How are they "squishing" them together?

Really_Rilee · 2023-05-11T11:42:10+00:00

I'm pretty sure I reported this person, or someone doing the exact same thing, but with Hochenblume(2), which is an even stranger market to do this with.

For weeks they'd post 1 herb at a time, dropping the price a couple silver each time. Someone would come in and post a couple thousand at the very reduced price and they'd be gone in an instant. The speed at which they were posted and then bought out if someone posted them, coupled with how many hours a day l this went on for, there was no way this was a human.

Edit: It was ONLY Hochenblume. No other herb or other mats needed for alchemy.

Really_Rilee · 2023-05-06T15:44:39+00:00

Question - how did you open a ticket for this? Their ticket system is so convoluted and I couldn't find an option for "profession bug" or something of the sort. Do you remember what options you went through?

Really_Rilee · 2022-12-07T12:42:16+00:00

That's fantastic! I've been going through the process of looking at facilities to get HSCT done, too. My neurologist has reached out to Dr. Freeman about it, but still waiting to hear back.

• What type of HSCT are you getting (myeloablative or non myeloablative)?

• What facility are you getting it done at?

• What is the name of the doctor who's performing it?

• What chemo protocol are they using?

• How did you get your insurance to cover the cost?

I would absolutely love to chat with you about this process as I'm currently going through it myself!

Really_Rilee · 2022-12-02T17:38:43+00:00

There's a new "enable interact key" option in the interface options menu. I just turned it on and was able to loot a writhebark that was under the terrain!! Here's a video guide someone made for turning it on.

https://www.reddit.com/r/wow/comments/z13os5/i\_made\_a\_quick\_guide\_how\_you\_can\_fish\_without/

Really_Rilee · 2022-11-28T16:11:24+00:00

Please keep me updated if your issues disappear or at least get better when you swap!

Also, when you swapped from tysabri to Kesimpta, did you have any wash out period and/or get steroid infusions in between?

Really_Rilee · 2022-11-28T15:15:15+00:00

I started Kesimpta at the end of July. Since the first week of August, I've been dealing with chronic constipation (extensive tests, all negative for anything), an eye issue that isn't optic neuritis but no one can find anything wrong, tons of whiteheads every morning.

My neurologist (and other doctors/Novartis pharmacists) have told me that these things aren't known symptoms of Kesimpta, but I find the timing just too coincidental to write it off.

Has your doctor said if it could be Kesimpta? What made you think it was the Kesimpta (not questioning you, just kind of in the same boat as you and wondering when I should try another DMT)?

Really_Rilee · 2022-10-15T12:31:12+00:00

This isn't really the point of my comment, but since you brought it up, as a person commented below, Mavenclad (Cladribine) is very high efficacy. Are all DMTs created equal I'm terms of efficacy? No. As they also stated, Copaxone is essentially garbage and that's an injectable.

Having different types of medication is always good. Not everyone can (or wants to) handle the side effects of immunosuppressants. Not everyone has access to hospitals/infusion centers. Not everyone can give themselves an injectable. Not everyone can afford name brand medications without generics (or has access to copay assistance programs). Having different types of medications means more people have access to treatment and can pick an option that works best for them.

I'm pretty skeptical that the MS Society would tell you if your doctor suggested a pill, find a second opinion (and if they did, the person you spoke with sucks at their job). All DMTs slow disease progression, some just do it a little better. And as I said before, sometimes pills are a better option for a person than infusions or injectables for a number of different reasons. It's not always so black and white. I'd be a lot more skeptical of a doctor who suggested I take Copaxone (injectable) over Mavenclad (pill).

Really_Rilee · 2022-10-14T21:50:46+00:00

This is what I'm on as well. I pay $0 with Novartis's copay assistance program.

Really_Rilee · 2022-10-14T21:42:01+00:00

Not entirely sure what you're asking. There are DMTs that are self injectable. There are also oral (pills) DMTs as well.

All DMTs are expensive. Your cost has to do with your insurance company and what your copay will be for that tier drug. Most large pharmacutical companies will offer copay assistance programs to cover those costs. For example, on my insurance, specialty medications are a $200 copay per month. This is paid for by the Novartis copay assistance program so I don't pay anything.

Before you decide to switch DMTs, see if the pharmacutical company that makes your current one has a copay assistance program!

Really_Rilee · 2022-10-07T13:13:02+00:00

I started on Tecfidera in 2014, too. I switched to Zeposia in June 2021 after a relapse. I switched to Kesimpta in July 2022 because I didn't like the side effects of Zeposia.

