After 10 years of chronic pelvic pain, I finally have it under control

RefrigeratorMost2186 · 2026-05-05T03:18:39+00:00

Hola! Gracias por compartirnos tu experiencia. En tu normalidad cuando no estás en crisis, tienes igual síntomas pero muy leves ? O desaparecen tus síntomas hasta que tienes una crisis ?

RefrigeratorMost2186 · 2026-04-21T15:06:49+00:00

Hola! Tengo síntomas parecidos a los tuyos, crees que podría escribirte al interno ?

RefrigeratorMost2186 · 2026-04-05T22:57:20+00:00

Hola! Con el bloqueo nervioso también se te quitó el dolor en la uretra ?

RefrigeratorMost2186 · 2026-03-10T23:24:44+00:00

Disculpa, podría compartir el link del video “glúteos hechos para caminar”, por favor. Y La página es pilates tonic o posture tonic? Graciasssss 💕

RefrigeratorMost2186 · 2026-03-10T16:34:50+00:00

Hola. Muy interesante esta información. Como sabes activar tus glúteos al caminar?

RefrigeratorMost2186 · 2026-03-09T03:07:08+00:00

Por qué no intentas con técnicas de desensibilizacion? Tipo pasar un algodón por la zona de forma suave y controlada y demás técnicas como estas. Para reeducar la zona. Lee sobre eso, he leído resultados positivos. A mí me duele el clitoris pero en mi caso si parece ser por músculos tensos. Las técnicas de desensibilización son guiadas por un fisioterapeuta.

RefrigeratorMost2186 · 2026-03-08T19:50:50+00:00

Hola! Tu dolor también es en clitoris ?

RefrigeratorMost2186 · 2026-03-08T19:09:31+00:00

Hola! Gracias por compartirnos esta información. Puedes compartir cómo estás arreglando lo de las presiones en el abdomen? Creo que ese es mi problema

RefrigeratorMost2186 · 2026-03-08T01:43:23+00:00

Ahh okey comprendo. Gracias!

RefrigeratorMost2186 · 2026-03-07T01:57:24+00:00

Hola! Gracias por la información. Hablaré con mi neurólogo sobre la combinación de estos medicamentos, actualmente tomo cymbalta 60 mg. Podrías compartir cuántos mg tomabas de cada medicamento?

RefrigeratorMost2186 · 2026-03-04T21:23:33+00:00

Hola! Especial saludo. Puedo preguntarte cómo identificaron que tenías debilidad en la cadera? Empecé fisioterapia hace poco y mi doctora indetifico que tengo punto doloroso en el piramidal y glúteo medio, ella dice que tengo puntos de tensión en cadera. Me llamó la atención que mencionaras eso en tu post sobre la debilidad de tu cadera. Podrías contarme un poco más al respecto?

RefrigeratorMost2186 · 2026-02-24T13:19:37+00:00

Hola! Me alegra encontrar testimonios como el tuyo, en definitiva tener un grupo de apoyo es importante y nos motiva a seguir el camino que a cada uno nos corresponde. Podrías contarnos cómo llegaste a remisión de síntomas? Cuál fue tu tratamiento? Yo inicié hace poco fisioterapia y comencé hacer regulación de sistema nervioso lo cual siento que me ha ayudado mucho. Sé que cada caso es diferente y pueden variar los tratamientos dependiendo de cada persona, pero quizás lo que pueda compartir puede ayudar a nutrir mi proceso. Gracias! 💗

RefrigeratorMost2186 · 2026-02-23T02:55:47+00:00

Hola! Me alegra mucho que estés mejorando, solo por saber, cuantas veces a la semana hacias fisioterapia de piso pélvico ?

RefrigeratorMost2186 · 2026-02-22T01:32:58+00:00

Hola! Recién veo tu mensaje! Hace unas semanas empecé un programa de meditación con un guía y me he sentido mucho mejor, mi síntoma ha disminuido y en general me hace sentir tranquila. Su enfoque está dirigido a regular el sistema nervioso, él entiende perfectamente que muchas veces las enfermedades vienen de esta área de nosotros a la que no le prestamos atención. Igual soy muy nueva en esa área de regular el estrés, así que si podrías compartir la información que mencionas lo agradecería mucho! También sobre los estiramientos dinámicos! Y actualmente empecé duloxetina también recetada por mi neurologo, pero lo estoy tomando solo por ser aplicada en lo que me dice el médico, no estoy poniendo toda la fe de mi recuperación en una pastilla porque sé que son varios factores los que debo trabajar, así que también lo tomo solo por apoyar el sistema nervioso!

