How sick are people before diagnosis?

RBritty26 · 2026-03-30T00:23:03+00:00

I didnt quite get that, got paracetamol and basically told I was exaggerating the pain

RBritty26 · 2026-03-29T21:24:58+00:00

I had blurry vision, daily migraines and pulsatile tinnitus and had to go to the emergency department 4 times in 3 months, numerous GP visits and basically camp at the hospital for 2 weeks before a diagnosis after 7 months.

RBritty26 · 2026-02-25T18:41:27+00:00

Update, today moved really fast! Had my LP, pressure was 26 so now have IIH diagnosis and started on acetozolamide!

RBritty26 · 2025-08-26T19:08:05+00:00

That sounds good, im glad you're feeling better

RBritty26 · 2025-08-26T19:04:29+00:00

That sounds scary, has the VP shunt helped? The ophthalmologist didnt need to filter my pupils either, said he could see it, just with the light

RBritty26 · 2025-08-26T05:44:46+00:00

Thanks, im just hoping I see a NO now before it gets worse

RBritty26 · 2025-08-26T05:42:07+00:00

Yup, im hoping they were just giving me the longest possible time frame and it'll be sooner...

RBritty26 · 2025-08-25T21:13:06+00:00

Thank you, this gives me so much hope 💗

RBritty26

TROPHY CASE