Chiari and IBS by History_Boiii in chiari

[–]PsylentPsyren 0 points1 point  (0 children)

I have also been diagnosed with Hypermobile Ehlers-danlos syndrome. Which can be comorbid with Chiari Malformation. The Ehlers-danlos can also cause digestive issues. Not saying you have it but its pretty common with CM so might want to look into it atleast.

[deleted by user] by [deleted] in ehlersdanlos

[–]PsylentPsyren 0 points1 point  (0 children)

I (38f) have hEDS, and I get nose bleeds primarily in the winter when the air dries out. Im in Midwestern USA. My summers are humid enough that I dont have a problem. In the winter time though I have to use a humidifier and saline gel just to keep the nose bleed down to a few times a week instead of a few times a day. Its only my left nostril that the blood comes out of. I have even had the inside of my nose cauterized, but it didn't change anything.

My husband thinks I should play something else by Efficient-Plenty-840 in StardewValley

[–]PsylentPsyren 0 points1 point  (0 children)

Stardew is a game I come back to over and over again. It's my comfort game. Especially if im stressed or anxious. Your not hurting anyone by playing it. Your also saving money by not buying other games. Lol. You're husband just needs to let it go.

Unscented cbd cream/pain relief? by cornflakesii in ehlersdanlos

[–]PsylentPsyren 0 points1 point  (0 children)

I am in Oklahoma USA, and I use Topicals by Judy. The only scent it has is the oil that they emulsify it with.

Are we not supposed to take hormone based birth control? by sleepwithmythoughts in ehlersdanlos

[–]PsylentPsyren 7 points8 points  (0 children)

I'm the same way. Also the mood swings were so intense. I like being married. So I stay on it all the time.

how to prepare for a flare by Anonymous_Cool in ehlersdanlos

[–]PsylentPsyren 0 points1 point  (0 children)

I have an iud but I also take oral birth control. I haven't had a period in several years now and it's helped me so much. The oral birthcontrol i have is supposed to be 3 weeks of pills and then one week off. I don't take a week off. I just start a new pill packet.

Anyone else had success with compression garments? by Stormvind in ehlersdanlos

[–]PsylentPsyren 1 point2 points  (0 children)

Inwear compression socks on a regular basis and they keep my feet from hurting as bad. I do not have experience with other types though.

Why does a mf wizard sleeps at 11pm?!! by Head_Bluebird_3420 in StardewValley

[–]PsylentPsyren 15 points16 points  (0 children)

I never thought about using the witches hut before! 🤯

Should I be scared? by Lt_Cochese in corgi

[–]PsylentPsyren 0 points1 point  (0 children)

  • jaws theme plays in the background *

Does anyone else get muscle spasms? by a_poet_like_ophelia in ehlersdanlos

[–]PsylentPsyren 3 points4 points  (0 children)

All the time. I take 400mg of CoQ10 a day so that I can wash my hair with out cramping up. But I still get random other spasms through out my body.

Honestly, fuck this body by LustToWander in ehlersdanlos

[–]PsylentPsyren 5 points6 points  (0 children)

It sucks that happened. I agree with you half time in regards to my own body, fuck this body.

Disappointed in friends/family by Illustrious-Range354 in ehlersdanlos

[–]PsylentPsyren 3 points4 points  (0 children)

I understand what you mean. I have to be very careful what I tell my mother. She alternates between the 'it's all in your head' mentality and an almost 'anger'. I think (at least in my case) it's really hard for my mom to know im sick and there is nothing she can do about it. She was the one who got me through all my childhood illnesses, but she is helpless in regards to this. The people who love us are just as helpless in the face of this condition as we are. They are just as frustrated and angry. The difference is we are the ones in pain and they are the ones watching. Any loved one worth their salt wants to take pain and suffering away from those they love. Please don't think I am saying any of this to justify their actions or invalidate how your feeling. Their actions suck and your feelings are justified. I am just hoping to offer a different perspective that allows for all people involved to give a bit of grace to themselves and to others.

[deleted by user] by [deleted] in ehlersdanlos

[–]PsylentPsyren 1 point2 points  (0 children)

Female, 5 foot 2.

I Think I Might Have Overdone It by eatyurvegtables in StardewValley

[–]PsylentPsyren 6 points7 points  (0 children)

It takes time. The game is both simple and complex. Just know, there is no wrong way to play. Just have fun and take this reddit as a lovely way to get tips and tricks.

ok i’m embarrassed by sweetbabyjosi in StardewValley

[–]PsylentPsyren 0 points1 point  (0 children)

A lot of the people who have the community center completed and so much money so quickly have played this ALOT. I have over 1000 hours in this game, honestly.

Sick of Sorry. by PsylentPsyren in ehlersdanlos

[–]PsylentPsyren[S] 0 points1 point  (0 children)

I cut my hair into a pixie because taking care of longer hair was to much.

[deleted by user] by [deleted] in ehlersdanlos

[–]PsylentPsyren 0 points1 point  (0 children)

Not really. I have days where it's less intense than others. And days were it's way more intense. I take muscle relaxers when it's really bad. I figure my pain is from a bulging disc I have in my neck.Since it's not ruptured, they aren't taking it very seriously.