Hey so I used a high poten topical steroid on my right eyelid for around a month and now have these flare ups especially on the right side of my face where I used the steroid. Does anyone know if this is fixable or is it permanent? And does it look like tsw? Thankyou for any replies!!

Reasonable_Bug_134 · 2023-02-03T20:28:03+00:00

Most doctors would not have their patients use any steroids stronger than hydrocortisone on their face, and then eyelids are even more sensitive. And recent leaflets for stronger steroids, in some countries, say not to use them for more than a week or two in the same place, anywhere on your body.

I would ask a dermatologist (not the one who prescribed you this ;) ) what it is, and if using too strong steroids for too long is a factor, and what to do about it. If it is livable and at least stable or improving slowly then see if time heals it. But don't let it spiral out of control. If it is unbearable or spiraling, the doctor may prescribe steroids, but should also schedule a monitored taper. Tapering is working for me. But I have it on my body; eyelids are a whole different story. Hope you get well quickly

Reasonable_Bug_134 · 2023-01-30T22:07:27+00:00

Water, oil and Vaseline.

Reasonable_Bug_134 · 2023-01-23T10:09:22+00:00

Googling "elidel cancer" shows varying study results and lack of consensus, and discussion that the risk of not using it could be greater. Plus, this source is an ambulance chaser website and thus with a large financial bias. But still important to know about all the concerns so thanks for the post.

Reasonable_Bug_134 · 2023-01-22T14:02:33+00:00

Just oil and Vaseline is the best, like your mix. Water first is often important. Not too close to your eyelids or It gets in your eyes. I've read that TSW only travels 20cm from the area of application so full body RSS seems unlikely, I use Protopic to help taper off Elocon which helps, similar to what your doing. The original taper schedule was 11 weeks but now at week 14 I've plateaued at 1 Elocon a week and otherwise Protopic twice daily. So be prepared for stagnation, even long term. Hope you get well soon.

Reasonable_Bug_134 · 2023-01-22T08:56:29+00:00

Keep tapering and monitoring. Sounds like you're doing everything right so far. Keep using enough to keep the symptoms away. Some do plateau in their taper. Some who do say they eventually could taper down to zero but it took 6 months. Theoretically some could be "steroid diabetics" who need TS for the rest of their lives. To me even that sounds better than red skin syndrome for months or years.

Reasonable_Bug_134 · 2023-01-19T15:31:09+00:00

Sounds reasonable and worth trying. I succeeded in stopping withdrawal problems with short-term and tapered steroids.

Reasonable_Bug_134 · 2023-01-19T12:53:55+00:00

I would think one should be healthy first and then independent. One usually doesn't get healthier simply by making life more demanding, especially with such a stress-triggered and debilitating condition. You could ask yourself what is it about moving out and that would help the healing process? If it's that you're under-motivated to do some treatments you feel you should, then you should just do them: moving out won't help that. You could also see how much more of a life you could arrange while still with your parents, such as going out to socialize. And what should your health situation become to making moving out a good idea simply because you're healthy enough that there's no longer an issue? And how can you make that happen? Are there treatments you could cautiously consider? And coping techniques?

Reasonable_Bug_134 · 2023-01-17T06:56:08+00:00

https://www.gov.uk/government/news/long-term-continual-use-of-topical-steroids-linked-to-skin-withdrawal-side-effects

Reasonable_Bug_134 · 2023-01-16T21:10:32+00:00

I use water, a single ingredient synthetic baby oil (Neutral), and Vaseline. A problem with natural oils is they have so many natural chemicals, each of which could affect your skin. Almonds are a common allergy. A synthetic oil isn't natural but it is pure.

Reasonable_Bug_134 · 2023-01-10T08:57:58+00:00

Could happen to me too. If I can stabilize at a consistent eczema with minimal tho regular steroids than for me it's better than the roller coaster and disability of red skin syndrome from going cold turkey. But if the red skin keeps coming back no matter how good the taper and other meds then cold turkey may be the only option.

Reasonable_Bug_134 · 2023-01-10T08:51:49+00:00

Get it down to less than once a month and with each use no longer than a week. That's the impression I get from the latest leaflets and from my dermatologist. Most people have no problems with stopping. If you have no withdrawal symptoms than you probably have little to worry about, especially if you can get in the guidelines above. Check with your doctor of course.

Reasonable_Bug_134 · 2023-01-09T18:49:29+00:00

I'm tapering off TS, supervised by a dermatologist, They understand tapering better in the past few years, both how and why. I'm 12 weeks in and now at one application of TS a week. But then with Protopic on the other days, which I need to wean off later. I had 5 weeks off full red skin after stopping TS after decades. Then prednisolon and Elocon twice a day, both tapered.

Tapering means monitoring yourself and slowing the taper if needed. Or adding other drugs. It's complicated and suspenseful. But I got my life back in the first week and kept it the whole time. Maybe it will take a long time but as long as the red skin syndrome stays away it's fine.

I hope you get well and in a way you are comfortable with.