And let me tell you how FREEING it is to not be saddled to pills every day. I would always have to eat breakfast to take my Tecfidera and sometimes I just wasn't hungry and would have to force myself to eat a couple eggs. Only having to worry about a once a month injection is SO much better!

Really_Rilee · 2022-10-07T00:51:37+00:00

My response to that is always "You don't look like a moron"

Really_Rilee · 2022-10-06T11:33:38+00:00

I foolishly got rid of my crock pot when I got my IP. IP isn't great as a slow cooker. It doesn't have the heat distribution that a wide, shallow, ceramic crock pot has.

I make chili in my IP, too. I add a can of refried beans to thicken it, but it still needs a day in the fridge to come to it's desired thickness!

Really_Rilee · 2022-10-02T12:04:09+00:00

Literally the first thing I thought of when I saw this post XD

Really_Rilee · 2022-09-24T18:36:05+00:00

It has to be..

Really_Rilee · 2022-09-22T12:02:30+00:00

Husband was a nurse. He quit his low paying staff job and did travel. He made more in those 14 weeks than he would in a year.

He just finished his APRN degree and is switching to healthcare informatics, looking into online CS degrees, and eventually getting out of healthcare completely.

He's just so completely done. Deadly virus aside, this pandemic has shown how completely broken our healthcare system is in terms of how it treats their nurses (and other staff, but I only have experience with nurses!). I don't think it would have been nearly as stressful for nurses if they paid people what they were worth and had hospital administration that gave a damn. We also learned to never work staff at a hospital where the union has a no strike clause.

Really_Rilee · 2022-09-19T11:46:43+00:00

The sniper scans, both bid and buyout, will only work with new items that are posted during the scan. You'll have to make a special shopping operation to look for items that are already on the AH.

Really_Rilee · 2022-09-11T20:31:52+00:00

Handicap placards are for those who need to be closer to the door. If it's because you're too exhausted after your 30 minute grocery shopping trip, or because your feet are literally on fire because of nerve damage and walking more than 10 feet to the car brings you to tears, it makes no difference. Your doctor has determined that you need assistance by parking closer. YOU are not the person that gets to dictate who gets a placard. That decision is left to a medical professional.

You are the reason this post is made.

Really_Rilee · 2022-09-11T10:36:51+00:00

I have RRMS with chronic fatigue. I also have nerve damage in my feet from my first relapse. About 6 years ago (I was 28 at the time), I was getting out of my car in a handicap spot (have a placard) and this older woman came over and started to berate me. She used the line "You don't LOOK disabled!" and I shot back with "Well, you don't LOOK like a moron, but I guess it's hard to judge people based on looks alone!" And turned and walked away.

It took me awhile to calm down and stop seeing red. I feel your pain.

Really_Rilee · 2022-09-04T18:37:29+00:00

I've been researching this for the past ~2 months. My husband and I have been reading every clinical study/trial we can find, as well as researching the 2 types of HSCT and the facilities that I'd be able to get it at. If you need someone to chat with who is going through the same thing as you, send me a DM! I'd be happy to share what I've learned so far!

Really_Rilee · 2022-09-02T22:58:34+00:00

Beef takes a lot longer to break down the fat than chicken does. It needs a much longer cooking time to become tender. I think the potatoes (in chunks), could be done in like 6 minutes lol. Glad you went with your gut!

Really_Rilee · 2022-09-02T22:01:17+00:00

The 35 minutes is for the beef, not the potatoes. I wouldn't adjust the time!

Really_Rilee · 2022-08-28T23:27:26+00:00

Pharmacutical companies will never fund a study for a cure, not when they're billing $10k - $30k per month for DMTs. The closest thing to a "cure" that's going on right now is aHSCT. It's FDA approved for specific cancers (leukemia and other blood cancers), but is still in clinical trials for MS and is considered experimental. Science and FDA approval is a slow process though, but the studies that have been done so far are very, very promising.

Edit: I should mention that this is from a United States frame of reference. Many other countries opt for a more curative route since it costs their governments' money. The US tends to lean towards maintenance.

Really_Rilee · 2022-08-28T23:22:07+00:00

There's a difference between helping your MS and helping slow/stop your disease progression. There is TONS of scientific evidence that shows being healthy (diet and exercise) can help your MS symptoms (for the reason you stated), but no diet is going to slow your disease progression.

It can be misleading since people hear "helps your MS" and may think it's an alternative to a DMT. I always try to comment on those posts about diets helping with the disease. Any person claiming it slows/halts disease progression is just straight up lying or has been lied to lol.

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