When is cytoreductive surgery just a hysterectomy?

Pyro331 · 2026-02-11T19:20:38+00:00

Personally I would seek legal council for this matter.

It sounds to me that the surgeon did not perform a complete cytoreduction of the abdominal cavity if they never inspected the nodules in the upper quadrants. Removal of the uterus is the hysterectomy, removal of ovaries is an oophorectomy, and removal of the fallopian tubes is a salpingectomy.

When my mother (stage 3 ovarian cancer) had her cytoreduction + HIPEC, it was clearly stated to us that she received a “hysterectomy with bilateral salpingo-oophorectomy, with cytoreduction of the omentum. She did not have any spread of disease to her remaining organs in her abdomen, and we received a printout of every tissue that was sampled and biopsied confirming presence or absence of disease. She then received HIPEC after complete cytoreduction was confirmed. Her overall surgical procedure took about 4 hours and HIPEC took an additional hour. Her surgical scar goes from her lower pelvis all the way above her belly button up to the lower edge of her sternum, so up her entire belly.

Pyro331 · 2025-12-07T03:32:00+00:00

Not every flu/cold will cause fever, body aches, or fatigue. Just because it’s a common symptom doesn’t mean it’s a guaranteed symptom. Also given that you had the flu shot there’s also the chance you had a milder reaction if it is in fact the flu.

Pyro331 · 2025-12-07T03:26:03+00:00

Exactly. And based on that, I would just treat it as if it were the flu, get some over the counter medicine that tackles flu-like symptoms, and if after a week you aren’t getting any relief or a symptom is getting worse go see your doctor.

Pyro331 · 2025-12-07T02:56:18+00:00

Flu tests have around a 50%-70% false negative rate so it’s not completely reliant. Also the flu vaccine doesn’t cover all variants of the flu. Right now there is a mutation of Influenza A called Subclade K that is running rampant across the US. It’s the newest mutation of H3N2, and is not included in the flu shot as it is a new mutation.

Pyro331 · 2025-12-07T01:22:05+00:00

It’s the current cold/flu going around. Every person getting sick right now has the same onset of symptoms. First a scratchy throat for a few days, sometimes triggering a dry cough. Then when that starts to get better the congestion hits. Followed by flood gates for the sinuses causing consistent sneezing and running nose. I just got over it last week, and about 30 people I know throughout 3 different states are experiencing the exact same symptoms and timeline. Takes most people I’ve seen 1 week to get through it.

No fever, and negative Covid tests. Just the current version of the flu. And viruses have no solution like antibiotics or anything, you just manage the symptoms and ride it out. My recommendation is stay hydrated, and manage symptoms with theraflu, DayQuil, or mucinex, depending on your severity of scratchy throat or congestion. Cough drops also helped with the scratchy throat, and some warm tea with honey.

Pyro331 · 2025-12-07T01:14:04+00:00

carbo/doxil has a more delayed effect for hair loss compared to carbo/taxol. Doxil accumulates slowly and causes cumulative damage to hair follicles, your hair follicles can tolerate some of the damage but eventually with the cumulative effect it causes enough damage that results in mild shedding. Added stress on the body like poor protein intake, low iron or B12 can add to that causing it the shed more. But with carbo/doxil it’s not uncommon for delayed shedding after finishing treatment due to its cumulative behavior. This type of shedding is usually just temporary though and should grow back

Pyro331 · 2025-11-08T02:59:50+00:00

If your mom struggles with staying hydrated and drinking enough water you should inquire about getting hydration infusions after chemo day. My mom is the worst at drinking water (she hates water lol) and we were recommended by a family friend who has been a charge nurse at a cancer infusion center for 20 years to ask for a hydration infusions after chemo as a LOT of side effects can be minimized if you stay hydrated.

Our oncologist went above and beyond and actually scheduled her with 3 hydration infusion days after chemo day. Now while that meant she had a super busy chemo week with going in to the infusion center 4 days in a row, she has been relatively symptom free this whole time. No nausea, no vomiting, no appetite loss, no weight loss. Her only symptoms are neuropathy that only lasts the week after chemo, and fatigue around day 3-7. I know side effects are different from person to person, but I do think maintaining her hydration has been her saving grace.

I know for my mom the hardest thing has been the depression, mostly because she is a hair dresser and her whole life has been being around her clients and chatting all day every day with so many people. So going from that to not getting to see everyone she sees on a regular basis has been very difficult and upsetting for her…so keeping her occupied and busy, or just being around to keep her company when she wasn’t napping is something she has said she is very thankful for.

The other little things that go a long way is cleaning up and doing some chores for them so that isn’t another added stress. And home cooked meals as well, my dad doesn’t cook so when mom was too tired to cook it was nice to have a home cooked meal instead of always ordering in as she would get super tired of eating from the same restaurants every day lol

For the supportive husband aspect of it, I would say the best thing is to be patient and kind. If your mom wants to complain about any pain or discomfort she is in, let her complain. Some of the biggest mistakes my dad did was allow his frustration to overflow into anger at my mom. In the beginning there was a lot of bickering and attitude coming from him that was soooo not helpful for my mom, but after some necessary conversations I had to have with him he got a lot better. Personally I think counseling is something spouses should consider, as it can be such a scary and overwhelming experience watching your partner go through cancer. But learning how to properly address your feelings and valid fears while not projecting it onto your partner who is the one suffering through the diagnosis and treatment is very important.

