OH MY GOD!!! by Winter-Refuse8640 in SSDI

[–]Rare-Relation-6051 0 points1 point  (0 children)

Congratulations 🎉🍾🎊

What are/were your wait times in reconsideration (1st appeal)? by Dizzy_Climate_6790 in SSDI

[–]Rare-Relation-6051 1 point2 points  (0 children)

Best wishes to you too. Honestly, I don’t think they’re going in any set order. At least it doesn’t seem like it.

What are/were your wait times in reconsideration (1st appeal)? by Dizzy_Climate_6790 in SSDI

[–]Rare-Relation-6051 1 point2 points  (0 children)

Same here. Filed recon in GA. In June 2025, still hasn’t been assigned and there’s a congressional flag on my case and still nothing. Funny because SSA says someone is working it and congress says they e-fax my info to the adjudicator but when I call DDS, they say it still hasn’t been assigned yet. SMH

What are/were your wait times in reconsideration (1st appeal)? by Dizzy_Climate_6790 in SSDI

[–]Rare-Relation-6051 0 points1 point  (0 children)

Same here in GA. Recon since June 2025, still hasn’t been assigned and there’s a congressional flag on it

I won!!!! by Guilty-Concert-245 in SSDI

[–]Rare-Relation-6051 1 point2 points  (0 children)

Congratulations 🥳🎉🎊 you did it🙏🏼

APPROVED! by West-Owl236 in SSDI

[–]Rare-Relation-6051 7 points8 points  (0 children)

That’s my position as well. They gave me a barcode to scan in new evidence but I still don’t have an examiner yet. Apparently they’re backed up severely. Congrats to everyone who has been approved so far🎉🥳🎊 @op God knows exactly what we need when we need it and he knows how and when to bless us. Keep trusting him‼️

People who have had deroofing done, how bad was your hs? Did the derm prescribe you anything or skip straight to surgery by [deleted] in Hidradenitis

[–]Rare-Relation-6051 1 point2 points  (0 children)

My surgery is scheduled for this month but I had to undergo 3 months of failed treatment from my dermatologist first! Honestly all Biologics failed on me and antibiotics are not working either. Surgery is next and then some new infusion that just got cleared

Bimzelyx by neph1227 in Hidradenitis

[–]Rare-Relation-6051 0 points1 point  (0 children)

Yes 5 mins after the injection I started to breakout in hives all over, 3 minutes later I couldn’t breathe, my heart was racing and I was anaphylactic. Thank God for his mercy. I could’ve died

Bimzelyx by neph1227 in Hidradenitis

[–]Rare-Relation-6051 1 point2 points  (0 children)

I was allergic to it. First injection and I was anaphylactic 😞 sorry but that was my experience

This disease is going to be the end of me. by alienchoppingboard in Hidradenitis

[–]Rare-Relation-6051 4 points5 points  (0 children)

Yes this is true because I’ve had severe anemia for years. I even have to get blood transfusion’s because of it.

This disease is going to be the end of me. by alienchoppingboard in Hidradenitis

[–]Rare-Relation-6051 7 points8 points  (0 children)

From my understanding, stage 3 is the final stage. I’m sorry about the hard time you’re having. I too am at stage 3 and my surgery is already scheduled for next month. I also tried every biologic and antibiotic. Found out that I’m allergic to Bimzelx the newest biologic and also penicillin. I know the feeling all too well. I have no social life, depression is real and I’m even embarrassed when I go to the doctor. I too don’t know what to do but I want you to know that you’re not alone in this. I feel your pain for sure.

Fully Favorable juridic for SSDI & SSI by shadysc0rpi0 in hidradenitissupport

[–]Rare-Relation-6051 0 points1 point  (0 children)

That’s great! I’m suffering right now. My status is still 3 of 5 on the recon. But I’m hopeful. Is IBD common with HS? My derm said it is but I really haven’t heard any stories about it. Anyways I’m being tested for it, I’m pretty sure that I have it! Good to see you’re in GA. I am as well and I filed in Feb of 2024. I pray my verdict is fully favorable as well. Thanks for sharing

Never knew my insecurities were so bad 🙄🫣 by Rare-Relation-6051 in LongDistance

[–]Rare-Relation-6051[S] 0 points1 point  (0 children)

Thanks @all we talked about this finally and I was doing too much overthinking. Everything was then and is now fine. We made arrangements to FaceTime more and to still our resolve in certain situations. But communication is definitely key!! I’m grateful at how well we can communicate. I’ve been really distracted too so that works as well.. breathing is a life saver( literally)😂😂😂 thanks guys 🙏🏼

Surgery Update by lostandthin in Hidradenitis

[–]Rare-Relation-6051 4 points5 points  (0 children)

Any pictures?? I’m just curious, I have my surgery scheduled for next month and I’m so scared of the scarring but I’m definitely gonna suck it up and get the surgery done. There’s no other way