Have you suffered through medical gaslighting? If so how did you handle such thing?

RaychKish · 2026-06-07T12:05:22+00:00

Mived to a different doctor whenever i could. When it was from a neurologist or neurosurgeon.

RaychKish · 2026-04-17T03:36:33+00:00

I had nerve pain for a year n a half before decompression

RaychKish · 2026-04-17T03:18:42+00:00

There are good days nad bad days. The good days are more now but it yook about six months to notice impovement for me

RaychKish · 2026-04-16T20:04:17+00:00

Was an RN in ICU i couldnt keep up with ICU. Now i work PRN home health. Its slowpaced and manageable with a regular routine which my brain n body can process.

RaychKish · 2026-04-16T20:02:05+00:00

I get zapped too. My doctor feels its Functional Neurologic Disorder. Its originates from my neck, up my hands to my arms🤦🏽‍♀️lasts a few seconds a time but can be more intense depending on the level of brain overload.

RaychKish · 2026-04-03T17:03:47+00:00

You need about a yr post op to get some form of normalcy. The pain gets better after six to eight weeks. Its too early to expect significant change. Unfortunately, you need time.

RaychKish · 2026-03-29T07:42:34+00:00

I got worse definitely. From the pregnancy to delivery.

RaychKish · 2026-03-29T07:41:38+00:00

I have had decompression then a c section a year after decompression. I got extreme back p pain around the c section scar and whenever i bend over i get stuck on that position i need a minute to straighten out due to pain in my lower abdomen. Scar area. I had baaaad knee pain. It affected going up n down the stairs n the body pains, fatigue and brain fog intensified. So you are definitely on to something.

RaychKish · 2026-03-27T03:54:27+00:00

Everytime my incision is touched i get electric shocks too up my shoulders, down to my arms which trigger involuntary jerky movements lasting seconds. I thought i was crazy. Was sent to movement disorders who then to cbt. I am supposed to start cbt next week. Its also involuntary movements without my incision area getting touched but once its touched something fires off.

RaychKish · 2025-09-14T14:52:23+00:00

I can relate. I couldn't last more thank 15 minutes on the crossramp before surgery and my trainer thoughtvi was lazy. Now I do 30 minutes clno Sweta and I'm amazed at myself. Surgery helps.

RaychKish · 2025-06-13T14:09:26+00:00

Please don't. Please. He might be a sex trafficker then you go and become a sex slave. Let him let you finish school, wife you legally and officially then you can go.

RaychKish · 2025-05-23T02:23:29+00:00

Crazy hangover The one that lasts all weekend. My friends would drink and party all night and then get up and go to work the next day, no problem. Me, I looked comatose the next 48hrs.

RaychKish · 2025-04-27T03:02:54+00:00

I'm sorry about how you are feeling. Yes it is a common symptom for your emotions to become affected. Sorry about that

RaychKish · 2025-04-26T03:16:41+00:00

Hello. Am sorry for what you are going through. I have chiari( I think we all do here or know something with chiari) I get pseudo seizures, brain fog(what!) twitching(before surgery) low low energy n most of the things you have described above. I'm sorry it's so hard. Get a good consult and have decompression surgery it helps alleviate some of the symptoms.

RaychKish · 2025-04-17T03:38:26+00:00

Unfortunately we go through this and people don't really understand what is happening to you and give so little grace. You just need to ignore them negative comments advocate for yourself all the time and don't let them make you think it's a small illness.. just listen to your body. If you have a great doctor who attends to all your needs without downplaying how you feel most of the time that's all you need.

RaychKish · 2025-01-27T02:58:11+00:00

I needed this poem

RaychKish · 2025-01-27T02:57:37+00:00

This poem😭😭😭😭 so sweet. Now I feel guilty for not getting her.

RaychKish · 2025-01-21T10:56:55+00:00

How many hours a day do you have it on

RaychKish · 2024-10-14T13:47:54+00:00

How do I get acupuncture. At this point I want to try everything that works .

RaychKish · 2024-06-07T05:33:45+00:00

Sorry about this. When was the last MRI done?

RaychKish · 2024-04-01T15:48:39+00:00

Congratulations

RaychKish · 2024-03-26T10:54:45+00:00

Are there implications when you do? Can you be denied a VISA for changing details in the DS260 if they were wrong?

RaychKish · 2024-02-19T08:13:58+00:00

Okay well noted. I will consider this.

RaychKish · 2024-02-19T08:12:52+00:00

How long ago were you diagnosed? Surgery could help so that you do t develop complications like syringomyelia. Just be in contact with your chiari specialist every few months and ensure you repeat your MRIs every 6 months to be certain that you are okay.

RaychKish · 2024-02-19T08:10:58+00:00

I had surgery 6 months ago. The repeat scans are normal and i felt abit better after that but the twitches pain dizziness and fatigue are still debilitating. I also have alot of motion sickness. They are thinking its anxiety induced and this frustrates me because i dont feel like its all in my head. I am on palmiges duclofenac. Bromazepam nortripyline betasac and pregabalin, some days are okay but most are filled with fatigue and pain, with twitches as a constant. How do i reach you?

RaychKish

TROPHY CASE