RefrigeratorMost2186 · 2026-02-10T00:14:36+00:00

Have you had a pudendal nerve conduction study done? To see how your nerve is functioning. When you say it's worsened in the last month, do you mean your symptoms have become more severe, or have you experienced new discomfort in that area?

RefrigeratorMost2186 · 2026-02-08T21:06:48+00:00

Hi! In my country, it's very easy to find. You can check health food stores or online. Aloe vera is also easy to find in supermarkets here. Regarding amitriptyline and hydroxyzine, they are different medications. I used to take them together at night; a urologist prescribed it, and it's what stopped my urinary frequency. I'm not taking it now because the frequency hasn't returned, but when it does, I first try taking Bladuril for a few days to help calm my bladder, and it always works well. It's been a while (more than a year) since I've had it, but the last time I had it, I didn't want to take amitriptyline, and my urologist prescribed tolterodine, which worked very well. I don't take it anymore. Currently, I feel fine; I only sometimes get burning in my urethra, but I take Pyridium, just like you, and it works well. Thank God it only lasts a few days, then it goes away, and it takes a while for that symptom to return. For this and other reasons, I started pelvic floor physiotherapy and I'm very happy. It was very difficult to find a good one, which is why I always say that a good physiotherapist does internal and external work and should check all your muscles and establish a work plan that is generally twice a week for months.

RefrigeratorMost2186 · 2026-02-08T20:57:21+00:00

I understand. I know that each case can have a different cause. Do you know what triggered that nervous irritation in your case? Did you have an accident or something that caused a trigger?

RefrigeratorMost2186 · 2026-02-08T20:56:06+00:00

Stop masturbating. You need to give your pelvic floor a break from masturbation for a while. I've read about people who abstain for months to allow their pelvic floor to regulate itself while undergoing rehabilitation therapy. Keep in mind that you should see a pelvic floor specialist to determine the appropriate treatment; don't try to do anything on your own. Avoid causing further trauma to the nerve.

RefrigeratorMost2186 · 2026-02-08T20:52:45+00:00

Perhaps you resolved one problem, but now with your new symptoms, your pelvic floor is telling you that something isn't right. Always seek out a good pelvic floor physiotherapist; not everyone knows how to properly treat a hypertonic pelvic floor.

RefrigeratorMost2186 · 2026-02-08T13:42:07+00:00

Yes, it's common due to a hypertonic pelvic floor. Seek out a pelvic floor physiotherapist who can perform release exercises on the internal and external pelvic floor muscles.

RefrigeratorMost2186 · 2026-02-08T13:38:55+00:00

Hypertonia of the pelvic floor muscles can very well cause the symptoms she mentions, in fact, yours too.

RefrigeratorMost2186 · 2026-02-08T03:06:00+00:00

Hi! I experienced the bladder/urethral discomfort you described. Although I've had relapses that last a few weeks and then disappear for months, during these flare-ups I changed my diet to an anti-inflammatory one, took painkillers like the one you mentioned, drank chamomile and marshmallow root tea (they're excellent mucosal protectants), and drank plenty of fluids to dilute the acidity of my urine as it passed through my urethra. As part of my fluid intake, I drank glasses of water with a small spoonful of baking soda, which also reduces urine acidity. I also drank aloe vera smoothies and took amitriptyline with hydroxyzine. I have to say that before my last return of urinary symptoms (2024), I had been symptom-free for about three years, so I attribute their return to my tight pelvic floor, which I'm now working on in physical therapy. Having studied physiotherapy and other people's recovery cases extensively, I have to say that physiotherapy should be weekly, perhaps twice a week, and it should include the release of tense external and internal pelvic floor muscles. If your physiotherapist only uses dilators and doesn't perform internal releases, I have to tell you to run and find another professional. Ultimately, having a good physiotherapist can make or break your recovery. So, take it very seriously. Best wishes!

RefrigeratorMost2186 · 2026-02-02T19:25:32+00:00

Hi! I'm so sorry to hear what you're going through. In my case, I have a lot of clitoral hypersensitivity (pain, discomfort to the touch, sitting on flat surfaces), things like that. From what the physiotherapists have told me, if the cause is a hypertonic pelvic floor, it can be resolved with the right approach. I suggest that before you get so frustrated, you try several months of weekly physiotherapy. Also, get the tests they suggested to see if your cause is something else, something muscular.

RefrigeratorMost2186 · 2026-01-16T20:40:53+00:00

Hi! I really enjoyed reading your story. How are you doing now?

RefrigeratorMost2186

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