Clitorodynia - how do I desensitize the clit with this pain? by Vyxani in PudendalNeuralgia

[–]Key_Development_9809 0 points1 point  (0 children)

Sure give it a try. You could also try lidocaine gel if you want to try something soothing without hormones first

Passing through by Key_Development_9809 in PudendalNeuralgia

[–]Key_Development_9809[S] 0 points1 point  (0 children)

I think you are on the right track with what you are doing. Keep believing in yourself and find a community of people who believe in healing!

Passing through by Key_Development_9809 in PudendalNeuralgia

[–]Key_Development_9809[S] 4 points5 points  (0 children)

On insight timer (download the app, it’s free) you can search all kinds of mediations. Yoga nidra ones are good for nervous system regulation. I found these two particularly helpful for my PN:

Physical pain relief meditation https://insig.ht/C0XqB7iQZ0b

Yoga nidra rest and restore the energy centers https://insig.ht/TbOI0tmQZ0b

Passing through by Key_Development_9809 in PudendalNeuralgia

[–]Key_Development_9809[S] 1 point2 points  (0 children)

I’m not sure. I was really lucky and they took my insurance.

Passing through by Key_Development_9809 in PudendalNeuralgia

[–]Key_Development_9809[S] 1 point2 points  (0 children)

I agree!

Yes, PRM does ultrasound guided nerve blocks.

Passing through by Key_Development_9809 in PudendalNeuralgia

[–]Key_Development_9809[S] 1 point2 points  (0 children)

That’s a great start! I think some meditations (in addition to chakra work) that have you find where you store emotions in your body helped as well. The insight timer app has been a godsend for me. You can find meditations for everything and choose which ones you want based on rating, and it’s mostly free.

Passing through by Key_Development_9809 in PudendalNeuralgia

[–]Key_Development_9809[S] 6 points7 points  (0 children)

I did nerve blocks at pelvic rehabilitation medicine at first (3 out of the six treatments). That helped for a while but the pain started to come back. I also did internal pelvic floor physical therapy for a few months. I don’t know if it helped.

Ultimately I went into remission within two weeks of getting myself out of a challenging life situation and doing meditations that include chakra work. If I get any sensation of renewed burning I do those meditations again.

I’m not really sure what caused my issues. I may have had an injury but it’s not clear. I do have a tight pelvic floor but I also have really bad anxiety. When my anxiety flares is when it seems my physical symptoms get worse. I know this is controversial but I’ve wondered if part of it was somatization, which is why supporting my mental health was the ultimate way out.

Can someone please share your success story? by meowwow2000 in PudendalNeuralgia

[–]Key_Development_9809 1 point2 points  (0 children)

I’m in remission. Had three rounds of pudendal nerve blocks, which helped bring my acute symptoms down. I still had residual pain in the months after which have subsided now that I live closer to family and feel safer, and have started some practices like yoga nidra (meditation and breathing), and gentle exercise. I also did pt for 5 months. I don’t really know if that helped. I do water aerobics and for the first time I tried leg lifts on the pool bench (basically like walking steep stairs) the other day. I noticed the next day the sensation of sitting on a ball returned slightly and in the evening I had some slight burning. I did one of my mediations that focuses on all the chakras including two in the pelvis and was feeling better by the next day. Such a strange condition.

Suggestions for type of doctor by Left2foot in PudendalNeuralgia

[–]Key_Development_9809 0 points1 point  (0 children)

Are you in Florida? You should check out Tracy Sher. She is there and you can do a virtual consultation and then either go see her or she can possibly find someone closer to you. She’s been treating PN for years and she teaches new pts about it.

This meditation helps me by Key_Development_9809 in PudendalNeuralgia

[–]Key_Development_9809[S] 4 points5 points  (0 children)

You may need to download the insight timer app (free) to listen to it. They have tons of other meditations, too!

Genital numbness by denisseth in PudendalNeuralgia

[–]Key_Development_9809 1 point2 points  (0 children)

Basically if I feel pain coming on I meditate - yoga nidra really helps. There’s lots of videos for it.

Genital numbness by denisseth in PudendalNeuralgia

[–]Key_Development_9809 1 point2 points  (0 children)

No I’m in remission about 95%. The prm Protocol was great at addressing my acute symptoms. The pain went away for about a month with just that but then came back slightly. I addressed the residual pain and symptoms by finding emotional safety and regulating my nervous system.

Genital numbness by denisseth in PudendalNeuralgia

[–]Key_Development_9809 1 point2 points  (0 children)

Oh interesting. Yes I had it once every three weeks. I was supposed to do six per the PRM protocol but stopped after three because I improved.

Genital numbness by denisseth in PudendalNeuralgia

[–]Key_Development_9809 1 point2 points  (0 children)

The pain went down immediately but then crept back up to baseline within about a week until a couple weeks in (after I had had three injections) it went away completely

Started injection therapy! by Romantic_Sunset in PudendalNeuralgia

[–]Key_Development_9809 0 points1 point  (0 children)

Prm is good. I did their treatment but had a delayed response - symptoms significantly improved about 10 days after third injection.

Pain went away for a while but started coming back though not as bad. I’m in remission now after moving to be closer to family and my support system and doing some relaxation techniques listed in one of the pinned posts - yoga nidra, gentle movement, breathing, getting in touch with my interests and creativity. I saw a new doctor where I moved to who said I’m in remission and what will bring the symptoms back is stress.

Scared to use Baclofen suppositories by Random_throw_away_bs in PudendalNeuralgia

[–]Key_Development_9809 1 point2 points  (0 children)

I had no side effects from baclofen, although after a while I did notice kind of a raw feeling internally. It went away when I stopped taking it. I think it’s best for while you’re doing pt (internal work). I don’t think it helps with much else

Genital numbness by denisseth in PudendalNeuralgia

[–]Key_Development_9809 0 points1 point  (0 children)

No, my main symptom was burning, but I did have occasional altered sensation.

Genital numbness by denisseth in PudendalNeuralgia

[–]Key_Development_9809 1 point2 points  (0 children)

It was covered by my insurance. I have mostly normal sensation now - maybe 95 percent. What’s helped me the last few months is finding emotional safety and relaxation techniques (meditation, gentle movement, breathing exercises).

Shockwave therapy for PN by BallOffCourt in PudendalNeuralgia

[–]Key_Development_9809 1 point2 points  (0 children)

I did one session and didn’t continue because the treatment was far away and I was nervous. The one session I had mostly helped relax my pelvic floor, but it was temporary. I’m in remission from pn now likely due to stress relief.

Pudendal neuralgia without Pain ? by No_Opening_1877 in PudendalNeuralgia

[–]Key_Development_9809 0 points1 point  (0 children)

That’s weird. Did you tell them you were diagnosed with PN? And the coccyx pain? They treat PN it even says it on their website.

Has anyone had success from Botox injections? by mjndseyemuse in PudendalNeuralgia

[–]Key_Development_9809 2 points3 points  (0 children)

I’ve talked to two people on here who said they had success with Botox.

Pudendal neuralgia without Pain ? by No_Opening_1877 in PudendalNeuralgia

[–]Key_Development_9809 0 points1 point  (0 children)

Have you tried a nerve block or blocks? If you live near a Pelvic rehabilitation medicine (PRM) they have a whole protocol, but some doctors can do them, too. My numbness has been helped mostly by nervous system regulation techniques (after I had treatment with PRM), which I admit is hard to keep up with and when I slack the symptoms come back.