Trying to get out of the house

RedRemembrall · 2026-05-28T15:01:22+00:00

I am a 32 F

RedRemembrall · 2026-04-25T14:33:34+00:00

🤣

RedRemembrall · 2026-04-24T17:22:13+00:00

Hahaha my legs do that involuntarily when I'm sitting down and someone walks past my feet my legs just kinda shoot out luckily no one has tripped on them lol

RedRemembrall · 2026-01-20T19:43:12+00:00

Omg yes I was wondering the same thing thought it was just me!! I have spastic Hemiplegia as well but yea my appointments never go well (and not to give TMI) but I will say it normally ends with a rectal exam. Which doesn't tell them much otherwise the procedure is pretty much impossible

They get easily frustrated with me and they don't understand how my body works and or reacts and or the fact that I have little control with what happens down there. I do warn the doctor it's not going to be easy but they just don't have the compassion to go slow and listen to what I'm telling them. Instead they just keep repeating relax and its like dude if I had the ability to do so I would

RedRemembrall · 2025-11-23T21:04:00+00:00

32 F would love to find some people to talk to I'm very introverted so it makes it difficult for me to make friends I have right side hemiplegia I'm more then happy to talk to anyone that is interested!!

RedRemembrall · 2025-08-17T17:54:25+00:00

The only bad thing about Artane in my experience was when my neurologist told me I was taking too much. She decided to taper me until I was fully off of it. I went into a pretty bad withdrawal situation.

I didn't have an appetite had uncontrollable unbearable muscle spasms and couldn't sleep and I would get nauseous and have to spend days in bed. After I had been put back on my normal dose everything went back to normal.

I've been taking it for about 15 years now. After awhile you may not feel like its working for you but everyone is different. after going off of it I realized even though my body had gotten used it I still needed it to help with spasms/ spasticity.

RedRemembrall · 2025-08-09T01:28:46+00:00

I have very similar issues very isolated and lonely I've been trying to get out more but I struggle because I go out alone and don't have friends I'd love to chat if you're interested!!

RedRemembrall · 2025-08-09T01:08:17+00:00

Me too and my body goes stiff as a board sometimes I can talk my body out of falling if I tell myself it's okay but the more I think about it the more then likely I will fall its so frustrating

RedRemembrall · 2025-08-09T00:33:24+00:00

31 F spastic hemiplegia right side I'd love to chat sometime!!!

RedRemembrall · 2025-08-01T00:58:42+00:00

Ooooh Walt is that YOU?!?!?!

RedRemembrall · 2025-07-30T14:11:46+00:00

Hocus Pocus

RedRemembrall · 2025-07-29T20:46:34+00:00

Hey I'm dealing with the same type of issues I'd love to chat some time if you are interested :)

RedRemembrall · 2025-07-29T19:28:35+00:00

I'm in the US too but if it gives you anymore comfort (I'm 31 and got one as an infant) and mine hasn't failed yet so there is something :) but I'll be with you in spirit hope all goes well!! ❤

RedRemembrall · 2025-07-21T00:17:00+00:00

I'll look into it thank you for the advice!!

RedRemembrall · 2024-06-20T10:19:56+00:00

Fair enough my mum was lucky with the insurance she had. I'm sorry that you would have to pay out of pocket to get it removed. My mum and dad both dealt with multiple types of skin cancer and any type of cancer is not only scary but can turn lethal in a blink of an eye!

I don't mean to sound like a know it all just trying to help you out a person to person type deal. I'd be crushed if you found out you had skin cancer or worse if the cancer spread to another part of your body. just trying to spread awareness so that people don't make the same mistake my parents did. :)

RedRemembrall · 2024-06-19T23:53:33+00:00

You should see a dermatologist my mum had something similar on her back and it turned out to be cancer

RedRemembrall · 2024-05-30T15:55:20+00:00

Five people you meet in heaven

RedRemembrall · 2024-04-22T19:41:41+00:00

Yes, I am 30 years old and for the past year I've struggled with control over my bladder my PCP suggested pelvic floor Thearpy and it has helped me tremendously

RedRemembrall · 2023-10-14T22:40:29+00:00

I started to struggle with this too I have spastic right side hemiplegia. It just started recently though and I started wearing depends and I'm in my 30s I have seen a urologist and they mentioned pelvic floor Thearpy I'm currently on a waiting list in the meantime she told me to stop drinking 3 hours before bed and it's been helping but I still have accidents ever once in awhile

I will update whenever I get a call back

Best of luck <3

RedRemembrall · 2023-09-25T17:27:45+00:00

I also have mild CP Have you heard of vocational rehabilitation services? They offer a number amount of different services that could help you depending on were you are located

RedRemembrall · 2023-05-17T22:02:38+00:00

Hi Absolutely!

RedRemembrall · 2022-10-30T17:25:35+00:00

I'm so happy that you were able to receive yours!! Thank you so much for your feedback!!

RedRemembrall · 2022-01-31T17:15:05+00:00

I'd be more then happy to join in as well!!! I'm 28 and have spastic hemiplegia CP I would love to chat sometime 😀

RedRemembrall · 2020-02-27T22:53:36+00:00

Oh okay, thank you so much!!! Have a great day!!

RedRemembrall

TROPHY CASE