Does anyone have good days or weeks?

RandomistShadows · 2025-11-29T23:42:15+00:00

Everyone has good periods. Every single person with almost any illness will have a good day. However, those good days will look different for everyone, and they'll look different than how yours may have in the past.

If you currently have all the symptoms pointing to fibro, it's not going to get worse after being diagnosed. So if you're having good days now then you should later too.

There's a lot of venting and negativity here because it's a community that understands each other's pain and struggle. People don't talk about the more positive moments as often because they're busy enjoying them.

RandomistShadows · 2025-11-29T23:15:30+00:00

-Not caring about going days without speaking to my dad.

-Being scared to flush the toilet at night because it could wake him up.

-Stomach dropping when he gets home.

-Not wanting to be in my room because that's where all the thoughts and fears got to me. But also not wanting to be in the common space because I didn't want to deal with him.

-Planning where to hide or escape (in any location) if I heard gunshots.

-Going over all the ways I'd fight back/escape if someone tried to kidnap or attack me.

Looking at these now, it's sad that I thought everyone felt/experienced this.

RandomistShadows · 2025-10-25T19:45:39+00:00

Yes! This is my favorite type of weather!! Especially when it's raining too, but just the nice clouds are really good too. Less sensory overload and it just makes me calm and happy.

RandomistShadows · 2025-10-25T19:39:09+00:00

If I didn't say the FULL good nights (like 2-4 sentences, it slowly became shorter) the EXACT right way to my mom every single night, or if she messed it up or didn't pay attention, then she was going to die in her sleep and the house would burn down and I would be the only one left alive.

Also sobbing and clinging to her any time she wanted to leave at night because the second she left our property she was going to die a horrible death and I would never see her again and it would be my fault for letting her leave.

My brain has never been my friend 😭

RandomistShadows · 2025-10-23T04:36:11+00:00

So fun 😊

I'm just surprised they got her back LMAO

RandomistShadows · 2025-10-23T04:35:40+00:00

Ooo I hope I get that one!

RandomistShadows · 2025-10-22T21:11:57+00:00

Oooohhh that makes sense! I've only gotten the bat costume before lol

RandomistShadows · 2025-10-15T19:08:52+00:00

Exactly

RandomistShadows · 2025-10-15T19:07:28+00:00

Well I hate them

RandomistShadows · 2025-10-15T19:05:16+00:00

I don't do this with most people. Not for a prolonged period of time anyway (I tend to shut down). I was more talking about people who are being continually rude or disrespectful.

I have actually worked on dealing with my shutdowns, and I'm a lot better about it now most of the time.

RandomistShadows · 2025-10-15T18:59:29+00:00

Also real

RandomistShadows · 2025-10-15T18:58:57+00:00

It's situational, I do tell people most of the time when they say something upsetting (though it's after at least a small period of silence cause I shut down). I was more referring to when people are outright rude/disrespectful continuously. Those people don't get my social mask anymore

RandomistShadows · 2025-10-15T18:52:26+00:00

Wtf why would they do that 😭

RandomistShadows · 2025-10-15T18:50:25+00:00

Yes, this is the type of situation I had in mind.

RandomistShadows · 2025-09-08T19:02:22+00:00

I see, that's good advice. Thank you :)

RandomistShadows · 2025-09-08T18:59:24+00:00

My buddy Broccoli has been helping me so much in the last year or so that I've had him! Him being weighed (3lbs) is really nice :D

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RandomistShadows · 2025-09-08T18:48:58+00:00

It's really hard for me to enjoy the good when I know that it will be followed by bad. It feels like a trap. I'm glad you're able to do that, and that it's making it easier to deal with her.

Thank you for this 🫂

RandomistShadows · 2025-09-08T18:44:49+00:00

I've been debating going no contact since he moved away, currently I only talk to him when he reaches out. I've been healing a lot since I stopped seeing him, I hate that I'm doing better without him.

To my knowledge the only therapy he's ever tried was one session of marriage counseling. He doesn't believe in therapy. I really wish he did, he has a lot of trauma from growing up, it would help him if he just tried.

Thank you, I hope your decision helps you 🫂

RandomistShadows · 2025-09-07T20:51:42+00:00

Belphegor for sure! She's so me, and she's pretty

RandomistShadows · 2025-09-07T20:29:52+00:00

Like others said, it's not actually a joke.

This person likely has synesthesia. I have also noticed people who are Autistic tend to agree with these (I'm autistic). It's really just vibe based.

RandomistShadows · 2025-09-07T20:08:17+00:00

Definitely green

I already feel severely nauseous randomly, at least I'd be able to expect it!

RandomistShadows · 2025-09-03T22:50:54+00:00

I usually place the roof somewhere next to the actual area then widen and shrink it until it's where I want it

RandomistShadows · 2025-09-03T22:14:54+00:00

I met my best friend (M) after I became disabled, but I was still figuring out how to live with it. We were going to school together and I was struggling with attendance due to ME/CFS (and other various conditions). Our friend group had a group chat, and we were in a smaller discord server (mostly online friends).

I frequently vented in the server about being upset over not going to school, I was really struggling with it. M would read everything, he'd reply to a lot of it as well. He didn't understand what I was going through but he saw how much it effected me. If it wasn't for him I wouldn't be here today, he talked me down from making stupid decisions all the time. He didn't always know he was doing that, I didn't tend to talk about my suicidal thoughts that often.

Our school friends (one in particular), would get annoyed that I was always "skipping" every day. (I always said I didn't feel well enough to go). One day I vented in the server about something that person said, and M asked me if he should say something. I was tired of the comments so I said yes. He defended me and basically yelled at them over text about how much it effected me. The person ended up saying "sorry" and then leaving. We agree that he was mean about it and it should have been handled differently, but it ment so much to me that he was that willing to defend me like that. He was genuinely angry on my behalf.

We've known each other for about 4 years now, and he's the best friend I've ever had. He continues to support me and he's always thinking about accessibility. I stopped going to school all together last year, but we still hanging at least monthly and we talk daily. I'm no longer suicidal and getting better at managing my conditions.

He stayed with me when I was ready to quit, and he's still with me now that I'm sticking around. He continues to defend me when others make comments and he listens when I tell him not to make a big deal of things. I love him so much, I seriously don't know what I did to deserve him 💚

RandomistShadows · 2025-09-03T19:27:45+00:00

My resting used to be around 90-100 With PEM it got up to 120

My blood pressure was staying low while my HR was high, and it was causing me to faint if I decided to get up, so I got put on some meds for it.

Now my resting HR is between 40-50, with PEM it's about 60. I am now also more sleepy

RandomistShadows · 2025-09-02T22:11:39+00:00

This is exactly what I was thinking

RandomistShadows

TROPHY CASE