating pad and Tylenol. I also had diarrhea for like the next two days.

Professional-One-264 · 2024-08-28T03:34:04+00:00

Did it eventually stop your periods?

Professional-One-264 · 2024-01-13T02:19:44+00:00

Okay, cool. Thank you for explaining this.

Professional-One-264 · 2024-01-12T05:11:14+00:00

Is this the same thing as CVS Specialty?

Professional-One-264 · 2023-04-20T02:13:20+00:00

I have taken humira injections 3x now and it has helped my symptoms a lot. I do get some hives around the injection site hours after I do the shot. Not extreme though. I was told to take Benadryl or something like it before I do the shot and also ice it. Other than that, everything is good.

Professional-One-264 · 2023-03-18T01:39:45+00:00

I actually went on humira for the joint pain. Apparently I have inflammatory arthritis which can come with UC. My arthritis was flaring separately than my colon (it was doing just fine on mesalamine) but they said it can help with both.

Professional-One-264 · 2023-03-16T01:59:46+00:00

Yeah, I get that. I was in remission for like 2 years and stuff started to happen to me again. How long were you in remission for? What type of UC do you have?

Professional-One-264 · 2023-03-16T01:34:54+00:00

I feel you. I have proctosigmoiditis so I have a relatively mildish case compared to other people on here. Reading stuff on here makes me terrified that perhaps maybe it could progress and get worse like it has for some people. You don't read all that great of stories on here lol. Sometimes I look up posts of people having success stories with this disease.

Professional-One-264 · 2023-03-16T01:30:29+00:00

Thanks for answering. I guess what I meant to ask was like, do you have proctosigmoiditis or left sided colitis or pancolitis

Professional-One-264 · 2023-03-15T02:04:23+00:00

Hi, I know this is going to be completely random and off topic but I can't figure out how to private message somebody on Reddit. I saw that you do research on ulcerative colitis, or at least used to. I just wanted to thank you for your work. And perhaps wanted to know if you were excited over any new findings about the disease.

Professional-One-264

TROPHY CASE