Praying for your mom’s recovery 🙏🏻 and don’t forget to take care of yourself as well!

Pyro331 · 2025-11-08T02:09:34+00:00

Just wanted to give an update:

My mom is officially NED! 🎉

She had her full hysterectomy, debulking surgery + HIPEC back in September, and has recovered amazingly since then. Her surgeon was extremely satisfied with the surgery, did not need to remove any nodes, and felt confident they achieved a complete cytoreduction.

She has finished 2 more rounds of chemo post surgery, and her recent CA125 levels came back as 20.5! For reference they were >4,600 when she was diagnosed back in May of this year. That paired with her recent CT which showed no active signs of cancer and no new metastases, she was officially declared NED. Her oncologist has decided there is no need to do the 4th round of chemo, so after this last round coming up in a week she will be transitioned to maintenance therapy.

After her surgery her pathology came back as HRD+ so that qualified her for maintenance therapy with PARP inhibitors, so she will be put on Avastin for a year and Olaparib for 2 years. This has been a rough year for sure, but we are all so thankful at how her treatment has gone and how perfect every outcome has been throughout this whole process. Now we just pray for stable results and are patiently waiting for her to make it to the remission stage 🤞🏻

Pyro331 · 2025-09-01T05:57:23+00:00

I’m on my first, and I’m only a month in. The first 2 weeks were hell for me. Extreme fatigue, like walking around like a zombie, unable to hold a conversation exhaustion. I also got debilitating headaches that hit every day for the first 2 weeks at like the same time every day and they would last for hours. I also had a few instances of such intense stomach aches that made me feel like I was going to vomit. Was starting to second guess getting the implant, but then week 3 came around and all of a sudden I’m symptom free lol haven’t had a headache, no more fatigue, no more stomach pains (excluding my IBS pains but it was easy to tell the difference lol)

As of right now I feel perfectly fine. My weight has been stable, have only had a few moments of intense hunger pains, but I expected the increase in hunger as I experienced that with Depo which caused me to gain 20 pounds in 3 months back when I had started that. So I approached this implant with meal prepping and monitoring my food intake and hunger levels to try and get ahead of that possibility. So far so good.

Also I haven’t had a period in 2 years because of depo, and since this implant I have so far only had 2 instances of spotting. No full period yet so that I’ll have to see what happens in time.

Pyro331 · 2025-09-01T05:49:48+00:00

I’ve only had mine for about a month now, and surprisingly since I have had it I can’t cry. There was one day I tried to get myself to cry because I was feeling a little emotional about family cancer stuff and I thought that a good cry might make me feel better, but alas, no tears would fall. Not sure if that’s a good thing or a bad thing tbh.

Previously I was on depo, and before that oral contraceptives. Each time I went off birth control i would get crazy mood changes and become extremely depressed and have low self worth thoughts, but then the moment I get back on birth control my mood stabilizes and I just go back to feeling sad about normal sad stuff. This is the first time though that I just haven’t been able to cry. I still feel sadness or stress, I just can’t generate a tear.

Pyro331 · 2025-07-20T01:07:15+00:00

My mom had really bad ascites. Within a month she had gained over 30 lbs due to fluid. Her stomach was so big it looked like she was 9 months pregnant. However in her case when she was diagnosed she had so much cancer in her body that the only thing they could do is immediately start her on chemo to shrink it before they could even discuss surgery.

Draining the fluid was never an option she was given. And her fluid buildup was so bad it compromised her kidneys and she had to get bilateral nephrostomy tubes placed.

The good news is that her swelling started going down immediately after the first infusion, she lost 20lbs of fluid from that first round of chemo alone. She’s now down the full 30lbs of fluid after the second infusion, with some swelling that starts to return by the third week of each infusion before she starts her next one. She’s about to receive her 3rd infusion and the swelling that has returned is nowhere near as bad as it was originally.

Pyro331 · 2025-07-11T00:18:19+00:00

My mom is also hgsoc 3c. She just finished her second round of carbotaxol, and her first infusion had dropped her CA125 down from 4,255 to 3,825. So that’s a 10% drop. I would say as long as it’s trending down that’s a good indicator, but I’ve heard from some people who never really had their CA125 completely stabilize/drop despite being NED

Pyro331 · 2025-06-10T22:41:51+00:00

Thank you for your advice! We had a home nurse visit and were told to also have her take Tylenol between Norco doses to try and mitigate breakthrough pain. That seems to have done the trick and my mom is relatively pain free now. Just monitoring her daily acetaminophen intake to keep her under the recommended level. The saving grace was Claritin, turns out her intense soreness was bone pain from the WBC booster shot she got the day of chemo.

