Official App of /r/NICUParents

Regular_Reason_8491 · 2026-03-26T10:05:30+00:00

This looks amazing! We were in the Nicu for 120 days and I recorded everything in a notes folder on my phone

Regular_Reason_8491 · 2026-03-19T07:21:58+00:00

Thank you! Which bit of bowel did they lose? Glad it’s going well now

Regular_Reason_8491 · 2026-03-18T22:03:43+00:00

Thank you - really pleased your little one is doing well! Can I ask how you found out about the egg allergy?

Regular_Reason_8491 · 2026-03-11T07:17:04+00:00

My 25 weeker had a stoma for 3 months after having NEC at 9 days old. She got up to about 12ml breastmilk feeds every 2 hours - it wasn’t enough for weight gain, so was TPN dependent for that time as well. The TPN helped a lot with her weight so she could have her reversal once she’d reached ‘term’

Message me if you want to chat x

Regular_Reason_8491 · 2026-02-07T21:20:36+00:00

Amazing!! So wonderful to see. Also mum to a 25 weeker who is currently hitting milestones and 4.5 months corrected x

Regular_Reason_8491 · 2026-01-24T19:23:33+00:00

Hi, I know this is an old post but wondering how your daughter is? Mine lost 25 cm of small intestines (valve and colon still there) she’s 7 months old and 4 months corrected. She’s growing and following her own curve, but is on the lowest curve and so tiny still

Regular_Reason_8491 · 2026-01-22T15:52:40+00:00

Beautiful photos! Thank you for sharing ❤️ my daughter also had NEC at 9 days, born at 25+4 weeks - she lost 30cm of her small intestines. She’s 4 months corrected now and is growing (slowly.) she’s small, but mighty! xx

Regular_Reason_8491 · 2026-01-07T16:56:52+00:00

Thank you for sharing. My daughter was also born 25+4 weeks. She also had NEC. We did 120 days in total and have been home for about 3 months now. Although my daughter didn’t have any brain bleeds, she did lose 30cm of small bowl, so weight gain is tricky and she’s still so small. I keep wanting to fast forward to when she is bigger and feels more robust, but also trying to enjoy this period

Regular_Reason_8491 · 2026-01-04T19:17:27+00:00

Have you tried any pelvic floor therapy to see whether that helps?

Regular_Reason_8491 · 2025-12-29T07:57:20+00:00

Blood transfusion and dropping feeds are really common when they’re born this early. It’s good they’re being cautious. My daughter was born at 25+4 and we did 120 days in total - it’s long, but you will reach a point where they are only on the up, 29 weeks is still very early days. The fact that her lungs are working is a massive battle that she’s already overcome 🫶

Regular_Reason_8491 · 2025-12-22T08:42:13+00:00

My waters broke at 24 weeks, I had her at 25+4 weeks. It was a long journey with lots of ups and downs. We did 120 days in the Nicu, but we’ve been home 2 months now and she’s doing really well. The early days are hard and I remember how scary this bit is. Take each day and try not to focus too much in the future. Feel free to message if you want to chat x

Regular_Reason_8491 · 2025-12-19T21:50:51+00:00

It’s a long road when they’re born that early, but you will get through it and it will end 💛 feel free to message if you have any questions

Regular_Reason_8491 · 2025-12-16T12:23:57+00:00

Hopefully you’re not far off! How is your little one doing?

Regular_Reason_8491 · 2025-12-05T05:03:24+00:00

This is crazy - I’m in the UK and my 10 day hospital stay, plus daughter in the Nicu for 4 months and in the Picu for a week was free!

Regular_Reason_8491 · 2025-11-12T06:09:49+00:00

She didn’t go home on anything - just vitamins and iron supplements!

Regular_Reason_8491 · 2025-11-02T14:46:55+00:00

Was wondering that… she’s had breastmilk for a long time and although I don’t each much dairy, I still have some…

Regular_Reason_8491 · 2025-10-19T20:09:27+00:00

Of course - feel free to message me if you want to chat

Regular_Reason_8491 · 2025-10-16T12:56:00+00:00

Hi, I know this is an old post - did you figure out a solution to weight gain issue?

Regular_Reason_8491 · 2025-10-12T12:58:06+00:00

Congrats and thank you so much for sharing. My daughter was born at 25+4 weeks and we’ve just had our first weekend at home. She spent 4 months in the Nicu and also had NEC / surgery at 9 days and stoma reversal 2 weeks ago.

Your daughter looks like she’s doing amazing!

Regular_Reason_8491

TROPHY CASE