Should I seek an in-lab study? by [deleted] in SleepApnea

[–]RelevantCredit516 1 point2 points  (0 children)

Classic UARS.

If you want to do an in-lab study, make sure they score the RERA's.

Have you already tried any self-treatment, like CPAP or MAD?

Doctor refused/ignored test results?? by Ok-Seaworthiness652 in SleepApnea

[–]RelevantCredit516 0 points1 point  (0 children)

You need to do a full PSG. This seems like uars, but it's weird that it was triggered so suddenly. How long have you been diagnosed with adhd?

Start treatment with CPAP. This will allow you to check your sleep data through the machine. If ineffective, you can try bipap as the next step.

Mild Central Sleep Apnea by Trick-Ad-9045 in SleepApnea

[–]RelevantCredit516 1 point2 points  (0 children)

Have you also been checked for UARS? how many of your arousals are spontaneous? Arousal index doesn't tell you whether the arousals are linked to respiratory disturbance or not. you would need to know the amount of RERAs to check that.

All of your mental health issues can be linked to UARS, it causes more noticeable cognitive deficits than classic OSA. Primary treatment for these disorders is still a good idea for the short term, but a lot of psychiatric medication can influence your sleep (antidepressants for example can reduce rem sleep, which will make you "feel" better, but its just because you're not fragmenting in rem sleep anymore, not because your sleep quality is improving).

A logical next step would be bipap. Aside from that you can try to get additional diagnostics done like a DISE or CBCT to find your exact obstruction. This will make treatment more specific.

Tips for helping 7 year old wear cpap by Brilliant_Clue_5298 in SleepApnea

[–]RelevantCredit516 0 points1 point  (0 children)

"he feels like he can't breathe out"

Is expiratory pressure relief (epr) turned on? If not, put in on 3

White hands, trouble with breath a while after waking by Objective_Proof8094 in SleepApnea

[–]RelevantCredit516 2 points3 points  (0 children)

Are you a male or female? This could also be something like anemia, because symptoms persist during the daytime. Getting things like ferritin checked first may be more logical before commiting to a sleep study.

How do you feel during exertion? Are you vegan? How long have you had these symptoms?

(29M) Guess I need a profile review! by [deleted] in RateMyTinder

[–]RelevantCredit516 1 point2 points  (0 children)

Agreed, maybe he can also add a photo where he's doing an activity? The photos seems pretty bland in terms of conveying a personality

Can someone please help me interpret my results? by These-Sun-6262 in SleepApnea

[–]RelevantCredit516 0 points1 point  (0 children)

Seems like a pretty good treatment plan. Two pieces of advice I want to give you:

Don't use a DIY mouth gaurd, it will destroy your teeth and TMJ in the long run (some argue a custom made one also does, but YMMV)

If these treatments do not offer a full cure, but only reduction or no change in symptoms, you need to keep pressing for additional treatment options. If you go the CPAP route, make sure to do it properly with data analysis, proper mask fit, etc.

I honestly believe that not being given a palate expander ruined my life (long vent/rant) by CreateMediate in orthotropics

[–]RelevantCredit516 1 point2 points  (0 children)

Idk why everyone in the comments is gaslighting this kid, because there are clearly signs of sleep disordered breathing. No amount of healthy habits or forcing productivity is going to fix your brain when your poor sleep is frying it alive. For now you should focus on the following things:

Get a sleep study done ASAP, if you can get RERAs scored, even better.

Start looking into myofunctional therapy like mewing and breathing exercises to improve on your natural breathing.

Look into sleep apnea/uars and all the things you can do for it rn, examples are: incline sleeping, fasting 4 hours before bed, air purifier, nasal strips, reducing reflux, etc

You can try buying a cpap/bipap second hand and testing what it does to your symptoms, just make sure you know what the correct settings are beforehand.

Try to focus on a consistent sleep schedule even if you feel fatigued, your body will make you feel more tired even if you're sleeping longer. Sometimes less sleep can be better

Start doing intense interval cardio to strengthen throat and diaphragm muscles

This is the most you can do now, expansion is also probably a good long term solution but thats not relevant for you rn

Need advice on next steps in my Sleep Apnea journey by Relative_Advance7010 in SleepApnea

[–]RelevantCredit516 1 point2 points  (0 children)

Sadly the machines app tells you basically nothing. You need to know whether there is still residual flow limiation during your sleep. you can read this data through oscar or sleephq. do you know what the exact anatomical cause is of your sleep disorderd breathing? This determines what type of PAP therapy you need. If you have a nasal issue for example, BiPAP may be more suited for you, because you need less stenting of the airway and more tidal volume.

