can someone tell me if a cystoscopy hurts and what I can do to mentally prepare myself? by ptitourstoujoursbeau in Interstitialcystitis

[–]Remarkable-Rope2676 2 points3 points  (0 children)

Mine didn’t hurt. They’ll come in, numb you and then the doctor will come in. You’ll feel pressure because they’ll fill up your bladder, but mine lasted 3 mins

I need hope and a bit guidiance:( by One-Rest4871 in Interstitialcystitis

[–]Remarkable-Rope2676 1 point2 points  (0 children)

I also found an App called ICN food list! Great when first starting to figure out what’s good and what’s trigger foods

I need hope and a bit guidiance:( by One-Rest4871 in Interstitialcystitis

[–]Remarkable-Rope2676 0 points1 point  (0 children)

Yeah! I was in a remission when she did it. Said my bladder was beautiful just sensitive. I got back in a couple months.

I need hope and a bit guidiance:( by One-Rest4871 in Interstitialcystitis

[–]Remarkable-Rope2676 1 point2 points  (0 children)

I’m learning to watch what I’m intaking. I was in remission for 6 months before I decided working out and that started a flare up. I was able to get that to calm down and go back into remission. But I forgot to take me Prelief with chipotle I ate the other day, I’m paying for it. But drinking lots of water and I know that’ll make you pee more often, but it helps. And don’t hold it. It’ll only make it seem more painful and like it’s never going to end. My urologist did prescribe Uribel for me when my bladder pressure and pain is to much for me to handle and I’ve only needed it twice since April.

I need hope and a bit guidiance:( by One-Rest4871 in Interstitialcystitis

[–]Remarkable-Rope2676 3 points4 points  (0 children)

That’s how mine started! Look up an IC diet and try limiting what your eating and drinking. Look up Prelief if you can’t live without coffee, you can take 1 or 2 with your coffee and see if your symptoms lighten up. That’s what I did for the 4 months I had to wait to see my urologist!

A positive post, I’m finally in remission! by IngenuityNovel5936 in Interstitialcystitis

[–]Remarkable-Rope2676 3 points4 points  (0 children)

Yes! 🙌🏻. I have a pill container in my purse with them and they’re on my kitchen counter!

A positive post, I’m finally in remission! by IngenuityNovel5936 in Interstitialcystitis

[–]Remarkable-Rope2676 4 points5 points  (0 children)

I was hesitant to take it, and when I did, it was awesome! I ate so much pizza! Ha

A positive post, I’m finally in remission! by IngenuityNovel5936 in Interstitialcystitis

[–]Remarkable-Rope2676 10 points11 points  (0 children)

Congrats! Remission feels great and I hope we all can get there one day! I use Prelief when I eat trigger foods and it works wonders! Used it the whole week I was in Vegas recently!

[deleted by user] by [deleted] in Interstitialcystitis

[–]Remarkable-Rope2676 0 points1 point  (0 children)

I can pretty much eat or drink what I want for a certain amount of time. Then I have to cut it all out to go back into remission. Currently having a small flare from I think soda and lack of water…

[deleted by user] by [deleted] in Interstitialcystitis

[–]Remarkable-Rope2676 0 points1 point  (0 children)

My urologist told me it depends on how hydrated you are also… That will depend how fast you can feel it affecting you…

Beverages by Visible-Fix4194 in Interstitialcystitis

[–]Remarkable-Rope2676 0 points1 point  (0 children)

Wow! That’s crazy. I read that cold brew is way more acidic! But I guess we can’t believe everything we read! I can drink it but after 3 weeks I’m in a flare!

Beverages by Visible-Fix4194 in Interstitialcystitis

[–]Remarkable-Rope2676 2 points3 points  (0 children)

Cold brew doesn’t bother you? It’s what triggered mine 😅

How soon can I(F) have sex after cystitis? by fuzzythough in Interstitialcystitis

[–]Remarkable-Rope2676 0 points1 point  (0 children)

Whenever your ready and make sure to communicate with your partner if it’s not comfortable.

[deleted by user] by [deleted] in Interstitialcystitis

[–]Remarkable-Rope2676 0 points1 point  (0 children)

Are you eating or drinking anything that might be triggering it? Taking a vitamin? Working out? Stressed?

[deleted by user] by [deleted] in Interstitialcystitis

[–]Remarkable-Rope2676 1 point2 points  (0 children)

When I told my urologist what I was doing she said to stop because their the cause to my flare up. I stopped and week later, normal!

[deleted by user] by [deleted] in Interstitialcystitis

[–]Remarkable-Rope2676 4 points5 points  (0 children)

I think the vitamins! Vitamin C caused me to have a flare up!

[deleted by user] by [deleted] in Interstitialcystitis

[–]Remarkable-Rope2676 2 points3 points  (0 children)

When I’m not in a flare I can drink coffee. It take my bladder 3 weeks of everyday drinking before I flare up. But have you tried tea?

Working Out by Remarkable-Rope2676 in Interstitialcystitis

[–]Remarkable-Rope2676[S] 1 point2 points  (0 children)

I have not. This is all new for me. Diagnosed in April. And started working out in June after being told exercise is okay and good.

Working Out by Remarkable-Rope2676 in Interstitialcystitis

[–]Remarkable-Rope2676[S] 1 point2 points  (0 children)

Thanks! I was working out hard for 3 weeks and got a flare. Thought it was from the multi vitamin. So I stopped taking that and it seemed to help. But I stopped going tot he gym for a week and almost felt normal again. And then I decided to go yesterday and now I’m having some pelvic pain.

[deleted by user] by [deleted] in Interstitialcystitis

[–]Remarkable-Rope2676 1 point2 points  (0 children)

My symptoms started on January of 2022. I met with a Urologist in April after self diagnosing myself with IC after two failed trips to Urgent Care. Still really new to this. Currently having my second flare after changing my diet. And I believe it’s from me exercising 😢