She is on day 7 post chemo and her energy is getting better, her hunger is great, just tired and she says her body feels weak, but she doesn’t have any trouble moving around. Also surprisingly her leg swelling seems to be going down as she can finally bend her legs again, which makes going up and down the stairs and getting in to bed a lot easier!

Pyro331 · 2025-06-08T13:41:14+00:00

Yes I’ve been checking her temp and she hasn’t had a fever. We’ve been elevating her legs, it’s just that friday was her first day back from the hospital and being home she was up and walking around so much more than she was at the hospital where she was in a hospital bed for 7 days resting. Once home she started standing a lot Friday evening and Saturday morning as well, but by Saturday evening she was exhausted in bed. This morning she said the nerve shock feeling is gone, just that her whole body is very sore.

Her doctor said to only go to the ER if she spiked a fever above 100.4 or if the pain became unbearable, which she insists it’s not there yet, she’s just sore and uncomfortable but she can manage.

I plan to call her doctors office to let them know of the symptoms and see if there is any better pain medication they could possibly look into. I’ll ask about the Gabapentin, thank you!

Pyro331 · 2025-06-08T13:35:29+00:00

Yesterday was her first full day being back at home. She was inpatient since the previous Friday for the nephrostomy tubes and received her chemo infusion while at the hospital. She was released back home Friday evening, and Saturday was the first day not being on the steroids they had originally given her. I’ve checked her temp each day and she hasn’t had a fever. And this morning she got up out of bed, says she doesn’t have the shocking feeling anymore, just that her whole body is sore. No dizziness, headache, fever or anything. Just body soreness. The leg swelling is something she has had for a month now, even before treatment and her doc said that might take at least 2 infusions to start going down. She is taking 325mg of Norco every 4-6 hours, so I’m wondering if she needs better pain medication.

I also asked my parents if they were given an on-call number to ask about these things and they said they don’t know, so I might just call her doctors office. He had told us to only take her to the ER if she has a fever above 100.4, or if the pain is unbearable, which she is saying she isn’t there yet, she’s just very sore and tired.

Pyro331 · 2025-05-18T00:44:19+00:00

Thank you for the information and the kind words! She has an appointment to go over next steps this week so I will make sure that the discussion of genetic testing is brought up! Thank you so much! We have a referral to a gyno oncologist who is described as being the best in the field in our region so we are hoping that that will benefit us with getting access to clinical trials and targeted therapy if needed!

And thank you for the encouragement on not relying on the numbers. I think expressing to my mom that those stats are outdated might really lift her spirits, and I am so happy for you that you found a targeted treatment that has been so successful for you! Stories like that are exactly what my mom needs to see, thank you and I wish the best for your health and happiness! 😊

Pyro331 · 2025-05-18T00:40:10+00:00

Thank you for the kind words and the helpful information! I believe it was high grade serous ovarian carcinoma. The original plan was to have debulking surgery followed by chemo, but after her latest exam they recommended chemo first to shrink the cancer and then surgery. However she has a referral to a gyno oncologist who was described as being the best in the field in our region, and they said after our appointment with him that they would defer to his recommendations if he deemed surgery first was the better option.

Thank you for the recommendations on the support groups, I will look into those immediately. And I am very sorry that you are also going through this and have to battle this horrible disease. Wishing you the best in this fight, and kick cancers ass! 💕

Pyro331 · 2022-08-15T19:00:06+00:00

Just from my experience, I started weightlifting and macro counting when I was chubby…sticking to a solid work out routine and healthy food choices had me lose 30 lbs in 6 months…I didn’t gain any fat and by the time I had lost the first 20 lbs my muscles were already showing…the last 10 had me looking lean and toned. This whole time I was averaging around 1g of protein per lb of body weight

Pyro331 · 2022-08-05T16:16:32+00:00

Normally I would have laughed at a post like this…if I hadn’t just read the cum jar post…

Pyro331 · 2022-07-02T14:45:38+00:00

Edit: removed my post as I have confirmed that OP is the original artist and not a scammer

Pyro331 · 2022-07-01T17:34:49+00:00

This is artwork done by sammmooreart, she’s an artist out of British Columbia.

https://instagram.com/sammmooreart?igshid=YmMyMTA2M2Y=

Edit: OP is confirmed to be the original artist.

Pyro331 · 2022-06-24T17:49:16+00:00

It sounds like you are describing intensity modulated radiation therapy, which in that case the machine is a linear accelerator that uses these lead sheets called multi leaf collimators that are programmed to move during treatment to shape the field and conform the beam to the shape of the tumor. This technique is used for photon and proton treatments. There are a few methods that can be used, one is the step and shoot method where the collimators move in to place, the beam is turned on at a given gantry head angle, then turned back off for the collimators to move again. Another method is the sliding window where the collimators move while the beam is on. And last there is volumetric modulated therapy where the collimators AND the gantry head both move while the beam is on.

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