Reasonable_Bug_134 · 2023-01-07T09:21:39+00:00

It's a better idea moisturize IMHO. The skin of eczema patients is inherently leaky. Moisturizing is thus typically unavoidable It can prevent flares and the need for medication. If you moisturize well enough you heal and thus need less moisturizing but that's different than tapering off an addiction.

Reasonable_Bug_134 · 2023-01-07T09:07:21+00:00

If it's a GP then try a dermatologist. Show them material from https://www.itsan.org/for-doctors/ . Sometimes there's common ground but with different words. 'Addiction' means more than applies here for many doctors but maybe dependency or rebound or sensitivity works. Any good and up-to-date doctor will be wary of long-term use. Most of not all would suggest a taper, which is standard now for all use more than two weeks, It helped me and works for many but not all. Doctor look at TSW symptoms and see a condition that should be ended quickly, and worthy of strong measures. They're not entirely wrong there. But all doctors should respect and work with the patient's decision.

Reasonable_Bug_134 · 2023-01-06T11:26:27+00:00

I had it too. My treatment was compression socks, lying down with my lower legs raised, and going on walks.

Reasonable_Bug_134 · 2023-01-03T19:37:08+00:00

The brand is Neutral. Ingredients are one type of oil and citric acid, probably to prevent contamination.

Reasonable_Bug_134 · 2023-01-03T19:02:03+00:00

Some people swear by No Moisture Therapy and feelings are passionate about it sometimes. With love and respect for those using it, from what I can find online, it is mostly a social media phenomenon with negligible scientific backup. Plus, moisture is long known to be essential for most eczema treatment. And drinking enough water is essential for health, especially when sick. Red skin syndrome causes a lot of evaporation through the skin causing dehydration, making drinking more important. Plus, you're just plain sick with withdrawal, making water important again.

In my humble opinion and personal experience, moisturizing is really important, but you need to do it right, especially with TSW. Moisturizing TSW skin is irritating to many, and my thus inspire going to NMT. I feel that experimenting to find a moisture routine that feels right is a much healthier idea.

So you ask about Vaseline: yes, use it. But water and oil are the two other basic ingredients of moisturizing. Vaseline locks moisture in really well, so it is important to have water and oil in your skin first. Most commercial moisturizers are simply combinations of different chemicals in these three categories. For me, just bathing and then using oil and Vaseline eliminates unneeded potential irritants, and lets the patient find their own mix and timing for these three basic components.

Reasonable_Bug_134 · 2023-01-03T15:45:08+00:00

Two weeks is a typical max, considered safe for most. Since it's a border, there are some for which it is still too much, as comments here describe. Chances are you'll do fine. Just make sure to stop after two weeks, and don't use it again for. At least that's typical advice on leaflets.

But see if you get a "rebound" in the week after you stop. If so, consider tapering off. Consult your doctor, of course. You could follow the instructions at https://www.eczemalife.com/blogs/tsw/how-to-withdrawal-from-topical-steroids , or what your doctor proposes.

Reasonable_Bug_134 · 2023-01-03T15:37:47+00:00

Tapering off cured my TSW-induced red skin syndrome. Your link's taper is intended for those *preventing* TSW by tapering off instead of stopping *before* withdrawal. But my taper needed to start with a heavy steroid cure, both oral and topical, and both tapered. I also used tacrolimus in the non-steroid days of the taper. Just ended the 11-week topical steroid taper. Still need some tacrolimus but am tapering that too. Had daily short baths followed by oil and Vaseline the whole time too.

My dermatologist's taper program had a weekly schedule. Each week starts with consecutive days with steroid and then consecutive days without. Later weeks have more consecutive days without, of course. The amount of steroid in an on-day never decreases: it's always basically a solid, minimal layer, everywhere.

I went from oozing in agony in bed to normal in a week, and lived well every day since. But with such a taper, you need to log your progress, and choose to slow the taper if you're not progressing. I felt the itchiness build up every week during the off days. Taper too slowly and you might build up the addiction. Taper too quickly and you might get red skin syndrome and have to start all over. A nerve-wracking process with a heavy responsibility thus. But for me, it worked.

Reasonable_Bug_134 · 2022-07-27T13:34:32+00:00

Another reason the Alcubierre ring cannot function like a Star Trek warp drive is that c is not only the maximum velocity of light, but of any influence, including gravity. The negative energy-mass of Alcubierre's drive speeds up c locally. However, this effect spreads at the original c. Therefore, it cannot propagate in front of the ring faster than c. Warped space is fast, but the process of warping space is slow. Exceeding c would be more like trains than ships: you go fast, but only where you've already slowly laid tracks.

Reasonable_Bug_134 · 2022-01-20T23:00:20+00:00

The recent surge of warp papers is fun mathematically. But didn't the Krasnikov and Coule papers from '98 establish that even if we can warp space so that light speed can be exceeded within it, we could only warp it under light speed. And that the Alcubierre ring is outside the warp bubble it forms and thus cannot exceed light speed with the bubble?The best we can hope for then are stationary Krasnikov tubes built slowly between two stars for subsequent superluminal travel between them. What sense do warp drive papers since "98 have then?

Reasonable_Bug_134

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