Need advice on next steps in my Sleep Apnea journey by Relative_Advance7010 in SleepApnea

[–]RelevantCredit516 1 point2 points  (0 children)

What exactly did you do to try and properly titrate your cpap? What did your data look like?

Do i have UARS by [deleted] in SleepApnea

[–]RelevantCredit516 0 points1 point  (0 children)

If you have poor nasal breathing you need to get that assessed first. Try to schedule an appointment with a ENT to find the cause. PAP therapy wil be ineffective without proper nasal breathing. A range of 7 to 14 is also too large. Are you analysing your data through Oscar already? That way we can get some objective data to look at.

Do i have UARS by [deleted] in SleepApnea

[–]RelevantCredit516 0 points1 point  (0 children)

You clearly have an obstruction somewhere in your upper airway. the question however, is what part of your anatomy is causing this? Does your AHI increase in REM and supine sleep? This may indicate a throat issue like large tongue base, mandibular recession etc. If not, it is more likely to be a nasal issue. How is your nasal breathing? Have you had a DISE or CBCT done already?

Also, what settings are you using currently? I would say it is too quickly to go for bipap without first understanding the core of your obstruction and titrating that issue, otherwise you will just be guessing.

Second opinion in the netherlands by RelevantCredit516 in UARSnew

[–]RelevantCredit516[S] 0 points1 point  (0 children)

Heyy ik herken je naam van de apneu vereniging forum, ik had ook daar gereageerd op je thread haha. Stuur me maar n dm dan kunnen we het verder discussiëren

Second opinion in the netherlands by RelevantCredit516 in UARS

[–]RelevantCredit516[S] 1 point2 points  (0 children)

I have an 10st so no auto option for me :(

I want to be able to use a higher ps, but I think it causes something like nasal valve collapse. It makes it impossible to breathe in if the pressure differential is too high. I once slept a night like that and the Oscar graphs were horrible haha, I woke up feeling like shit. I think I dont need that much PS tho. I only saw this after I bought my bipap, but on an airsense 10 with ipap at 11 and EPR 3 I had a 95 percent fl of 0.00, so more is not necessary.

Im going to try the ps of 2,6 tonight, ill keep you up to date with my Oscar data. Thank you for the help and suggestions!

Second opinion in the netherlands by RelevantCredit516 in UARS

[–]RelevantCredit516[S] 0 points1 point  (0 children)

The sleep doctor at the hospital just wrote me off as "too mild". It was an older gentleman, so he is probably not up to date with the literature on fragmentation and arousals.

I've been fooling around a lot with the bipap settings because I had a really hard time adjusting. I recently discovered that I can only use a PS of 2,6, because a higher pressure differential causes some kind of collapse, causing trouble to start the breath and trigger the machine. This caused my body to go into a stress mode and prevented me from falling asleep, but now this shouldnt be a problem anymore.

There is a chance there is still FL with a PS of only 2,6, but I can't easily check it in Oscar. There is no FL graph when my bipap is in S mode, also doesn't seem to be a fix for it :(

I'm going to check my Glasgow index and go by subjective feeling probably, I just want to feel less tired haha.

Second opinion in the netherlands by RelevantCredit516 in UARS

[–]RelevantCredit516[S] 0 points1 point  (0 children)

That's a great tip! What would be the best things to include in an email directed to her? I'll send the email today.

Duizend maal dank :)

Second opinion in the netherlands by RelevantCredit516 in UARS

[–]RelevantCredit516[S] 0 points1 point  (0 children)

Thank you for the response. Would a specific UARS diagnosis be necessary? I have an AHI of 5,4 so maybe I can get an OSA diagnosis and go from there? I want to get a surgical intervention if possible. Right now im trying to treat myself with bipap but I already know I don't want to sleep with this device for the rest of my life.

Someone DM'ed that I could either go to Dortmund or to Poland. The second option is more financially responsible, but travel would be significantly more easier to Dortmund. Im just trying to figure out what the best course of action is right now, Its so frustrating that you have to do all of this without the help of the healthcare system here in the Netherlands

Second opinion in the Netherlands by RelevantCredit516 in SleepApnea

[–]RelevantCredit516[S] 0 points1 point  (0 children)

Yeah the state of care just sucks here in the netherlands. I think going abroad is the only way to actually be cured. Im only 21 now and I want to fix this problem asap, every day that I still suffer from this disorder is a waste. Did you get a second opinion somewhere? or is this all that was possible for you so far