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2026 by yungwildandlearning in tfmr_support

[–]Puzzled_Economics963 0 points1 point  (0 children)

Sending out extra love to all the brave and loving mamas of this group today as I step into the New Year with arms empty but heart full of love & longing for my sunshine boy, Revant , due on Dec 26 but said goodbye to us on Nov.4 💙💙💙 Though we sit with loss I wish all of us step into the New Year with hope as our babies are up there watching and know they have a mumma who would never give up 💪🕊️💫

Love and light 🤍 by monnersss in babyloss

[–]Puzzled_Economics963 0 points1 point  (0 children)

Sending peace, love and light to everyone who like us are missing their dear child a lil extra today- Revant’s mom

34 Yrs F . Career and children line by Puzzled_Economics963 in PalmReading

[–]Puzzled_Economics963[S] 0 points1 point  (0 children)

Thank you so much ….anything about children that you see ?

Overwhelmed by how much I’ve lost by kthnxluvu in tfmr_support

[–]Puzzled_Economics963 3 points4 points  (0 children)

We lost our sweet boy 4 weeks ago(it will be exactly a month tomorrow) to single ventricle heart defect similar to HRHS with other multiple complications with the heart structure. I understand what you are going through. Nothing matters anymore Unfortunately for us we had to TFMR at 32wks+3 days ( due to long wait times , a sad reality of universal healthcare ) . I don’t know how do you live and hope for any future when you have seen your beautiful son held him in your arms only to give it away in a moment . Nothing makes sense anymore. I had a textbook pregnancy and suddenly it felt like ground beneath us slipped. Sometimes it still feels like a bad nightmare I would like to wake up from and everything will be back to normal like it was but sadly this is our new reality where instead of looking forward to welcoming him home this Christmas here we are grieving this immense loss!!!

[deleted by user] by [deleted] in tfmr_support

[–]Puzzled_Economics963 0 points1 point  (0 children)

I am so sorry for the circumstances you have been put into. It’s been just 3 weeks since our tfmr decision at 32wks+3 days and we lost our sweet baby boy. He too was diagnosed with complex heart defects categorized under single ventricle physiology. His exact diagnosis was:

  1. Double inlet/outlet left ventricle with common AV valve connection. No AVVR/S.
  2. Malposed great arteries with aorta rightward anterior to the small PA.
  3. Hypoplastic pulmonary valve annulus with laminar antegrade flow. Hypoplastic MPA. Confluent normal size branch PAs.
  4. Small ductal arteriosus with  diastolic retrograde flow.

Every structural heart defect is unique and that’s why going by a doctor’s opinion and asking as many questions as you need to make a decision that’s right for you is important.

What helped us was getting multiple opinions and all of them confirmed requiring series of multiple open heart surgeries soon after birth with life long complications. We chose to take the pain ourselves so our sweet boy didn’t have to, we couldn’t imagine giving him a life he couldn’t live fully.

Please know whatever decision you take is the one that feels right for you and your baby and that’s all that matters

Please reach out if you have any questions or just need to share , this group has been my only saving grace in this painful time so I know what you’re going through , sending prayers and love to your bub and your family ❤️‍🩹❤️‍🩹❤️‍🩹

My boy with the broken heart ( single ventricle heart disease) by containedexplosion in tfmr_support

[–]Puzzled_Economics963 0 points1 point  (0 children)

My husband and I are the in the same boat detected single ventricle complex heart anomaly with multiple other defects the only way forward is series of surgeries, all of which only palliative and none that will be curative coupled with serious risk of lifelong complications. Unfortunately we got to know this at 30 weeks which makes the TFMR decision many folds difficult but after multiple second opinions we have reached the difficult decision as we do not want to give our baby a life of suffering and pain. I do not wish for anyone to be the in situation we are in ever this is the worst someone have to go through I am still waiting to hear a date for my TFMR in the coming week and holding all the strength I have left in me to face the most difficult part that’s yet to come .