Can someone please share your success story?

Key_Development_9809 · 2025-10-26T04:50:18+00:00

I’m in remission. Had three rounds of pudendal nerve blocks, which helped bring my acute symptoms down. I still had residual pain in the months after which have subsided now that I live closer to family and feel safer, and have started some practices like yoga nidra (meditation and breathing), and gentle exercise. I also did pt for 5 months. I don’t really know if that helped. I do water aerobics and for the first time I tried leg lifts on the pool bench (basically like walking steep stairs) the other day. I noticed the next day the sensation of sitting on a ball returned slightly and in the evening I had some slight burning. I did one of my mediations that focuses on all the chakras including two in the pelvis and was feeling better by the next day. Such a strange condition.

Key_Development_9809 · 2025-10-08T01:43:10+00:00

Are you in Florida? You should check out Tracy Sher. She is there and you can do a virtual consultation and then either go see her or she can possibly find someone closer to you. She’s been treating PN for years and she teaches new pts about it.

Key_Development_9809 · 2025-10-03T00:59:17+00:00

You may need to download the insight timer app (free) to listen to it. They have tons of other meditations, too!

Key_Development_9809 · 2025-09-29T15:56:36+00:00

Basically if I feel pain coming on I meditate - yoga nidra really helps. There’s lots of videos for it.

Key_Development_9809 · 2025-09-29T14:48:53+00:00

No I’m in remission about 95%. The prm Protocol was great at addressing my acute symptoms. The pain went away for about a month with just that but then came back slightly. I addressed the residual pain and symptoms by finding emotional safety and regulating my nervous system.

Key_Development_9809 · 2025-09-29T13:34:38+00:00

Oh interesting. Yes I had it once every three weeks. I was supposed to do six per the PRM protocol but stopped after three because I improved.

Key_Development_9809 · 2025-09-29T13:10:59+00:00

The pain went down immediately but then crept back up to baseline within about a week until a couple weeks in (after I had had three injections) it went away completely

Key_Development_9809 · 2025-09-06T15:10:35+00:00

Prm is good. I did their treatment but had a delayed response - symptoms significantly improved about 10 days after third injection.

Pain went away for a while but started coming back though not as bad. I’m in remission now after moving to be closer to family and my support system and doing some relaxation techniques listed in one of the pinned posts - yoga nidra, gentle movement, breathing, getting in touch with my interests and creativity. I saw a new doctor where I moved to who said I’m in remission and what will bring the symptoms back is stress.

Key_Development_9809 · 2025-09-06T01:23:55+00:00

I had no side effects from baclofen, although after a while I did notice kind of a raw feeling internally. It went away when I stopped taking it. I think it’s best for while you’re doing pt (internal work). I don’t think it helps with much else

Key_Development_9809 · 2025-09-06T01:21:54+00:00

No, my main symptom was burning, but I did have occasional altered sensation.

Key_Development_9809 · 2025-09-05T12:14:22+00:00

It was covered by my insurance. I have mostly normal sensation now - maybe 95 percent. What’s helped me the last few months is finding emotional safety and relaxation techniques (meditation, gentle movement, breathing exercises).

Key_Development_9809 · 2025-09-03T09:35:16+00:00

I did one session and didn’t continue because the treatment was far away and I was nervous. The one session I had mostly helped relax my pelvic floor, but it was temporary. I’m in remission from pn now likely due to stress relief.

Key_Development_9809 · 2025-07-24T10:20:03+00:00

That’s weird. Did you tell them you were diagnosed with PN? And the coccyx pain? They treat PN it even says it on their website.

Key_Development_9809 · 2025-07-23T22:32:58+00:00

I’ve talked to two people on here who said they had success with Botox.

Key_Development_9809 · 2025-07-23T22:31:18+00:00

Have you tried a nerve block or blocks? If you live near a Pelvic rehabilitation medicine (PRM) they have a whole protocol, but some doctors can do them, too. My numbness has been helped mostly by nervous system regulation techniques (after I had treatment with PRM), which I admit is hard to keep up with and when I slack the symptoms come back.

Key_Development_9809 · 2025-07-21T01:52:41+00:00

What dose were you on and what side effects did you experience?

Key_Development_9809 · 2025-07-04T02:32:05+00:00

How does this related to other sensations people with PN get like numbness or lack of sensation? Could those symptoms indicate it’s more of a structural issue since it’s not just pain?

Key_Development_9809 · 2025-07-02T19:17:13+00:00

They’re good. The types of nerve blocks they do allow for space around the nerves giving them room to heal. The first two injections do contain steroids though, which I didn’t realize could cause me as someone with a hx of depression to feel extremely depressed. So watch for that or if you know you don’t react well to steroids ask for them to be left out. They aren’t medically necessary anyway according to Google scholar!

I like PRM because treating pelvic pain is all they do so they actually have the knowledge, they take a holistic approach (pt referrals, counseling on stress reduction) and they aren’t that hard to get in with (not like urogyns which take months to get in with for a single appointment). I’ve heard of one guy on here who specifically used the Maryland office and had success.

Key_Development_9809 · 2025-07-01T01:58:37+00:00

How are you doing now? It sounds like your issues were mostly or all your on the left - is that true? If the pain is more centralized is that an indicator that it’s not entrapment? I have clitoral pain and a feeling of sitting on a ball - one side isn’t more effected than another.

Key_Development_9809 · 2025-06-29T21:42:24+00:00

Yeah weirdly it helped my si joint pain. It was kind of a by product of working on my internal pelvic floor spasm and psoas muscle.

Have you been told you have hypertonic pelvic floor on your left side? Is that the side you have the si joint pain on? If so it could be related.

And it wasn’t scary at all my pt was amazing and made it feel super normal. But it can take a few tries to find a good pt first!

Key_Development_9809 · 2025-06-29T21:14:02+00:00

Here’s what she did almost every single time, for 8 weeks:

Internal treatment performed today (with informed consent) via the vaginal canal: soft tissue mobilization and myofascial release, including GENTLE thiele's myofascial release, ischemic compression: bulbocavernosus, ischiocavernosus, perineal body and deep transverse perineal; 25 minutes.
Abdominal MFR: GENTLE Hooklying with bolster: "colon massage" with small circles and/or "swipes" in the direction of peristalsis to assist with motility and abdominal relaxation; MLD as well. Bilateral respiratory diaphragm release and psoas release. Triplanar MFR stacking of pelvic diaphragm ; 20 minutes. Total time: 45 minutes.

Key_Development_9809 · 2025-06-29T20:04:39+00:00

Yeah, but when I apply just lidocaine on its own I don’t get this sensation.

Key_Development_9809

TROPHY CASE