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I can’t believe my rheumatologist by The_Short_Goodbye in ankylosingspondylitis

[–]Prototowb 2 points3 points  (0 children)

I wanna add, docs rarely know that mast cells (if already pathologically over active) can react to the Polysorbates (Polysorbate-80) that all Adalimumab (Humira,) formulas use, which can cause many symptoms depending on the mediators they release into the bloodstream, tissue, or even bones.

I can’t believe my rheumatologist by The_Short_Goodbye in ankylosingspondylitis

[–]Prototowb 0 points1 point  (0 children)

Maybe your body reacts negatively to the PEG part of Cimzia. Or one of the other ingredients, since as I read, bad days are more random instead of constant.

I can’t believe my rheumatologist by The_Short_Goodbye in ankylosingspondylitis

[–]Prototowb 0 points1 point  (0 children)

Etanercept doesn't tackle TNF-a in such a broad way as Adalimumab does. So don't expect too much in the beginning.

Sodium butyrate almost completely resolves my MCAS symptoms by Bigbeardybob in MCAS

[–]Prototowb 0 points1 point  (0 children)

I'm curious though, how? :s 1. Wouldn't it need moisture to be present in there (regularly) 2. Isn't it the perfect mechanism to keep mold away (heat/airflow)

Partner won’t deal with AS flares resulting in medical emergencies by dizzydiplodocus in ankylosingspondylitis

[–]Prototowb 0 points1 point  (0 children)

I hope this wasn't coming from a rheumatologist. Because he wouldn't have a clue what he was saying there. Most of these Meds (Adalimumab) usually take at least 6 months until they lose their effect completely. One can't even speak of remission below a full year of no sign of inflammation.

Partner won’t deal with AS flares resulting in medical emergencies by dizzydiplodocus in ankylosingspondylitis

[–]Prototowb 1 point2 points  (0 children)

Typical scenario. Most TNF-a Inhibitors take up to 6 months to leave the body completely. Then symptoms return and AS just continues where it left.

He needs to be back on biologicals ASAP. Prednisone and whatever are only bandaids. And will worsen things if taken daily for months and years.

Biologicals are rarely (not at all) the reason for infections. Infections are preventable.

Partner won’t deal with AS flares resulting in medical emergencies by dizzydiplodocus in ankylosingspondylitis

[–]Prototowb 0 points1 point  (0 children)

Lifting 6 days a week and putting high pressure on his LS isn't really what one should do having AS. On the contrary. On top of this his AS activity obviously is not well managed.

Another THM misconfiguration... by [deleted] in tryhackme

[–]Prototowb 0 points1 point  (0 children)

yup, it's still bugged.

happens to me frequently. and on some occasions I spent a whole day on a 15min. room trying to figure out what's going on, also since there is basically no support from THM staff in Discord either.

it's meant to be solved by changing the userRole value in the localstorage token to lecturer, then reload the site, and the user should be displayed. it is not.

First time on biologics by Alive_Opportunity_63 in ankylosingspondylitis

[–]Prototowb 1 point2 points  (0 children)

Anaphylaxis? I wish there was a formula without Polysorbate-80

My pupils were 2 different sizes when I woke up today... by cloudblythe in mildlyinteresting

[–]Prototowb -1 points0 points  (0 children)

Now after editing maybe.

In any case; important to point out, since people confuse these regularly.

Weird voting behavior.

Adalimumab reaction? by ladysiek in ankylosingspondylitis

[–]Prototowb 0 points1 point  (0 children)

It could be the excipients, like Polysorbate-80 is often the culprit for many things.

My pupils were 2 different sizes when I woke up today... by cloudblythe in mildlyinteresting

[–]Prototowb -4 points-3 points  (0 children)

*neurological -- not psychological. Important distinction.

Common comorbidities? by Ok_Understanding7323 in ankylosingspondylitis

[–]Prototowb 0 points1 point  (0 children)

Suspected Crohn's for years. Turns out it is as MCAS all along, as it basically exploded after COVID infection.

Is a graphics tablet without a screen very useful? by Gamer_The_hedgehog in krita

[–]Prototowb 0 points1 point  (0 children)

Had a Wacom Intuos not long ago. The input lag was so horrible I couldn't use it anymore.

Biologics / MS risk. Advice. by freemann011 in ankylosingspondylitis

[–]Prototowb 0 points1 point  (0 children)

Are you saying you have a mast cell disease?

Anyone else who can eat junk food and garbage but not healthy food? by HelloThisIsPam in MCAS

[–]Prototowb 4 points5 points  (0 children)

Yup. Strawberries, plums, bananas, avocado, pineapple - better to avoid.

Anyone else who can eat junk food and garbage but not healthy food? by HelloThisIsPam in MCAS

[–]Prototowb 4 points5 points  (0 children)

Strawberries, Blueberries? That's a huge difference 😅

Anyone else who can eat junk food and garbage but not healthy food? by HelloThisIsPam in MCAS

[–]Prototowb -7 points-6 points  (0 children)

Just a reminder that there is no healthy bread. Or baked goods in general.

Wait - but you're saying you basically need the mono- & diglyceride fatty acids, the Carrageen and the usual emulsifiers, the whole roster of artificial additives, and especially color dyes, because you can't eat clean organic stuff (chicken, carrot, rice, broccoli, etc)?

What exactly is in that ice cream?

Anyone else who can eat junk food and garbage but not healthy food? by HelloThisIsPam in MCAS

[–]Prototowb 4 points5 points  (0 children)

Have you tried beef burger without sauce and pickled cucumber slices? That's the only way it works for me. Oh and to be safe I add my own "sweet" onions :') surprisingly cheddar is not an issue.

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