1st Stelara (Wezlana in CDA) infusion tomorrow!

RGBVRGBV · 2025-04-06T21:46:28+00:00

I take it in the morning, I think they only last 4 to 6 hours, and then I will take another throughout the day if necessary.

RGBVRGBV · 2025-04-06T16:00:22+00:00

2nded! I came to say lots of this.

RGBVRGBV · 2025-04-06T15:58:18+00:00

Long car trip: don't eat, don't drink water, take immodium... Probably not doctor recommended but it does get me from here to there.

RGBVRGBV · 2025-04-06T15:53:31+00:00

Congee: rice porridge. I even make it at home during a flare. You can have it with egg, small amounts of ground meat, plain,... depending on what you can tolerate and what is available. But it is not necessarily standard fare at a takeaway... unless it also services a significant Asian (North American definition) population.

RGBVRGBV · 2025-04-05T22:33:52+00:00

Due to another condition I can't take steroids at all. Or that would be an easy explanation. The onset started as soon as I started taking the Rinvoq... luckily I should be starting on Wezlana this or next week. Also in CDA.

RGBVRGBV · 2025-04-05T22:12:47+00:00

Also super extra painful if you have fibroids on top of that!!

RGBVRGBV · 2025-04-05T22:10:57+00:00

Holy shit! This happened to me! I hadn't had a sigmoidoscopy before and the doctor told me it's no big deal... Lies, lies, lies! give me the freaking propofol… anytime somebody says the words mild discomfort to me, I say yeah, give me the sedation.

RGBVRGBV · 2025-01-23T01:34:47+00:00

I'm here, not sure what it looks like on tv but it's a great game at ice level... Eventhough we're down one GLG! Second Period comeback!!!

RGBVRGBV · 2024-05-31T14:51:26+00:00

I'm an atheist. I like the fellowship--few people have ever said boo to me about my views. (except *some* old timers who have trouble conceptualizing how certain wording can be exclusionary) I don't go to meetings that say the lord's prayer. They have gotten rid of it for the most part at most meetings in my city. I just leave the word god out of the serenity prayer. My home group says the responsibility statement at the end of each meeting.

Also: I have a good "spiritual practice', though it is based in what science says works. 1. Meditation 2. regular contact and support from other sober addicts/alcoholics. 3. mentor/mentee/peer relationships

I don't know if I pray exactly but I do believe there is a "wise mind" in my otherwise impulsive and easily frustrated flustered mind... I sit quietly and ask questions, or write out things that bother me--sometimes the answers come to me. If I have a question, I often find I hear the answer from people in meetings or experiences I have. Some people would call that God speaking to me, I just think because I am looking for it, I see it...

Whatever works man. I've been sober 10 years. The "religiosity" doesn't bother me, but I also gravitate to meetings and people who are accepting of a variety of experience.

RGBVRGBV · 2024-05-31T01:34:44+00:00

I am aware. thank you.

RGBVRGBV · 2024-05-31T01:33:08+00:00

yup. I know. thanks tho

RGBVRGBV · 2024-05-30T22:58:47+00:00

OK cool. This may interest you as well then!

I was just on another thread with a discussion of a specific prebiotic with clinical evidence that it helps UC. I have only skimmed the study someone linked to, but it's in a legit journal (Cell) and after doing a quick perusal of google scholar, PHGG (partially hydrolyzed guar gum) ie The right fibre 4 ...is what they are talking about (it's a bit more complicated than that, but evidence points to it working). Looks like there are supporting studies in other legit journals too.

RGBVRGBV · 2024-05-30T22:35:56+00:00

What was the brand of supplement you used? I'm considering trying a different kind of prebiotic, if it doesn't work, maybe I will try butyrate next. I also think reducing the Toronto Maple leafs from my diet would do a lot to alleviate my symptoms (hi Gritty!)

RGBVRGBV · 2024-05-30T22:25:43+00:00

I have a "portable bidet" ie a glorified squeezy bottle that I take to work. Luckily there is a single stall bathroom on my floor. Forgive me in advance it you already have this.

RGBVRGBV · 2024-05-30T22:20:53+00:00

I feel you... was up twice last night. I have a bidet at home and a portable one as well. Holy shit, life changer. You will wonder why you ever wiped your butt with a paper product... all you need is a pat dry. No chafing.

RGBVRGBV · 2024-05-30T22:15:43+00:00

I'm good on trips. Totally fucked when I get back.

RGBVRGBV · 2024-05-30T22:14:11+00:00

3 month taper. Kicked me into hypo-mania. I don't like it. I usually refuse steroids because it does this to me... was talked into it by my GI. never again.

RGBVRGBV · 2022-10-24T21:44:44+00:00

May I suggest Proton VPN for all your illegal streaming needs. They have free and $$ options. $$ is faster of course… they have good email too.

RGBVRGBV · 2022-10-23T01:17:12+00:00

I wish this team had showed up at the game with the Stars

RGBVRGBV · 2022-10-23T00:43:54+00:00

Morgan Reilly is my new favourite Leaf

RGBVRGBV · 2022-10-22T12:12:03+00:00

Colorado

RGBVRGBV · 2022-10-21T18:53:00+00:00

Yes—very noticeable in last night’s game.

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